Publications

BMJ open

Quality of life and experiences of sarcoma trajectories (the QUEST study): protocol for an international observational cohort study on diagnostic pathways of sarcoma patients.

26-10-2020

Journal of the National Comprehensive Cancer Network : JNCCN

Relationship Between Quality of Life and Survival in Patients With Pancreatic and Periampullary Cancer: A Multicenter Cohort Analysis.

01-10-2020

BMC palliative care

Prospective cohort study of patients with advanced cancer and their relatives on the experienced quality of care and life (eQuiPe study): a study protocol.

09-09-2020

Sarcoma

Assessing the Desmoid-Type Fibromatosis Patients' Voice: Comparison of Health-Related Quality of Life Experiences from Patients of Two Countries.

11-08-2020

Cancer

Patterns and predictors of cancer-related fatigue in ovarian and endometrial cancers: 1-year longitudinal study.

01-08-2020

Acta oncologica (Stockholm, Sweden)

Health-related quality of life and symptom burden of epithelioid hemangioendothelioma patients: a global patient-driven Facebook study in a very rare malignancy.

01-08-2020

Cancers

The Perceived Impact of Length of the Diagnostic Pathway Is Associated with Health-Related Quality of Life of Sarcoma Survivors: Results from the Dutch Nationwide SURVSARC Study.

28-07-2020

BMC cancer

Design of the PROstate cancer follow-up care in Secondary and Primary hEalth Care study (PROSPEC): a randomized controlled trial to evaluate the effectiveness of primary care-based follow-up of localized prostate cancer survivors.

08-07-2020

Journal of the National Comprehensive Cancer Network : JNCCN

Patient Satisfaction and Quality of Life Before and After Treatment of Pancreatic and Periampullary Cancer: A Prospective Multicenter Study.

01-06-2020

HemaSphere

Development of a Patient Centered Outcome Set for Patients With Multiple Myeloma to be Used in Clinical Practice.

01-06-2020

Journal of medical Internet research

Web-Based Self-Management for Patients With Lymphoma: Assessment of the Reach of Intervention of a Randomized Controlled Trial.

14-05-2020

The oncologist

The EORTC QLQ-C30 Summary Score as Prognostic Factor for Survival of Patients with Cancer in the "Real-World": Results from the Population-Based PROFILES Registry.

01-04-2020

BMC medical informatics and decision making

Development and internal validation of prediction models for colorectal cancer survivors to estimate the 1-year risk of low health-related quality of life in multiple domains.

12-03-2020

BJU international

The risk of developing cardiovascular disease is increased for patients with prostate cancer who are pharmaceutically treated for depression.

01-03-2020

Trials

GERiatric Screening in the treatment of elderly patients with Ovarian Carcinoma (GERSOC): study protocol for a pragmatic, cluster randomised controlled trial.

22-02-2020

Cancer

Changes in internet use and wishes of cancer survivors: A comparison between 2005 and 2017.

15-01-2020

Annals of oncology : official journal of the European Society for Medical Oncology

Multicenter randomized controlled trial to evaluate the efficacy and tolerability of frozen gloves for the prevention of chemotherapy-induced peripheral neuropathy.

01-01-2020

Journal of the National Cancer Institute

Quality of Life During Palliative Systemic Therapy for Esophagogastric Cancer: Systematic Review and Meta-Analysis.

01-01-2020

The Lancet. Oncology

Role of eHealth application Oncokompas in supporting self-management of symptoms and health-related quality of life in cancer survivors: a randomised, controlled trial.

01-01-2020

Health informatics journal

Uptake and usage of an online prostate cancer treatment decision aid in Dutch clinical practice: A quantitative analysis from the Prostate Cancer Patient Centered Care trial.

01-12-2019

Journal of cancer survivorship : research and practice

Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out.

01-12-2019

Journal of cancer survivorship : research and practice

Correction to: Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out.

01-12-2019

Breast cancer research and treatment

Assessing the quality and communicative aspects of patient decision aids for early-stage breast cancer treatment: a systematic review.

01-11-2019

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Cancer survivor perspectives on sharing patient-generated health data with central cancer registries.

01-11-2019

Psycho-oncology

Anxiety and depression mediate the association between chemotherapy-induced peripheral neuropathy and fatigue: Results from the population-based PROFILES registry.

01-09-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Usability of an online application for reporting the burden of side effects in cancer patients.

01-09-2019

Health informatics journal

A global, incremental development method for a web-based prostate cancer treatment decision aid and usability testing in a Dutch clinical setting.

01-09-2019

Journal of geriatric oncology

The impact of colorectal surgery on health-related quality of life in older functionally dependent patients with cancer - A longitudinal follow-up study.

01-09-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Measuring health-related quality of life in colorectal cancer patients: systematic review of measurement properties of the EORTC QLQ-CR29.

01-07-2019

Urologic oncology

Communicative aspects of decision aids for localized prostate cancer treatment - A systematic review.

01-07-2019

International journal of gynecological cancer : official journal of the International Gynecological Cancer Society

Treatment patterns and associated factors in patients with advanced epithelial ovarian cancer: a population-based study.

01-07-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Presence of gastro-intestinal symptoms in ovarian cancer patients during survivorship: a cross-sectional study from the PROFILES registry.

01-06-2019

Cancer medicine

The association of cancer-related fatigue with all-cause mortality of colorectal and endometrial cancer survivors: Results from the population-based PROFILES registry.

01-06-2019

Acta oncologica (Stockholm, Sweden)

Changes in health-related quality of life among gynecologic cancer survivors during the two years after initial treatment: a longitudinal analysis.

01-05-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Illness perceptions are associated with higher health care use in survivors of endometrial cancer-a study from the population-based PROFILES registry.

01-05-2019

Gynecologic oncology

Older ovarian cancer survivors report lower long-term health-related quality of life than younger survivors: A study from the population-based profiles registry.

01-05-2019

Acta oncologica (Stockholm, Sweden)

Do people improve health behavior after their partner is diagnosed with cancer? A prospective study in the Danish diet, Cancer and Health Cohort.

01-05-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Social consequences of advanced cancer in patients and their informal caregivers: a qualitative study.

01-04-2019

Patient education and counseling

Paying attention to relatives of cancer patients: What can we learn from their online writings?

01-03-2019

Patient education and counseling

Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid. Results at one-year follow-up in the PCPCC trial.

01-03-2019

Cancer

Patients' information coping styles influence the benefit of a survivorship care plan in the ROGY Care Trial: New insights for tailored delivery.

01-03-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

The role of positive psychological changes in anxiety and depression of patients with ovarian tumors and their partners: an observational study from the population-based PROFILES registry.

01-02-2019

Journal of cancer survivorship : research and practice

Financial toxicity is more than costs of care: the relationship between employment and financial toxicity in long-term cancer survivors.

01-02-2019

The oncologist

Cluster Analysis Demonstrates the Need to Individualize Care for Cancer Survivors.

01-12-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Cancer survivors not participating in observational patient-reported outcome studies have a lower survival compared to participants: the population-based PROFILES registry.

01-12-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Identification and assessment of health-related quality of life issues in patients with sporadic desmoid-type fibromatosis: a literature review and focus group study.

01-12-2018

European journal of cancer (Oxford, England : 1990)

Monitoring potentially modifiable lifestyle factors in cancer survivors: A narrative review on currently available methodologies and innovations for large-scale surveillance.

01-11-2018

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Impact of a web-based prostate cancer treatment decision aid on patient-reported decision process parameters: results from the Prostate Cancer Patient Centered Care trial.

01-11-2018

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Health-related quality of life among cancer patients in their last year of life: results from the PROFILES registry.

01-10-2018

Acta oncologica (Stockholm, Sweden)

Reference data of the EORTC QLQ-C30 questionnaire: five consecutive annual assessments of approximately 2000 representative Dutch men and women.

01-10-2018