Publications

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Measuring health-related quality of life in colorectal cancer patients: systematic review of measurement properties of the EORTC QLQ-CR29.

01-07-2019

Urologic oncology

Communicative aspects of decision aids for localized prostate cancer treatment - A systematic review.

01-07-2019

International journal of gynecological cancer : official journal of the International Gynecological Cancer Society

Treatment patterns and associated factors in patients with advanced epithelial ovarian cancer: a population-based study.

01-07-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Presence of gastro-intestinal symptoms in ovarian cancer patients during survivorship: a cross-sectional study from the PROFILES registry.

01-06-2019

Cancer medicine

The association of cancer-related fatigue with all-cause mortality of colorectal and endometrial cancer survivors: Results from the population-based PROFILES registry.

01-06-2019

Acta oncologica (Stockholm, Sweden)

Changes in health-related quality of life among gynecologic cancer survivors during the two years after initial treatment: a longitudinal analysis.

01-05-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Illness perceptions are associated with higher health care use in survivors of endometrial cancer-a study from the population-based PROFILES registry.

01-05-2019

Gynecologic oncology

Older ovarian cancer survivors report lower long-term health-related quality of life than younger survivors: A study from the population-based profiles registry.

01-05-2019

Acta oncologica (Stockholm, Sweden)

Do people improve health behavior after their partner is diagnosed with cancer? A prospective study in the Danish diet, Cancer and Health Cohort.

01-05-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Social consequences of advanced cancer in patients and their informal caregivers: a qualitative study.

01-04-2019

Patient education and counseling

Paying attention to relatives of cancer patients: What can we learn from their online writings?

01-03-2019

Patient education and counseling

Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid. Results at one-year follow-up in the PCPCC trial.

01-03-2019

Cancer

Patients' information coping styles influence the benefit of a survivorship care plan in the ROGY Care Trial: New insights for tailored delivery.

01-03-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

The role of positive psychological changes in anxiety and depression of patients with ovarian tumors and their partners: an observational study from the population-based PROFILES registry.

01-02-2019

Journal of cancer survivorship : research and practice

Financial toxicity is more than costs of care: the relationship between employment and financial toxicity in long-term cancer survivors.

01-02-2019

The oncologist

Cluster Analysis Demonstrates the Need to Individualize Care for Cancer Survivors.

01-12-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Cancer survivors not participating in observational patient-reported outcome studies have a lower survival compared to participants: the population-based PROFILES registry.

01-12-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Identification and assessment of health-related quality of life issues in patients with sporadic desmoid-type fibromatosis: a literature review and focus group study.

01-12-2018

European journal of cancer (Oxford, England : 1990)

Monitoring potentially modifiable lifestyle factors in cancer survivors: A narrative review on currently available methodologies and innovations for large-scale surveillance.

01-11-2018

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Impact of a web-based prostate cancer treatment decision aid on patient-reported decision process parameters: results from the Prostate Cancer Patient Centered Care trial.

01-11-2018

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Health-related quality of life among cancer patients in their last year of life: results from the PROFILES registry.

01-10-2018

Acta oncologica (Stockholm, Sweden)

Reference data of the EORTC QLQ-C30 questionnaire: five consecutive annual assessments of approximately 2000 representative Dutch men and women.

01-10-2018

Cancer medicine

Incidence of cardiovascular disease up to 13 year after cancer diagnosis: A matched cohort study among 32 757 cancer survivors.

01-10-2018

Acta oncologica (Stockholm, Sweden)

Patient characteristics and treatment considerations in pancreatic cancer: a population based study in the Netherlands.

01-09-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments.

01-08-2018

Psycho-oncology

Association between information provision and supportive care needs among ovarian cancer survivors: A cross-sectional study from the PROFILES registry.

01-08-2018

Cancer

More frequent use of health care services among distressed compared with nondistressed survivors of lymphoma and chronic lymphocytic leukemia: Results from the population-based PROFILES registry.

15-07-2018

Health and quality of life outcomes

Understanding the quality of life (QOL) issues in survivors of cancer: towards the development of an EORTC QOL cancer survivorship questionnaire.

04-06-2018

Gynecologic oncology

Course of chemotherapy-induced peripheral neuropathy and its impact on health-related quality of life among ovarian cancer patients: A longitudinal study.

01-06-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Survivorship care plans have a negative impact on long-term quality of life and anxiety through more threatening illness perceptions in gynecological cancer patients: the ROGY care trial.

01-06-2018

Trials

ENdometrial cancer SURvivors' follow-up carE (ENSURE): Less is more? Evaluating patient satisfaction and cost-effectiveness of a reduced follow-up schedule: study protocol of a randomized controlled trial.

16-04-2018

JMIR cancer

Analysis of Content Shared in Online Cancer Communities: Systematic Review.

03-04-2018

Psychological medicine

Leukocyte telomere length and personality: associations with the Big Five and Type D personality traits.

01-04-2018

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

The impact of prostate cancer diagnosis and treatment decision-making on health-related quality of life before treatment onset.

01-04-2018

International journal of gynecological cancer : official journal of the International Gynecological Cancer Society

Recurrent Cancer Is Associated With Dissatisfaction With Care-A Longitudinal Analysis Among Ovarian and Endometrial Cancer Patients.

01-03-2018

Acta dermato-venereologica

Development and Validation of the Basal and Squamous Cell Carcinoma Quality of Life (BaSQoL) Questionnaire.

07-02-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

International development of four EORTC disease-specific quality of life questionnaires for patients with Hodgkin lymphoma, high- and low-grade non-Hodgkin lymphoma and chronic lymphocytic leukaemia.

01-02-2018

Acta oncologica (Stockholm, Sweden)

Nationwide comprehensive gastro-intestinal cancer cohorts: the 3P initiative.

01-02-2018

Journal of cancer survivorship : research and practice

The impact of the survivorship care plan on health care use: 2-year follow-up results of the ROGY care trial.

01-02-2018

Diabetes & metabolism

Changes in glucose-lowering drug use before and after cancer diagnosis in patients with diabetes.

01-02-2018

Journal of cancer survivorship : research and practice

Identifying the subtypes of cancer-related fatigue: results from the population-based PROFILES registry.

01-02-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Evaluation of the psychometric properties of the EORTC chemotherapy-induced peripheral neuropathy questionnaire (QLQ-CIPN20).

01-11-2017

Breast cancer research and treatment

Pharmaceutically treated anxiety but not depression prior to cancer diagnosis predicts the onset of cardiovascular disease among breast cancer survivors.

01-11-2017

Nutrition and cancer

The Impact of Body Mass Index and Waist Circumference on Health-related Quality of Life Among Colorectal Cancer Survivors: Results from the PROFILES Registry.

17-10-2017

The British journal of dermatology

Histological diagnosis of basal cell carcinoma is not associated with life expectancy in elderly Dutch people: a population-based cohort study.

01-10-2017

JMIR cancer

The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review.

28-09-2017

Clinical colorectal cancer

The Course of Neuropathic Symptoms in Relation to Adjuvant Chemotherapy Among Elderly Patients With Stage III Colon Cancer: A Longitudinal Study.

01-09-2017

European journal of cancer prevention : the official journal of the European Cancer Prevention Organisation (ECP)

A population-based approach to compare patient-reported outcomes of long-term Hodgkin's lymphoma survivors according to trial participation: a joint study from the Patient-Reported Outcomes Following Initial Treatment and Long-term Evaluation of Survivorship registry and European Organisation for Research and Treatment of Cancer.

01-09-2017

Journal of medical Internet research

"Am I normal?" The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers.

15-08-2017

Trials

Efficacy, cost-utility and reach of an eHealth self-management application 'Oncokompas' that helps cancer survivors to obtain optimal supportive care: study protocol for a randomised controlled trial.

22-05-2017