Publications

Journal of cancer survivorship : research and practice

Cost-utility of an eHealth application 'Oncokompas' that supports cancer survivors in self-management: results of a randomised controlled trial.

01-02-2021

Acta oncologica (Stockholm, Sweden)

Health-related quality of life of long-term advanced melanoma survivors treated with anti-CTLA-4 immune checkpoint inhibition compared to matched controls.

01-01-2021

Cancer

Patient and diagnostic intervals of survivors of sarcoma: Results from the SURVSARC study.

15-12-2020

BMJ supportive & palliative care

Physical activity and health-related quality of life in multiple myeloma survivors: the PROFILES registry.

01-12-2020

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Painful and non-painful chemotherapy-induced peripheral neuropathy and quality of life in colorectal cancer survivors: results from the population-based PROFILES registry.

01-12-2020

Journal of cancer education : the official journal of the American Association for Cancer Education

Introducing Decision Aids into Routine Prostate Cancer Care in The Netherlands: Implementation and Patient Evaluations from the Multi-regional JIPPA Initiative.

01-12-2020

BMC medical informatics and decision making

Communicating tailored risk information of cancer treatment side effects: Only words or also numbers?

27-10-2020

BMJ open

Quality of life and experiences of sarcoma trajectories (the QUEST study): protocol for an international observational cohort study on diagnostic pathways of sarcoma patients.

26-10-2020

Journal of the National Comprehensive Cancer Network : JNCCN

Relationship Between Quality of Life and Survival in Patients With Pancreatic and Periampullary Cancer: A Multicenter Cohort Analysis.

01-10-2020

BMC palliative care

Prospective cohort study of patients with advanced cancer and their relatives on the experienced quality of care and life (eQuiPe study): a study protocol.

09-09-2020

Sarcoma

Assessing the Desmoid-Type Fibromatosis Patients' Voice: Comparison of Health-Related Quality of Life Experiences from Patients of Two Countries.

11-08-2020

Cancer

Patterns and predictors of cancer-related fatigue in ovarian and endometrial cancers: 1-year longitudinal study.

01-08-2020

Acta oncologica (Stockholm, Sweden)

Health-related quality of life and symptom burden of epithelioid hemangioendothelioma patients: a global patient-driven Facebook study in a very rare malignancy.

01-08-2020

Cancers

The Perceived Impact of Length of the Diagnostic Pathway Is Associated with Health-Related Quality of Life of Sarcoma Survivors: Results from the Dutch Nationwide SURVSARC Study.

28-07-2020

BMC cancer

Design of the PROstate cancer follow-up care in Secondary and Primary hEalth Care study (PROSPEC): a randomized controlled trial to evaluate the effectiveness of primary care-based follow-up of localized prostate cancer survivors.

08-07-2020

Journal of the National Comprehensive Cancer Network : JNCCN

Patient Satisfaction and Quality of Life Before and After Treatment of Pancreatic and Periampullary Cancer: A Prospective Multicenter Study.

01-06-2020

HemaSphere

Development of a Patient Centered Outcome Set for Patients With Multiple Myeloma to be Used in Clinical Practice.

01-06-2020

Journal of medical Internet research

Web-Based Self-Management for Patients With Lymphoma: Assessment of the Reach of Intervention of a Randomized Controlled Trial.

14-05-2020

The oncologist

The EORTC QLQ-C30 Summary Score as Prognostic Factor for Survival of Patients with Cancer in the "Real-World": Results from the Population-Based PROFILES Registry.

01-04-2020

BMC medical informatics and decision making

Development and internal validation of prediction models for colorectal cancer survivors to estimate the 1-year risk of low health-related quality of life in multiple domains.

12-03-2020

BJU international

The risk of developing cardiovascular disease is increased for patients with prostate cancer who are pharmaceutically treated for depression.

01-03-2020

Trials

GERiatric Screening in the treatment of elderly patients with Ovarian Carcinoma (GERSOC): study protocol for a pragmatic, cluster randomised controlled trial.

22-02-2020

Cancer

Changes in internet use and wishes of cancer survivors: A comparison between 2005 and 2017.

15-01-2020

Annals of oncology : official journal of the European Society for Medical Oncology

Multicenter randomized controlled trial to evaluate the efficacy and tolerability of frozen gloves for the prevention of chemotherapy-induced peripheral neuropathy.

01-01-2020

Journal of the National Cancer Institute

Quality of Life During Palliative Systemic Therapy for Esophagogastric Cancer: Systematic Review and Meta-Analysis.

01-01-2020

The Lancet. Oncology

Role of eHealth application Oncokompas in supporting self-management of symptoms and health-related quality of life in cancer survivors: a randomised, controlled trial.

01-01-2020

Health informatics journal

Uptake and usage of an online prostate cancer treatment decision aid in Dutch clinical practice: A quantitative analysis from the Prostate Cancer Patient Centered Care trial.

01-12-2019

Journal of cancer survivorship : research and practice

Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out.

01-12-2019

Journal of cancer survivorship : research and practice

Correction to: Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out.

01-12-2019

Breast cancer research and treatment

Assessing the quality and communicative aspects of patient decision aids for early-stage breast cancer treatment: a systematic review.

01-11-2019

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Cancer survivor perspectives on sharing patient-generated health data with central cancer registries.

01-11-2019

Psycho-oncology

Anxiety and depression mediate the association between chemotherapy-induced peripheral neuropathy and fatigue: Results from the population-based PROFILES registry.

01-09-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Usability of an online application for reporting the burden of side effects in cancer patients.

01-09-2019

Health informatics journal

A global, incremental development method for a web-based prostate cancer treatment decision aid and usability testing in a Dutch clinical setting.

01-09-2019

Journal of geriatric oncology

The impact of colorectal surgery on health-related quality of life in older functionally dependent patients with cancer - A longitudinal follow-up study.

01-09-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Measuring health-related quality of life in colorectal cancer patients: systematic review of measurement properties of the EORTC QLQ-CR29.

01-07-2019

Urologic oncology

Communicative aspects of decision aids for localized prostate cancer treatment - A systematic review.

01-07-2019

International journal of gynecological cancer : official journal of the International Gynecological Cancer Society

Treatment patterns and associated factors in patients with advanced epithelial ovarian cancer: a population-based study.

01-07-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Presence of gastro-intestinal symptoms in ovarian cancer patients during survivorship: a cross-sectional study from the PROFILES registry.

01-06-2019

Cancer medicine

The association of cancer-related fatigue with all-cause mortality of colorectal and endometrial cancer survivors: Results from the population-based PROFILES registry.

01-06-2019

Acta oncologica (Stockholm, Sweden)

Changes in health-related quality of life among gynecologic cancer survivors during the two years after initial treatment: a longitudinal analysis.

01-05-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Illness perceptions are associated with higher health care use in survivors of endometrial cancer-a study from the population-based PROFILES registry.

01-05-2019

Gynecologic oncology

Older ovarian cancer survivors report lower long-term health-related quality of life than younger survivors: A study from the population-based profiles registry.

01-05-2019

Acta oncologica (Stockholm, Sweden)

Do people improve health behavior after their partner is diagnosed with cancer? A prospective study in the Danish diet, Cancer and Health Cohort.

01-05-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Social consequences of advanced cancer in patients and their informal caregivers: a qualitative study.

01-04-2019

Patient education and counseling

Paying attention to relatives of cancer patients: What can we learn from their online writings?

01-03-2019

Patient education and counseling

Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid. Results at one-year follow-up in the PCPCC trial.

01-03-2019

Cancer

Patients' information coping styles influence the benefit of a survivorship care plan in the ROGY Care Trial: New insights for tailored delivery.

01-03-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

The role of positive psychological changes in anxiety and depression of patients with ovarian tumors and their partners: an observational study from the population-based PROFILES registry.

01-02-2019

Journal of cancer survivorship : research and practice

Financial toxicity is more than costs of care: the relationship between employment and financial toxicity in long-term cancer survivors.

01-02-2019

Cost-utility of an eHealth application 'Oncokompas' that supports cancer survivors in self-management: results of a randomised controlled trial.

Health-related quality of life of long-term advanced melanoma survivors treated with anti-CTLA-4 immune checkpoint inhibition compared to matched controls.

Patient and diagnostic intervals of survivors of sarcoma: Results from the SURVSARC study.

Physical activity and health-related quality of life in multiple myeloma survivors: the PROFILES registry.

Painful and non-painful chemotherapy-induced peripheral neuropathy and quality of life in colorectal cancer survivors: results from the population-based PROFILES registry.

Introducing Decision Aids into Routine Prostate Cancer Care in The Netherlands: Implementation and Patient Evaluations from the Multi-regional JIPPA Initiative.

Communicating tailored risk information of cancer treatment side effects: Only words or also numbers?

Quality of life and experiences of sarcoma trajectories (the QUEST study): protocol for an international observational cohort study on diagnostic pathways of sarcoma patients.

Relationship Between Quality of Life and Survival in Patients With Pancreatic and Periampullary Cancer: A Multicenter Cohort Analysis.

Prospective cohort study of patients with advanced cancer and their relatives on the experienced quality of care and life (eQuiPe study): a study protocol.

Assessing the Desmoid-Type Fibromatosis Patients' Voice: Comparison of Health-Related Quality of Life Experiences from Patients of Two Countries.

Patterns and predictors of cancer-related fatigue in ovarian and endometrial cancers: 1-year longitudinal study.

Health-related quality of life and symptom burden of epithelioid hemangioendothelioma patients: a global patient-driven Facebook study in a very rare malignancy.

The Perceived Impact of Length of the Diagnostic Pathway Is Associated with Health-Related Quality of Life of Sarcoma Survivors: Results from the Dutch Nationwide SURVSARC Study.

Design of the PROstate cancer follow-up care in Secondary and Primary hEalth Care study (PROSPEC): a randomized controlled trial to evaluate the effectiveness of primary care-based follow-up of localized prostate cancer survivors.

Patient Satisfaction and Quality of Life Before and After Treatment of Pancreatic and Periampullary Cancer: A Prospective Multicenter Study.

Development of a Patient Centered Outcome Set for Patients With Multiple Myeloma to be Used in Clinical Practice.

Web-Based Self-Management for Patients With Lymphoma: Assessment of the Reach of Intervention of a Randomized Controlled Trial.

The EORTC QLQ-C30 Summary Score as Prognostic Factor for Survival of Patients with Cancer in the "Real-World": Results from the Population-Based PROFILES Registry.

Development and internal validation of prediction models for colorectal cancer survivors to estimate the 1-year risk of low health-related quality of life in multiple domains.

The risk of developing cardiovascular disease is increased for patients with prostate cancer who are pharmaceutically treated for depression.

GERiatric Screening in the treatment of elderly patients with Ovarian Carcinoma (GERSOC): study protocol for a pragmatic, cluster randomised controlled trial.

Changes in internet use and wishes of cancer survivors: A comparison between 2005 and 2017.

Multicenter randomized controlled trial to evaluate the efficacy and tolerability of frozen gloves for the prevention of chemotherapy-induced peripheral neuropathy.

Quality of Life During Palliative Systemic Therapy for Esophagogastric Cancer: Systematic Review and Meta-Analysis.

Role of eHealth application Oncokompas in supporting self-management of symptoms and health-related quality of life in cancer survivors: a randomised, controlled trial.

Uptake and usage of an online prostate cancer treatment decision aid in Dutch clinical practice: A quantitative analysis from the Prostate Cancer Patient Centered Care trial.

Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out.

Correction to: Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out.

Assessing the quality and communicative aspects of patient decision aids for early-stage breast cancer treatment: a systematic review.

Cancer survivor perspectives on sharing patient-generated health data with central cancer registries.

Anxiety and depression mediate the association between chemotherapy-induced peripheral neuropathy and fatigue: Results from the population-based PROFILES registry.

Usability of an online application for reporting the burden of side effects in cancer patients.

A global, incremental development method for a web-based prostate cancer treatment decision aid and usability testing in a Dutch clinical setting.

The impact of colorectal surgery on health-related quality of life in older functionally dependent patients with cancer - A longitudinal follow-up study.

Measuring health-related quality of life in colorectal cancer patients: systematic review of measurement properties of the EORTC QLQ-CR29.

Communicative aspects of decision aids for localized prostate cancer treatment - A systematic review.

Treatment patterns and associated factors in patients with advanced epithelial ovarian cancer: a population-based study.

Presence of gastro-intestinal symptoms in ovarian cancer patients during survivorship: a cross-sectional study from the PROFILES registry.

The association of cancer-related fatigue with all-cause mortality of colorectal and endometrial cancer survivors: Results from the population-based PROFILES registry.

Changes in health-related quality of life among gynecologic cancer survivors during the two years after initial treatment: a longitudinal analysis.

Illness perceptions are associated with higher health care use in survivors of endometrial cancer-a study from the population-based PROFILES registry.

Older ovarian cancer survivors report lower long-term health-related quality of life than younger survivors: A study from the population-based profiles registry.

Do people improve health behavior after their partner is diagnosed with cancer? A prospective study in the Danish diet, Cancer and Health Cohort.

Social consequences of advanced cancer in patients and their informal caregivers: a qualitative study.

Paying attention to relatives of cancer patients: What can we learn from their online writings?

Longitudinal regret and information satisfaction after deciding on treatment for localized prostate cancer with or without a decision aid. Results at one-year follow-up in the PCPCC trial.

Patients' information coping styles influence the benefit of a survivorship care plan in the ROGY Care Trial: New insights for tailored delivery.

The role of positive psychological changes in anxiety and depression of patients with ovarian tumors and their partners: an observational study from the population-based PROFILES registry.

Financial toxicity is more than costs of care: the relationship between employment and financial toxicity in long-term cancer survivors.

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