Publications

The oncologist

Cluster Analysis Demonstrates the Need to Individualize Care for Cancer Survivors.

01-12-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Cancer survivors not participating in observational patient-reported outcome studies have a lower survival compared to participants: the population-based PROFILES registry.

01-12-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Identification and assessment of health-related quality of life issues in patients with sporadic desmoid-type fibromatosis: a literature review and focus group study.

01-12-2018

European journal of cancer (Oxford, England : 1990)

Monitoring potentially modifiable lifestyle factors in cancer survivors: A narrative review on currently available methodologies and innovations for large-scale surveillance.

01-11-2018

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Impact of a web-based prostate cancer treatment decision aid on patient-reported decision process parameters: results from the Prostate Cancer Patient Centered Care trial.

01-11-2018

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Health-related quality of life among cancer patients in their last year of life: results from the PROFILES registry.

01-10-2018

Acta oncologica (Stockholm, Sweden)

Reference data of the EORTC QLQ-C30 questionnaire: five consecutive annual assessments of approximately 2000 representative Dutch men and women.

01-10-2018

Cancer medicine

Incidence of cardiovascular disease up to 13 year after cancer diagnosis: A matched cohort study among 32 757 cancer survivors.

01-10-2018

Acta oncologica (Stockholm, Sweden)

Patient characteristics and treatment considerations in pancreatic cancer: a population based study in the Netherlands.

01-09-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments.

01-08-2018

Psycho-oncology

Association between information provision and supportive care needs among ovarian cancer survivors: A cross-sectional study from the PROFILES registry.

01-08-2018

Cancer

More frequent use of health care services among distressed compared with nondistressed survivors of lymphoma and chronic lymphocytic leukemia: Results from the population-based PROFILES registry.

15-07-2018

Health and quality of life outcomes

Understanding the quality of life (QOL) issues in survivors of cancer: towards the development of an EORTC QOL cancer survivorship questionnaire.

04-06-2018

Gynecologic oncology

Course of chemotherapy-induced peripheral neuropathy and its impact on health-related quality of life among ovarian cancer patients: A longitudinal study.

01-06-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Survivorship care plans have a negative impact on long-term quality of life and anxiety through more threatening illness perceptions in gynecological cancer patients: the ROGY care trial.

01-06-2018

Trials

ENdometrial cancer SURvivors' follow-up carE (ENSURE): Less is more? Evaluating patient satisfaction and cost-effectiveness of a reduced follow-up schedule: study protocol of a randomized controlled trial.

16-04-2018

JMIR cancer

Analysis of Content Shared in Online Cancer Communities: Systematic Review.

03-04-2018

Psychological medicine

Leukocyte telomere length and personality: associations with the Big Five and Type D personality traits.

01-04-2018

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

The impact of prostate cancer diagnosis and treatment decision-making on health-related quality of life before treatment onset.

01-04-2018

International journal of gynecological cancer : official journal of the International Gynecological Cancer Society

Recurrent Cancer Is Associated With Dissatisfaction With Care-A Longitudinal Analysis Among Ovarian and Endometrial Cancer Patients.

01-03-2018

Acta dermato-venereologica

Development and Validation of the Basal and Squamous Cell Carcinoma Quality of Life (BaSQoL) Questionnaire.

07-02-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

International development of four EORTC disease-specific quality of life questionnaires for patients with Hodgkin lymphoma, high- and low-grade non-Hodgkin lymphoma and chronic lymphocytic leukaemia.

01-02-2018

Acta oncologica (Stockholm, Sweden)

Nationwide comprehensive gastro-intestinal cancer cohorts: the 3P initiative.

01-02-2018

Journal of cancer survivorship : research and practice

The impact of the survivorship care plan on health care use: 2-year follow-up results of the ROGY care trial.

01-02-2018

Diabetes & metabolism

Changes in glucose-lowering drug use before and after cancer diagnosis in patients with diabetes.

01-02-2018

Journal of cancer survivorship : research and practice

Identifying the subtypes of cancer-related fatigue: results from the population-based PROFILES registry.

01-02-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Evaluation of the psychometric properties of the EORTC chemotherapy-induced peripheral neuropathy questionnaire (QLQ-CIPN20).

01-11-2017

Breast cancer research and treatment

Pharmaceutically treated anxiety but not depression prior to cancer diagnosis predicts the onset of cardiovascular disease among breast cancer survivors.

01-11-2017

Nutrition and cancer

The Impact of Body Mass Index and Waist Circumference on Health-related Quality of Life Among Colorectal Cancer Survivors: Results from the PROFILES Registry.

17-10-2017

The British journal of dermatology

Histological diagnosis of basal cell carcinoma is not associated with life expectancy in elderly Dutch people: a population-based cohort study.

01-10-2017

JMIR cancer

The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review.

28-09-2017

Clinical colorectal cancer

The Course of Neuropathic Symptoms in Relation to Adjuvant Chemotherapy Among Elderly Patients With Stage III Colon Cancer: A Longitudinal Study.

01-09-2017

European journal of cancer prevention : the official journal of the European Cancer Prevention Organisation (ECP)

A population-based approach to compare patient-reported outcomes of long-term Hodgkin's lymphoma survivors according to trial participation: a joint study from the Patient-Reported Outcomes Following Initial Treatment and Long-term Evaluation of Survivorship registry and European Organisation for Research and Treatment of Cancer.

01-09-2017

Journal of medical Internet research

"Am I normal?" The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers.

15-08-2017

Trials

Efficacy, cost-utility and reach of an eHealth self-management application 'Oncokompas' that helps cancer survivors to obtain optimal supportive care: study protocol for a randomised controlled trial.

22-05-2017

Health and quality of life outcomes

International evaluation of the psychometrics of health-related quality of life questionnaires for use among long-term survivors of testicular and prostate cancer.

11-05-2017

Gynecologic oncology

Effects of Survivorship Care Plans on patient reported outcomes in ovarian cancer during 2-year follow-up - The ROGY care trial.

01-05-2017

Gynecologic oncology

Illness perceptions and changes in lifestyle following a gynecological cancer diagnosis: A longitudinal analysis.

01-05-2017

Trials

Lymphoma InterVEntion (LIVE) - patient-reported outcome feedback and a web-based self-management intervention for patients with lymphoma: study protocol for a randomised controlled trial.

28-04-2017

Annals of hematology

The magnitude of neurotoxicity in patients with multiple myeloma and the impact of dose modifications: results from the population-based PROFILES registry.

01-04-2017

Acta oncologica (Stockholm, Sweden)

Adolescent and young adult (AYA) lymphoma survivors report lower health-related quality of life compared to a normative population: results from the PROFILES registry.

01-02-2017

Acta oncologica (Stockholm, Sweden)

Cancer survivors' preference for follow-up care providers: a cross-sectional study from the population-based PROFILES-registry.

01-02-2017

Journal of cancer survivorship : research and practice

Factors influencing implementation of a survivorship care plan-a quantitative process evaluation of the ROGY Care trial.

01-02-2017

Acta oncologica (Stockholm, Sweden)

The impact of cancer survivorship care plans on patient and health care provider outcomes: a current perspective.

01-02-2017

Urologic oncology

How do patients choose between active surveillance, radical prostatectomy, and radiotherapy? The effect of a preference-sensitive decision aid on treatment decision making for localized prostate cancer.

01-02-2017

European journal of cancer (Oxford, England : 1990)

Reference data of the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-CIPN20 Questionnaire in the general Dutch population.

01-12-2016

Clinical cancer research : an official journal of the American Association for Cancer Research

Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials-Letter.

15-11-2016

Cardio-oncology (London, England)

Cardiovascular co-morbidity in cancer patients: the role of psychological distress.

15-11-2016

Urologic oncology

Prostate cancer survivors with a passive role preference in treatment decision-making are less satisfied with information received: Results from the PROFILES registry.

01-11-2016

European journal of cancer (Oxford, England : 1990)

The use of EORTC measures in daily clinical practice-A synopsis of a newly developed manual.

01-11-2016

Cluster Analysis Demonstrates the Need to Individualize Care for Cancer Survivors.

Cancer survivors not participating in observational patient-reported outcome studies have a lower survival compared to participants: the population-based PROFILES registry.

Identification and assessment of health-related quality of life issues in patients with sporadic desmoid-type fibromatosis: a literature review and focus group study.

Monitoring potentially modifiable lifestyle factors in cancer survivors: A narrative review on currently available methodologies and innovations for large-scale surveillance.

Impact of a web-based prostate cancer treatment decision aid on patient-reported decision process parameters: results from the Prostate Cancer Patient Centered Care trial.

Health-related quality of life among cancer patients in their last year of life: results from the PROFILES registry.

Reference data of the EORTC QLQ-C30 questionnaire: five consecutive annual assessments of approximately 2000 representative Dutch men and women.

Incidence of cardiovascular disease up to 13 year after cancer diagnosis: A matched cohort study among 32 757 cancer survivors.

Patient characteristics and treatment considerations in pancreatic cancer: a population based study in the Netherlands.

Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments.

Association between information provision and supportive care needs among ovarian cancer survivors: A cross-sectional study from the PROFILES registry.

More frequent use of health care services among distressed compared with nondistressed survivors of lymphoma and chronic lymphocytic leukemia: Results from the population-based PROFILES registry.

Understanding the quality of life (QOL) issues in survivors of cancer: towards the development of an EORTC QOL cancer survivorship questionnaire.

Course of chemotherapy-induced peripheral neuropathy and its impact on health-related quality of life among ovarian cancer patients: A longitudinal study.

Survivorship care plans have a negative impact on long-term quality of life and anxiety through more threatening illness perceptions in gynecological cancer patients: the ROGY care trial.

ENdometrial cancer SURvivors' follow-up carE (ENSURE): Less is more? Evaluating patient satisfaction and cost-effectiveness of a reduced follow-up schedule: study protocol of a randomized controlled trial.

Analysis of Content Shared in Online Cancer Communities: Systematic Review.

Leukocyte telomere length and personality: associations with the Big Five and Type D personality traits.

The impact of prostate cancer diagnosis and treatment decision-making on health-related quality of life before treatment onset.

Recurrent Cancer Is Associated With Dissatisfaction With Care-A Longitudinal Analysis Among Ovarian and Endometrial Cancer Patients.

Development and Validation of the Basal and Squamous Cell Carcinoma Quality of Life (BaSQoL) Questionnaire.

International development of four EORTC disease-specific quality of life questionnaires for patients with Hodgkin lymphoma, high- and low-grade non-Hodgkin lymphoma and chronic lymphocytic leukaemia.

Nationwide comprehensive gastro-intestinal cancer cohorts: the 3P initiative.

The impact of the survivorship care plan on health care use: 2-year follow-up results of the ROGY care trial.

Changes in glucose-lowering drug use before and after cancer diagnosis in patients with diabetes.

Identifying the subtypes of cancer-related fatigue: results from the population-based PROFILES registry.

Evaluation of the psychometric properties of the EORTC chemotherapy-induced peripheral neuropathy questionnaire (QLQ-CIPN20).

Pharmaceutically treated anxiety but not depression prior to cancer diagnosis predicts the onset of cardiovascular disease among breast cancer survivors.

The Impact of Body Mass Index and Waist Circumference on Health-related Quality of Life Among Colorectal Cancer Survivors: Results from the PROFILES Registry.

Histological diagnosis of basal cell carcinoma is not associated with life expectancy in elderly Dutch people: a population-based cohort study.

The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review.

The Course of Neuropathic Symptoms in Relation to Adjuvant Chemotherapy Among Elderly Patients With Stage III Colon Cancer: A Longitudinal Study.

"Am I normal?" The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers.

Efficacy, cost-utility and reach of an eHealth self-management application 'Oncokompas' that helps cancer survivors to obtain optimal supportive care: study protocol for a randomised controlled trial.

International evaluation of the psychometrics of health-related quality of life questionnaires for use among long-term survivors of testicular and prostate cancer.

Effects of Survivorship Care Plans on patient reported outcomes in ovarian cancer during 2-year follow-up - The ROGY care trial.

Illness perceptions and changes in lifestyle following a gynecological cancer diagnosis: A longitudinal analysis.

Lymphoma InterVEntion (LIVE) - patient-reported outcome feedback and a web-based self-management intervention for patients with lymphoma: study protocol for a randomised controlled trial.

The magnitude of neurotoxicity in patients with multiple myeloma and the impact of dose modifications: results from the population-based PROFILES registry.

Adolescent and young adult (AYA) lymphoma survivors report lower health-related quality of life compared to a normative population: results from the PROFILES registry.

Cancer survivors' preference for follow-up care providers: a cross-sectional study from the population-based PROFILES-registry.

Factors influencing implementation of a survivorship care plan-a quantitative process evaluation of the ROGY Care trial.

The impact of cancer survivorship care plans on patient and health care provider outcomes: a current perspective.

How do patients choose between active surveillance, radical prostatectomy, and radiotherapy? The effect of a preference-sensitive decision aid on treatment decision making for localized prostate cancer.

Reference data of the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-CIPN20 Questionnaire in the general Dutch population.

Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials-Letter.

Cardiovascular co-morbidity in cancer patients: the role of psychological distress.

Prostate cancer survivors with a passive role preference in treatment decision-making are less satisfied with information received: Results from the PROFILES registry.

The use of EORTC measures in daily clinical practice-A synopsis of a newly developed manual.

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