Publications

International journal of gynecological cancer : official journal of the International Gynecological Cancer Society

Recurrent Cancer Is Associated With Dissatisfaction With Care-A Longitudinal Analysis Among Ovarian and Endometrial Cancer Patients.

01-03-2018

Acta dermato-venereologica

Development and Validation of the Basal and Squamous Cell Carcinoma Quality of Life (BaSQoL) Questionnaire.

07-02-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

International development of four EORTC disease-specific quality of life questionnaires for patients with Hodgkin lymphoma, high- and low-grade non-Hodgkin lymphoma and chronic lymphocytic leukaemia.

01-02-2018

Acta oncologica (Stockholm, Sweden)

Nationwide comprehensive gastro-intestinal cancer cohorts: the 3P initiative.

01-02-2018

Journal of cancer survivorship : research and practice

The impact of the survivorship care plan on health care use: 2-year follow-up results of the ROGY care trial.

01-02-2018

Diabetes & metabolism

Changes in glucose-lowering drug use before and after cancer diagnosis in patients with diabetes.

01-02-2018

Journal of cancer survivorship : research and practice

Identifying the subtypes of cancer-related fatigue: results from the population-based PROFILES registry.

01-02-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Evaluation of the psychometric properties of the EORTC chemotherapy-induced peripheral neuropathy questionnaire (QLQ-CIPN20).

01-11-2017

Breast cancer research and treatment

Pharmaceutically treated anxiety but not depression prior to cancer diagnosis predicts the onset of cardiovascular disease among breast cancer survivors.

01-11-2017

Nutrition and cancer

The Impact of Body Mass Index and Waist Circumference on Health-related Quality of Life Among Colorectal Cancer Survivors: Results from the PROFILES Registry.

17-10-2017

The British journal of dermatology

Histological diagnosis of basal cell carcinoma is not associated with life expectancy in elderly Dutch people: a population-based cohort study.

01-10-2017

JMIR cancer

The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review.

28-09-2017

Clinical colorectal cancer

The Course of Neuropathic Symptoms in Relation to Adjuvant Chemotherapy Among Elderly Patients With Stage III Colon Cancer: A Longitudinal Study.

01-09-2017

European journal of cancer prevention : the official journal of the European Cancer Prevention Organisation (ECP)

A population-based approach to compare patient-reported outcomes of long-term Hodgkin's lymphoma survivors according to trial participation: a joint study from the Patient-Reported Outcomes Following Initial Treatment and Long-term Evaluation of Survivorship registry and European Organisation for Research and Treatment of Cancer.

01-09-2017

Journal of medical Internet research

"Am I normal?" The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers.

15-08-2017

Trials

Efficacy, cost-utility and reach of an eHealth self-management application 'Oncokompas' that helps cancer survivors to obtain optimal supportive care: study protocol for a randomised controlled trial.

22-05-2017

Health and quality of life outcomes

International evaluation of the psychometrics of health-related quality of life questionnaires for use among long-term survivors of testicular and prostate cancer.

11-05-2017

Gynecologic oncology

Effects of Survivorship Care Plans on patient reported outcomes in ovarian cancer during 2-year follow-up - The ROGY care trial.

01-05-2017

Gynecologic oncology

Illness perceptions and changes in lifestyle following a gynecological cancer diagnosis: A longitudinal analysis.

01-05-2017

Trials

Lymphoma InterVEntion (LIVE) - patient-reported outcome feedback and a web-based self-management intervention for patients with lymphoma: study protocol for a randomised controlled trial.

28-04-2017

Annals of hematology

The magnitude of neurotoxicity in patients with multiple myeloma and the impact of dose modifications: results from the population-based PROFILES registry.

01-04-2017

Acta oncologica (Stockholm, Sweden)

Adolescent and young adult (AYA) lymphoma survivors report lower health-related quality of life compared to a normative population: results from the PROFILES registry.

01-02-2017

Acta oncologica (Stockholm, Sweden)

Cancer survivors' preference for follow-up care providers: a cross-sectional study from the population-based PROFILES-registry.

01-02-2017

Journal of cancer survivorship : research and practice

Factors influencing implementation of a survivorship care plan-a quantitative process evaluation of the ROGY Care trial.

01-02-2017

Acta oncologica (Stockholm, Sweden)

The impact of cancer survivorship care plans on patient and health care provider outcomes: a current perspective.

01-02-2017

Urologic oncology

How do patients choose between active surveillance, radical prostatectomy, and radiotherapy? The effect of a preference-sensitive decision aid on treatment decision making for localized prostate cancer.

01-02-2017

European journal of cancer (Oxford, England : 1990)

Reference data of the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-CIPN20 Questionnaire in the general Dutch population.

01-12-2016

Clinical cancer research : an official journal of the American Association for Cancer Research

Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials-Letter.

15-11-2016

Cardio-oncology (London, England)

Cardiovascular co-morbidity in cancer patients: the role of psychological distress.

15-11-2016

Urologic oncology

Prostate cancer survivors with a passive role preference in treatment decision-making are less satisfied with information received: Results from the PROFILES registry.

01-11-2016

European journal of cancer (Oxford, England : 1990)

The use of EORTC measures in daily clinical practice-A synopsis of a newly developed manual.

01-11-2016

Acta diabetologica

Impact of cancer diagnosis and treatment on glycaemic control among individuals with colorectal cancer using glucose-lowering drugs.

01-10-2016

Journal of cancer survivorship : research and practice

Illness perceptions are associated with mortality among 1552 colorectal cancer survivors: a study from the population-based PROFILES registry.

01-10-2016

Journal of medical Internet research

Paper-Based Survivorship Care Plans May be Less Helpful for Cancer Patients Who Search for Disease-Related Information on the Internet: Results of the Registrationsystem Oncological Gynecology (ROGY) Care Randomized Trial.

08-07-2016

Psycho-oncology

Does fear of cancer recurrence differ between cancer types? A study from the population-based PROFILES registry.

01-07-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Utilization of supportive care by survivors of colorectal cancer: results from the PROFILES registry.

01-07-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Prospectively measured lifestyle factors and BMI explain differences in health-related quality of life between colorectal cancer patients with and without comorbid diabetes.

01-06-2016

Psycho-oncology

Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients.

01-06-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Chemotherapy-induced neuropathy in multiple myeloma: influence on quality of life and development of a questionnaire to compose common toxicity criteria grading for use in daily clinical practice.

01-06-2016

Journal of cancer survivorship : research and practice

The impact of having both cancer and diabetes on patient-reported outcomes: a systematic review and directions for future research.

01-04-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Correlates of physical activity among colorectal cancer survivors: results from the longitudinal population-based profiles registry.

01-02-2016

British journal of cancer

Employment and social benefits up to 10 years after breast cancer diagnosis: a population-based study.

12-01-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

The course of fatigue and its correlates in colorectal cancer survivors: a prospective cohort study of the PROFILES registry.

01-11-2015

Journal of clinical oncology : official journal of the American Society of Clinical Oncology

Impact of an Automatically Generated Cancer Survivorship Care Plan on Patient-Reported Outcomes in Routine Clinical Practice: Longitudinal Outcomes of a Pragmatic, Cluster Randomized Trial.

01-11-2015

Journal of cancer survivorship : research and practice

The impact of diabetes on neuropathic symptoms and receipt of chemotherapy among colorectal cancer patients: results from the PROFILES registry.

01-09-2015

Journal of cancer survivorship : research and practice

Health-related quality of life is associated with physical activity levels among colorectal cancer survivors: a longitudinal, 3-year study of the PROFILES registry.

01-09-2015

Cancer

Age-related differences in quality of life among patients with diffuse large B-cell lymphoma.

15-08-2015

British journal of cancer

Are metformin, statin and aspirin use still associated with overall mortality among colorectal cancer patients with diabetes if adjusted for one another?

28-07-2015

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Variation in fatigue among 6011 (long-term) cancer survivors and a normative population: a study from the population-based PROFILES registry.

01-07-2015

European journal of cancer (Oxford, England : 1990)

Treatment-related differences in health related quality of life and disease specific symptoms among colon cancer survivors: results from the population-based PROFILES registry.

01-07-2015