Publications

Health and quality of life outcomes

International evaluation of the psychometrics of health-related quality of life questionnaires for use among long-term survivors of testicular and prostate cancer.

11-05-2017

Gynecologic oncology

Effects of Survivorship Care Plans on patient reported outcomes in ovarian cancer during 2-year follow-up - The ROGY care trial.

01-05-2017

Gynecologic oncology

Illness perceptions and changes in lifestyle following a gynecological cancer diagnosis: A longitudinal analysis.

01-05-2017

Trials

Lymphoma InterVEntion (LIVE) - patient-reported outcome feedback and a web-based self-management intervention for patients with lymphoma: study protocol for a randomised controlled trial.

28-04-2017

Annals of hematology

The magnitude of neurotoxicity in patients with multiple myeloma and the impact of dose modifications: results from the population-based PROFILES registry.

01-04-2017

Acta oncologica (Stockholm, Sweden)

Adolescent and young adult (AYA) lymphoma survivors report lower health-related quality of life compared to a normative population: results from the PROFILES registry.

01-02-2017

Acta oncologica (Stockholm, Sweden)

Cancer survivors' preference for follow-up care providers: a cross-sectional study from the population-based PROFILES-registry.

01-02-2017

Journal of cancer survivorship : research and practice

Factors influencing implementation of a survivorship care plan-a quantitative process evaluation of the ROGY Care trial.

01-02-2017

Acta oncologica (Stockholm, Sweden)

The impact of cancer survivorship care plans on patient and health care provider outcomes: a current perspective.

01-02-2017

Urologic oncology

How do patients choose between active surveillance, radical prostatectomy, and radiotherapy? The effect of a preference-sensitive decision aid on treatment decision making for localized prostate cancer.

01-02-2017

European journal of cancer (Oxford, England : 1990)

Reference data of the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-CIPN20 Questionnaire in the general Dutch population.

01-12-2016

Clinical cancer research : an official journal of the American Association for Cancer Research

Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials-Letter.

15-11-2016

Cardio-oncology (London, England)

Cardiovascular co-morbidity in cancer patients: the role of psychological distress.

15-11-2016

Urologic oncology

Prostate cancer survivors with a passive role preference in treatment decision-making are less satisfied with information received: Results from the PROFILES registry.

01-11-2016

European journal of cancer (Oxford, England : 1990)

The use of EORTC measures in daily clinical practice-A synopsis of a newly developed manual.

01-11-2016

Acta diabetologica

Impact of cancer diagnosis and treatment on glycaemic control among individuals with colorectal cancer using glucose-lowering drugs.

01-10-2016

Journal of cancer survivorship : research and practice

Illness perceptions are associated with mortality among 1552 colorectal cancer survivors: a study from the population-based PROFILES registry.

01-10-2016

Journal of medical Internet research

Paper-Based Survivorship Care Plans May be Less Helpful for Cancer Patients Who Search for Disease-Related Information on the Internet: Results of the Registrationsystem Oncological Gynecology (ROGY) Care Randomized Trial.

08-07-2016

Psycho-oncology

Does fear of cancer recurrence differ between cancer types? A study from the population-based PROFILES registry.

01-07-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Utilization of supportive care by survivors of colorectal cancer: results from the PROFILES registry.

01-07-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Prospectively measured lifestyle factors and BMI explain differences in health-related quality of life between colorectal cancer patients with and without comorbid diabetes.

01-06-2016

Psycho-oncology

Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients.

01-06-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Chemotherapy-induced neuropathy in multiple myeloma: influence on quality of life and development of a questionnaire to compose common toxicity criteria grading for use in daily clinical practice.

01-06-2016

Journal of cancer survivorship : research and practice

The impact of having both cancer and diabetes on patient-reported outcomes: a systematic review and directions for future research.

01-04-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Correlates of physical activity among colorectal cancer survivors: results from the longitudinal population-based profiles registry.

01-02-2016

British journal of cancer

Employment and social benefits up to 10 years after breast cancer diagnosis: a population-based study.

12-01-2016

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

The course of fatigue and its correlates in colorectal cancer survivors: a prospective cohort study of the PROFILES registry.

01-11-2015

Journal of clinical oncology : official journal of the American Society of Clinical Oncology

Impact of an Automatically Generated Cancer Survivorship Care Plan on Patient-Reported Outcomes in Routine Clinical Practice: Longitudinal Outcomes of a Pragmatic, Cluster Randomized Trial.

01-11-2015

Journal of cancer survivorship : research and practice

The impact of diabetes on neuropathic symptoms and receipt of chemotherapy among colorectal cancer patients: results from the PROFILES registry.

01-09-2015

Journal of cancer survivorship : research and practice

Health-related quality of life is associated with physical activity levels among colorectal cancer survivors: a longitudinal, 3-year study of the PROFILES registry.

01-09-2015

Cancer

Age-related differences in quality of life among patients with diffuse large B-cell lymphoma.

15-08-2015

British journal of cancer

Are metformin, statin and aspirin use still associated with overall mortality among colorectal cancer patients with diabetes if adjusted for one another?

28-07-2015

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Variation in fatigue among 6011 (long-term) cancer survivors and a normative population: a study from the population-based PROFILES registry.

01-07-2015

European journal of cancer (Oxford, England : 1990)

Treatment-related differences in health related quality of life and disease specific symptoms among colon cancer survivors: results from the population-based PROFILES registry.

01-07-2015

The British journal of nutrition

Dietary changes and dietary supplement use, and underlying motives for these habits reported by colorectal cancer survivors of the Patient Reported Outcomes Following Initial Treatment and Long-Term Evaluation of Survivorship (PROFILES) registry.

01-07-2015

BMC cancer

PIpelle Prospective ENDOmetrial carcinoma (PIPENDO) study, pre-operative recognition of high risk endometrial carcinoma: a multicentre prospective cohort study.

30-06-2015

Diabetologia

Impact of cancer on use of glucose-lowering drug treatment in individuals with diabetes: potential mechanisms. Reply to Pouwer F [letter].

01-06-2015

The Lancet. Oncology

Controversies in defining cancer survivorship.

01-06-2015

Trials

Impact of a web-based treatment decision aid for early-stage prostate cancer on shared decision-making and health outcomes: study protocol for a randomized controlled trial.

27-05-2015

Journal of medical Internet research

Response rates for patient-reported outcomes using web-based versus paper questionnaires: comparison of two invitational methods in older colorectal cancer patients.

07-05-2015

Diabetologia

Impact of cancer on adherence to glucose-lowering drug treatment in individuals with diabetes.

01-05-2015

Acta oncologica (Stockholm, Sweden)

High levels of physical activity are associated with lower levels of fatigue among lymphoma patients: Results from the longitudinal PROFILES registry.

01-05-2015

Breast cancer research and treatment

The association between glucose-lowering drug use and mortality among breast cancer patients with type 2 diabetes.

01-04-2015

Psycho-oncology

Low subjective health literacy is associated with adverse health behaviors and worse health-related quality of life among colorectal cancer survivors: results from the profiles registry.

01-04-2015

Acta oncologica (Stockholm, Sweden)

Peripheral neuropathy in colorectal cancer survivors: the influence of oxaliplatin administration. Results from the population-based PROFILES registry.

01-04-2015

Annals of hematology

Elderly multiple myeloma patients experience less deterioration in health-related quality of life than younger patients compared to a normative population: a study from the population-based PROFILES registry.

01-04-2015

Melanoma research

Cross-cultural development of a quality-of-life measure for patients with melanoma: phase 3 testing of an EORTC Melanoma Module.

01-02-2015

Annals of hematology

Impact of active surveillance, chlorambucil, and other therapy on health-related quality of life in patients with CLL/SLL in the Netherlands.

01-01-2015

International journal of gynecological cancer : official journal of the International Gynecological Cancer Society

Lymphovascular space invasion and the treatment of stage I endometrioid endometrial cancer.

01-01-2015

Journal of cancer survivorship : research and practice

The course of anxiety and depression for patients with Hodgkin's lymphoma or diffuse large B cell lymphoma: a longitudinal study of the PROFILES registry.

01-12-2014