Publications

Breast (Edinburgh, Scotland)

Seizing the moment: The time for harnessing electronic patient-reported outcome measures for enhanced and sustainable metastatic breast cancer care is now.

01-04-2024

Journal of cancer survivorship : research and practice

Correction to: Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire.

01-04-2024

European journal of cancer (Oxford, England : 1990)

Real-world health-related quality of life outcomes for patients with resected stage III/IV melanoma treated with adjuvant anti-PD1 therapy.

01-03-2024

Cancer

Trajectories of health-related quality of life and symptom burden in patients with advanced cancer towards the end of life: Longitudinal results from the eQuiPe study.

15-02-2024

Journal of cancer survivorship : research and practice

Cancer worry is associated with increased use of supportive health care-results from the multinational InCHARGE study.

01-02-2024

International journal of epidemiology

Cohort Profile: The Danish SEQUEL cohort.

01-02-2024

Annals of behavioral medicine : a publication of the Society of Behavioral Medicine

Using the Behavior Change Wheel to Identify and Understand Key Facilitators and Barriers for Lifestyle Care for Postmenopausal Breast Cancer Survivors: A Delphi-Study.

01-01-2024

Breast disease

Course of objectively measured physical activity and sleep in postmenopausal breast cancer survivors during the COVID-19 pandemic: A 1-year follow-up.

25-12-2023

Nederlands tijdschrift voor geneeskunde

[How long are medical oncology patients in The Netherlands willing to travel for their cancer care?].

12-12-2023

Journal of the National Cancer Institute

Quality of life after patient-initiated vs physician-initiated response to symptom monitoring: the SYMPRO-Lung trial.

06-12-2023

Seminars in oncology nursing

Patient-Reported Outcome Measures to Improve the Care Continuum for Patients With Metastatic Breast Cancer: Opportunities and Implications for Nursing Practice.

01-12-2023

Psycho-oncology

Trajectories of emotional functioning and experienced care of relatives in the last year of life of patients with advanced cancer: A longitudinal analysis of the eQuiPe study.

01-12-2023

Nature medicine

Association between pretreatment emotional distress and neoadjuvant immune checkpoint blockade response in melanoma.

01-12-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Potentially inappropriate end-of-life care and its association with relatives' well-being: a systematic review.

30-11-2023

Journal of cancer survivorship : research and practice

Socioeconomic differences in health-related quality of life among cancer survivors and comparison with a cancer-free population: a PROFILES study.

29-11-2023

Blood advances

International validation of a health-related quality-of-life questionnaire for Hodgkin lymphoma: the EORTC QLQ-HL27.

28-11-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Health-related quality of life after stereotactic radiosurgery in patients with brain metastases.

27-11-2023

Urologic oncology

Patient-reported outcome measures compared to clinician reported outcomes regarding incontinence and erectile dysfunction in localized prostate carcinoma after robot assisted radical prostatectomy: Impact on management.

01-11-2023

JMIR research protocols

An eHealth App (CAPABLE) Providing Symptom Monitoring, Well-Being Interventions, and Educational Material for Patients With Melanoma Treated With Immune Checkpoint Inhibitors: Protocol for an Exploratory Intervention Trial.

11-10-2023

Cancer medicine

Social inequality in cancer survivorship: Educational differences in health-related quality of life among 27,857 cancer survivors in Denmark.

01-10-2023

Journal of cancer survivorship : research and practice

The course of self-perceived cognitive functioning among patients with lymphoma and the co-occurrence with fatigue and psychological distress.

27-09-2023

Journal of patient-reported outcomes

Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue.

13-09-2023

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Health-state utilities in long-term advanced melanoma survivors comparable with the general population.

01-09-2023

Cancer

International validation of two EORTC questionnaires for assessment of health-related quality of life for patients with high-grade non-Hodgkin lymphoma (QLQ-NHL-HG29) and low-grade non-Hodgkin lymphoma (QLQ-NHL-LG20).

01-09-2023

Journal of cancer survivorship : research and practice

"One more chance to survive": the experiences of patients with advanced melanoma and their partners with tumor-infiltrating lymphocyte therapy-a qualitative study and recommendations for future care.

22-08-2023

Journal of medical Internet research

Adherence to Patient-Reported Symptom Monitoring and Subsequent Clinical Interventions for Patients With Multiple Myeloma in Outpatient Care: Longitudinal Observational Study.

22-08-2023

Journal of cancer survivorship : research and practice

Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire.

01-08-2023

Journal of patient-reported outcomes

Monitoring aerobic capacity in cancer survivors using self-reported questionnaires: criterion validity and responsiveness.

19-07-2023

Thyroid research

Determinants and mediating mechanisms of quality of life and disease-specific symptoms among thyroid cancer patients: the design of the WaTCh study.

10-07-2023

Journal of cancer survivorship : research and practice

Association between peripheral neuropathy and sleep quality among colorectal cancer patients from diagnosis until 2-year follow-up: results from the PROFILES registry.

01-06-2023

Breast cancer research and treatment

International development of a patient-centered core outcome set for assessing health-related quality of life in metastatic breast cancer patients.

01-04-2023

Journal of clinical nursing

Self-performed Five Times Sit-To-Stand test at home as (pre-)screening tool for frailty in cancer survivors: Reliability and agreement assessment.

01-04-2023

Critical reviews in oncology/hematology

Common toxicities associated with immune checkpoint inhibitors and targeted therapy in the treatment of melanoma: A systematic scoping review.

01-03-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Are gastrointestinal problems, nutritional care, and nutritional care needs associated with quality of life in patients with advanced cancer? Results of the observational eQuiPe study.

27-02-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Perception of prognosis and health-related quality of life in patients with advanced cancer: results of a multicentre observational study (eQuiPe).

13-02-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Quality of early prostate cancer follow-up care from the patients' perspective.

01-12-2022

Journal of neuro-oncology

Neurocognitive functioning after Gamma Knife and LINAC stereotactic radiosurgery in patients with brain metastases.

01-12-2022

Annals of oncology : official journal of the European Society for Medical Oncology

ESMO Expert Consensus Statements on Cancer Survivorship: promoting high-quality survivorship care and research in Europe.

01-11-2022

The Journal of urology

Financial Toxicity After Robot-Assisted Radical Prostatectomy and Its Relation with Oncologic, Functional Outcomes.

01-11-2022

Lung cancer (Amsterdam, Netherlands)

Development of an updated, standardized, patient-centered outcome set for lung cancer.

01-11-2022

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Mindfulness is associated with severity of peripheral neuropathy and related patient-reported outcomes among colorectal cancer patients.

01-11-2022

BMC medical informatics and decision making

Need for numbers: assessing cancer survivors' needs for personalized and generic statistical information.

05-10-2022

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Varying severities of symptoms underline the relevance of personalized follow-up care in breast cancer survivors: latent class cluster analyses in a cross-sectional cohort.

01-10-2022

Psycho-oncology

Emotional functioning during bereavement after the death of patients with advanced cancer and associated factors.

01-10-2022

Psycho-oncology

Dyadic coping and its association with emotional functioning in couples confronted with advanced cancer: Results of the multicenter observational eQuiPe study.

01-09-2022

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Evaluation of an individual feedback report on patient-reported outcomes in the Prospective Dutch ColoRectal Cancer cohort.

01-09-2022

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Exploring supportive care and information needs through a proposed eHealth application among melanoma patients undergoing systemic therapy: a qualitative study.

01-09-2022

Patient education and counseling

Communication, perception, and use of personalized side-effect risks in prostate cancer treatment-decision making: An observational and interview study.

01-08-2022

Current oncology (Toronto, Ont.)

Recruiting Adolescent and Young Adult Cancer Survivors for Patient-Reported Outcome Research: Experiences and Sample Characteristics of the SURVAYA Study.

29-07-2022

Journal of palliative care

Shared Perspectives of Patients With Advanced Cancer and Their Informal Caregivers on Essential Aspects of Health Care: A Qualitative Study.

01-07-2022