Publications

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Differences in travel burden between patients with self-reported curable and incurable cancer: results from a Dutch flash mob study.

23-06-2025

Journal of patient-reported outcomes

Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains.

19-06-2025

Annals of oncology : official journal of the European Society for Medical Oncology

Health-Related Quality of life of patients with metastatic melanoma treated with tumor-infiltrating lymphocytes compared to ipilimumab in a randomized phase 3 trial.

18-06-2025

Journal of cancer survivorship : research and practice

Prevalence of and factors associated with clinically important levels of fatigue, pain, and insomnia in survivors of cancer: a population-based cross-sectional study.

14-06-2025

JCO oncology practice

General Practitioners' Experiences With Implementing Colon or Prostate Cancer Survivorship Care in Primary Care: A Cross-Sectional Survey Nested Within Two Randomized-Controlled Trials.

01-06-2025

European radiology

Muscle atrophy and organ enlargement associated with quality of life during systemic therapy for melanoma: findings from an AI-based body composition analysis.

01-06-2025

Journal of cancer survivorship : research and practice

Return to work after neoadjuvant versus adjuvant immunotherapy in stage III melanoma patients.

26-05-2025

European journal of cancer (Oxford, England : 1990)

Flexibility in patient-reported outcome and health-related quality of life measurement: The EORTC Quality of Life Group measurement strategy.

02-05-2025

Nature reviews. Disease primers

Cutaneous melanoma.

03-04-2025

Journal of cancer survivorship : research and practice

Socioeconomic differences in health-related quality of life among cancer survivors and comparison with a cancer-free population: a PROFILES study.

01-04-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Screening for cognitive impairment in routine clinical oncology practice: a pilot study using patient-reported outcome measures and online cognitive testing in melanoma and breast cancer patients.

12-03-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Socioeconomic disparities in health-related quality of life and healthcare use in the last year of life of patients with advanced cancer: longitudinal results from the eQuiPe study.

11-03-2025

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Exploring the role of health-related quality of life measures in predictive modelling for oncology: a systematic review.

01-02-2025

Palliative medicine

Changes in perception of prognosis in the last year of life of patients with advanced cancer and its associated factors: Longitudinal results of the eQuiPe study.

01-02-2025

Journal of cancer survivorship : research and practice

"One more chance to survive": the experiences of patients with advanced melanoma and their partners with tumor-infiltrating lymphocyte therapy-a qualitative study and recommendations for future care.

01-02-2025

Journal of cancer survivorship : research and practice

The course of self-perceived cognitive functioning among patients with lymphoma and the co-occurrence with fatigue and psychological distress.

01-02-2025

JMIR cancer

Exploring the Impact of the Multimodal CAPABLE eHealth Intervention on Health-Related Quality of Life in Patients With Melanoma Undergoing Immune-Checkpoint Inhibition: Prospective Pilot Study.

30-01-2025

Nederlands tijdschrift voor geneeskunde

[Trajectories of health-related quality of life and symptom burden in patients with advanced cancer towards the end of life: longitudinal results from the eQuiPe study].

16-01-2025

Gynecologic oncology

Less is more: The benefits of reduced follow-up in gynecologic cancers.

01-01-2025

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.

01-01-2025

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Development of a prediction model for clinically-relevant fatigue: a multi-cancer approach.

01-01-2025

The Lancet. Oncology

Capturing the true effect of anti-PD-1 therapy on patients' health-related quality of life.

01-12-2024

Annals of hematology

Impact of comorbidity on health-related quality of life in newly diagnosed patients with lymphoma or multiple myeloma: results from the PROFILES-registry.

01-12-2024

Journal of cancer survivorship : research and practice

Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.

18-10-2024

Journal of cancer survivorship : research and practice

Patient-reported outcomes in cancer survivorship: insights from two decades of population-based PROFILES registry research.

08-10-2024

European journal of oncology nursing : the official journal of European Oncology Nursing Society

Self-perceived cognitive impairment in the first year after breast cancer and the identification of at-risk patients.

01-10-2024

Journal of cancer survivorship : research and practice

"Numbers call for action, personalized narratives provide support and recognition": a qualitative assessment of cancer patients' perspectives on patient-reported outcome measures (PROMs) feedback with narratives.

25-09-2024

Journal of cancer survivorship : research and practice

Health care utilization up to 11 years after diagnosis among patients with a hematologic malignancy and its association with socioeconomic position.

17-09-2024

Gynecologic oncology

Effect of reduced follow-up care on patient satisfaction with care among patients with endometrial cancer: The ENSURE randomized controlled trial.

01-09-2024

European journal of cancer (Oxford, England : 1990)

Understanding quality of life issues in patients with advanced melanoma: Phase 1 and 2 in the development of the EORTC advanced melanoma module.

01-08-2024

JAMA network open

Patient- vs Physician-Initiated Response to Symptom Monitoring and Health-Related Quality of Life: The SYMPRO-Lung Cluster Randomized Trial.

01-08-2024

Journal of the National Comprehensive Cancer Network : JNCCN

Chemotherapy-Induced Peripheral Neuropathy in Patients With Gastroesophageal Cancer.

08-07-2024

Breast (Edinburgh, Scotland)

Seizing the moment: The time for harnessing electronic patient-reported outcome measures for enhanced and sustainable metastatic breast cancer care is now.

01-04-2024

Journal of cancer survivorship : research and practice

Correction to: Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire.

01-04-2024

European journal of cancer (Oxford, England : 1990)

Real-world health-related quality of life outcomes for patients with resected stage III/IV melanoma treated with adjuvant anti-PD1 therapy.

01-03-2024

Cancer

Trajectories of health-related quality of life and symptom burden in patients with advanced cancer towards the end of life: Longitudinal results from the eQuiPe study.

15-02-2024

Journal of cancer survivorship : research and practice

Cancer worry is associated with increased use of supportive health care-results from the multinational InCHARGE study.

01-02-2024

International journal of epidemiology

Cohort Profile: The Danish SEQUEL cohort.

01-02-2024

Annals of behavioral medicine : a publication of the Society of Behavioral Medicine

Using the Behavior Change Wheel to Identify and Understand Key Facilitators and Barriers for Lifestyle Care for Postmenopausal Breast Cancer Survivors: A Delphi-Study.

01-01-2024

Breast disease

Course of objectively measured physical activity and sleep in postmenopausal breast cancer survivors during the COVID-19 pandemic: A 1-year follow-up.

25-12-2023

Nederlands tijdschrift voor geneeskunde

[How long are medical oncology patients in The Netherlands willing to travel for their cancer care?].

12-12-2023

Journal of the National Cancer Institute

Quality of life after patient-initiated vs physician-initiated response to symptom monitoring: the SYMPRO-Lung trial.

06-12-2023

Seminars in oncology nursing

Patient-Reported Outcome Measures to Improve the Care Continuum for Patients With Metastatic Breast Cancer: Opportunities and Implications for Nursing Practice.

01-12-2023

Psycho-oncology

Trajectories of emotional functioning and experienced care of relatives in the last year of life of patients with advanced cancer: A longitudinal analysis of the eQuiPe study.

01-12-2023

Nature medicine

Association between pretreatment emotional distress and neoadjuvant immune checkpoint blockade response in melanoma.

01-12-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Potentially inappropriate end-of-life care and its association with relatives' well-being: a systematic review.

30-11-2023

Blood advances

International validation of a health-related quality-of-life questionnaire for Hodgkin lymphoma: the EORTC QLQ-HL27.

28-11-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Health-related quality of life after stereotactic radiosurgery in patients with brain metastases.

27-11-2023

Urologic oncology

Patient-reported outcome measures compared to clinician reported outcomes regarding incontinence and erectile dysfunction in localized prostate carcinoma after robot assisted radical prostatectomy: Impact on management.

01-11-2023

JMIR research protocols

An eHealth App (CAPABLE) Providing Symptom Monitoring, Well-Being Interventions, and Educational Material for Patients With Melanoma Treated With Immune Checkpoint Inhibitors: Protocol for an Exploratory Intervention Trial.

11-10-2023

Differences in travel burden between patients with self-reported curable and incurable cancer: results from a Dutch flash mob study.

Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains.

Health-Related Quality of life of patients with metastatic melanoma treated with tumor-infiltrating lymphocytes compared to ipilimumab in a randomized phase 3 trial.

Prevalence of and factors associated with clinically important levels of fatigue, pain, and insomnia in survivors of cancer: a population-based cross-sectional study.

General Practitioners' Experiences With Implementing Colon or Prostate Cancer Survivorship Care in Primary Care: A Cross-Sectional Survey Nested Within Two Randomized-Controlled Trials.

Muscle atrophy and organ enlargement associated with quality of life during systemic therapy for melanoma: findings from an AI-based body composition analysis.

Return to work after neoadjuvant versus adjuvant immunotherapy in stage III melanoma patients.

Flexibility in patient-reported outcome and health-related quality of life measurement: The EORTC Quality of Life Group measurement strategy.

Cutaneous melanoma.

Socioeconomic differences in health-related quality of life among cancer survivors and comparison with a cancer-free population: a PROFILES study.

Screening for cognitive impairment in routine clinical oncology practice: a pilot study using patient-reported outcome measures and online cognitive testing in melanoma and breast cancer patients.

Socioeconomic disparities in health-related quality of life and healthcare use in the last year of life of patients with advanced cancer: longitudinal results from the eQuiPe study.

Exploring the role of health-related quality of life measures in predictive modelling for oncology: a systematic review.

Changes in perception of prognosis in the last year of life of patients with advanced cancer and its associated factors: Longitudinal results of the eQuiPe study.

"One more chance to survive": the experiences of patients with advanced melanoma and their partners with tumor-infiltrating lymphocyte therapy-a qualitative study and recommendations for future care.

The course of self-perceived cognitive functioning among patients with lymphoma and the co-occurrence with fatigue and psychological distress.

Exploring the Impact of the Multimodal CAPABLE eHealth Intervention on Health-Related Quality of Life in Patients With Melanoma Undergoing Immune-Checkpoint Inhibition: Prospective Pilot Study.

[Trajectories of health-related quality of life and symptom burden in patients with advanced cancer towards the end of life: longitudinal results from the eQuiPe study].

Less is more: The benefits of reduced follow-up in gynecologic cancers.

Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.

Development of a prediction model for clinically-relevant fatigue: a multi-cancer approach.

Capturing the true effect of anti-PD-1 therapy on patients' health-related quality of life.

Impact of comorbidity on health-related quality of life in newly diagnosed patients with lymphoma or multiple myeloma: results from the PROFILES-registry.

Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.

Patient-reported outcomes in cancer survivorship: insights from two decades of population-based PROFILES registry research.

Self-perceived cognitive impairment in the first year after breast cancer and the identification of at-risk patients.

"Numbers call for action, personalized narratives provide support and recognition": a qualitative assessment of cancer patients' perspectives on patient-reported outcome measures (PROMs) feedback with narratives.

Health care utilization up to 11 years after diagnosis among patients with a hematologic malignancy and its association with socioeconomic position.

Effect of reduced follow-up care on patient satisfaction with care among patients with endometrial cancer: The ENSURE randomized controlled trial.

Understanding quality of life issues in patients with advanced melanoma: Phase 1 and 2 in the development of the EORTC advanced melanoma module.

Patient- vs Physician-Initiated Response to Symptom Monitoring and Health-Related Quality of Life: The SYMPRO-Lung Cluster Randomized Trial.

Chemotherapy-Induced Peripheral Neuropathy in Patients With Gastroesophageal Cancer.

Seizing the moment: The time for harnessing electronic patient-reported outcome measures for enhanced and sustainable metastatic breast cancer care is now.

Correction to: Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire.

Real-world health-related quality of life outcomes for patients with resected stage III/IV melanoma treated with adjuvant anti-PD1 therapy.

Trajectories of health-related quality of life and symptom burden in patients with advanced cancer towards the end of life: Longitudinal results from the eQuiPe study.

Cancer worry is associated with increased use of supportive health care-results from the multinational InCHARGE study.

Cohort Profile: The Danish SEQUEL cohort.

Using the Behavior Change Wheel to Identify and Understand Key Facilitators and Barriers for Lifestyle Care for Postmenopausal Breast Cancer Survivors: A Delphi-Study.

Course of objectively measured physical activity and sleep in postmenopausal breast cancer survivors during the COVID-19 pandemic: A 1-year follow-up.

[How long are medical oncology patients in The Netherlands willing to travel for their cancer care?].

Quality of life after patient-initiated vs physician-initiated response to symptom monitoring: the SYMPRO-Lung trial.

Patient-Reported Outcome Measures to Improve the Care Continuum for Patients With Metastatic Breast Cancer: Opportunities and Implications for Nursing Practice.

Trajectories of emotional functioning and experienced care of relatives in the last year of life of patients with advanced cancer: A longitudinal analysis of the eQuiPe study.

Association between pretreatment emotional distress and neoadjuvant immune checkpoint blockade response in melanoma.

Potentially inappropriate end-of-life care and its association with relatives' well-being: a systematic review.

International validation of a health-related quality-of-life questionnaire for Hodgkin lymphoma: the EORTC QLQ-HL27.

Health-related quality of life after stereotactic radiosurgery in patients with brain metastases.

Patient-reported outcome measures compared to clinician reported outcomes regarding incontinence and erectile dysfunction in localized prostate carcinoma after robot assisted radical prostatectomy: Impact on management.

An eHealth App (CAPABLE) Providing Symptom Monitoring, Well-Being Interventions, and Educational Material for Patients With Melanoma Treated With Immune Checkpoint Inhibitors: Protocol for an Exploratory Intervention Trial.

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