Publications

Cancers

Specialist versus Primary Care Prostate Cancer Follow-Up: A Process Evaluation of a Randomized Controlled Trial.

28-06-2022

Nederlands tijdschrift voor geneeskunde

[Communicating personalised health information].

22-06-2022

Current oncology (Toronto, Ont.)

A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring.

17-06-2022

Journal of the National Cancer Institute

Measuring Clinical, Biological, and Behavioral Variables to Elucidate Trajectories of Patient-Reported Outcomes: The PROFILES Registry.

13-06-2022

British journal of haematology

Persistent symptoms of fatigue, neuropathy and role-functioning impairment among indolent non-Hodgkin lymphoma survivors: A longitudinal PROFILES registry study.

01-06-2022

Nature medicine

Personalized response-directed surgery and adjuvant therapy after neoadjuvant ipilimumab and nivolumab in high-risk stage III melanoma: the PRADO trial.

01-06-2022

British journal of haematology

International validation of the EORTC QLQ-CLL17 questionnaire for assessment of health-related quality of life for patients with chronic lymphocytic leukaemia.

01-05-2022

International journal of general medicine

Estimating VO_2peak in 18-90 Year-Old Adults: Development and Validation of the FitMáx©-Questionnaire.

13-04-2022

Journal of cancer survivorship : research and practice

Self-perceived cognitive functioning and quality of life among cancer survivors: results from the PROFILES registry.

01-04-2022

European journal of cancer (Oxford, England : 1990)

Quality of life and quality of care as experienced by patients with advanced cancer and their relatives: A multicentre observational cohort study (eQuiPe).

01-04-2022

Palliative medicine

Sexual health and closeness in couples coping with advanced cancer: Results of a multicenter observational study (eQuiPe).

01-04-2022

Oncology research and treatment

Sociodemographic, Clinical, Lifestyle, and Psychological Correlates of Peripheral Neuropathy among 2- to 12-Year Colorectal Cancer Survivors.

21-03-2022

JMIR cancer

Comparing Survivors of Cancer in Population-Based Samples With Those in Online Cancer Communities: Cross-sectional Questionnaire Study.

08-03-2022

Journal of patient-reported outcomes

Visualization formats of patient-reported outcome measures in clinical practice: a systematic review about preferences and interpretation accuracy.

03-03-2022

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Assessing measurement invariance in the EORTC QLQ-C30.

01-03-2022

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Oncology team perspectives on distress screening: a multisite study of a well-established use of patient-reported outcomes for clinical assessment.

01-02-2022

Prostate cancer and prostatic diseases

Integrated analysis of pain, health-related quality of life, and analgesic use in patients with metastatic castration-resistant prostate cancer treated with Radium-223.

01-02-2022

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Exploring the relationship among dispositional optimism, health-related quality of life, and CIPN severity among colorectal cancer patients with chronic peripheral neuropathy.

01-01-2022

Cancers

Differences in Internet Use and eHealth Needs of Adolescent and Young Adult Versus Older Cancer Patients; Results from the PROFILES Registry.

16-12-2021

Cancer

Symptom clusters in 1330 survivors of 7 cancer types from the PROFILES registry: A network analysis.

15-12-2021

Journal of medical Internet research

Web-Based Return of Individual Patient-Reported Outcome Results Among Patients With Lymphoma: Randomized Controlled Trial.

14-12-2021

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Self-care, resilience, and caregiver burden in relatives of patients with advanced cancer: results from the eQuiPe study.

01-12-2021

World journal of urology

Differences in treatment choices between prostate cancer patients using a decision aid and patients receiving care as usual: results from a randomized controlled trial.

01-12-2021

BMC family practice

Type of treatment, symptoms and patient satisfaction play an important role in primary care contact during prostate cancer follow-up: results from the population-based PROFILES registry.

04-11-2021

European journal of cancer care

Supportive care needs of patients living with an extremely rare and unpredictable cancer: The Epithelioid Haemangioendothelioma patient experience.

01-11-2021

Gastric cancer : official journal of the International Gastric Cancer Association and the Japanese Gastric Cancer Association

Prognostic value of patient-reported quality of life for survival in oesophagogastric cancer: analysis from the population-based POCOP study.

01-11-2021

JMIR cancer

Exploring Cancer Survivor Needs and Preferences for Communicating Personalized Cancer Statistics From Registry Data: Qualitative Multimethod Study.

25-10-2021

European journal of cancer (Oxford, England : 1990)

Sex-differences in symptoms and functioning in >5000 cancer survivors: Results from the PROFILES registry.

01-10-2021

BMJ open

SYMptom monitoring with Patient-Reported Outcomes using a web application among patients with Lung cancer in the Netherlands (SYMPRO-Lung): study protocol for a stepped-wedge randomised controlled trial.

13-09-2021

Internet interventions

Reasons for not reaching or using web-based self-management applications, and the use and evaluation of Oncokompas among cancer survivors, in the context of a randomised controlled trial.

01-09-2021

Palliative medicine

Bereaved relatives' quality of life before and during the COVID-19 pandemic: Results of the prospective, multicenter, observational eQuiPe study.

01-09-2021

JNCI cancer spectrum

Colorectal Cancer Care and Patients' Perceptions Before and During COVID-19: Implications for Subsequent SARS-CoV-2 Infection Waves.

01-08-2021

Neurourology and urodynamics

Individual risk prediction of urinary incontinence after prostatectomy and impact on treatment choice in patients with localized prostate cancer.

01-08-2021

BMJ open

Lifestyle and Empowerment Techniques in Survivorship of Gynaecologic Oncology (LETSGO study): a study protocol for a multicentre longitudinal interventional study using mobile health technology and biobanking.

12-07-2021

BMC women's health

Towards OPtimal TIming and Method for promoting sUstained adherence to lifestyle and body weight recommendations in postMenopausal breast cancer survivors (the OPTIMUM-study): protocol for a longitudinal mixed-method study.

06-07-2021

Journal of cancer survivorship : research and practice

Perceptions of involvement in advance care planning and emotional functioning in patients with advanced cancer.

01-06-2021

Cancers

Comprehensive Assessment of Incidence, Risk Factors, and Mechanisms of Impaired Medical and Psychosocial Health Outcomes among Adolescents and Young Adults with Cancer: Protocol of the Prospective Observational COMPRAYA Cohort Study.

13-05-2021

Journal of cancer survivorship : research and practice

The course of peripheral neuropathy and its association with health-related quality of life among colorectal cancer patients.

01-04-2021

Acta oncologica (Stockholm, Sweden)

The eHealth self-management application 'Oncokompas' that supports cancer survivors to improve health-related quality of life and reduce symptoms: which groups benefit most?

01-04-2021

The oncologist

Heterogeneity in Quality of Life of Long-Term Colon Cancer Survivors: A Latent Class Analysis of the Population-Based PROFILES Registry.

01-03-2021

JAMA oncology

Perceived Care and Well-being of Patients With Cancer and Matched Norm Participants in the COVID-19 Crisis: Results of a Survey of Participants in the Dutch PROFILES Registry.

01-02-2021

Journal of cancer survivorship : research and practice

Cost-utility of an eHealth application 'Oncokompas' that supports cancer survivors in self-management: results of a randomised controlled trial.

01-02-2021

Acta oncologica (Stockholm, Sweden)

Health-related quality of life of long-term advanced melanoma survivors treated with anti-CTLA-4 immune checkpoint inhibition compared to matched controls.

01-01-2021

Cancer

Patient and diagnostic intervals of survivors of sarcoma: Results from the SURVSARC study.

15-12-2020

BMJ supportive & palliative care

Physical activity and health-related quality of life in multiple myeloma survivors: the PROFILES registry.

01-12-2020

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Painful and non-painful chemotherapy-induced peripheral neuropathy and quality of life in colorectal cancer survivors: results from the population-based PROFILES registry.

01-12-2020

Journal of cancer education : the official journal of the American Association for Cancer Education

Introducing Decision Aids into Routine Prostate Cancer Care in The Netherlands: Implementation and Patient Evaluations from the Multi-regional JIPPA Initiative.

01-12-2020

BMC medical informatics and decision making

Communicating tailored risk information of cancer treatment side effects: Only words or also numbers?

27-10-2020

BMJ open

Quality of life and experiences of sarcoma trajectories (the QUEST study): protocol for an international observational cohort study on diagnostic pathways of sarcoma patients.

26-10-2020

Journal of the National Comprehensive Cancer Network : JNCCN

Relationship Between Quality of Life and Survival in Patients With Pancreatic and Periampullary Cancer: A Multicenter Cohort Analysis.

01-10-2020