Publications

European journal of cancer (Oxford, England : 1990)

Chemotherapy duration and patient-reported outcomes in HER2-positive early breast cancer: Results from the TRAIN-3 study.

13-06-2026

American journal of physical medicine & rehabilitation

Assessing Cardiorespiratory Fitness in Clinical Rehabilitation: Validity of Field Exercise Tests and Patient-Reported Questionnaires.

02-06-2026

Journal of cancer survivorship : research and practice

Patient-reported outcomes in cancer survivorship: insights from two decades of population-based PROFILES registry research.

01-06-2026

Cancers

Recruitment Strategies, Response Rates, and Non-Response Patterns in a Nationwide Registry-Based PRO Survey of Cancer Survivors and the General Population: The SURV-ICE Cohort.

08-05-2026

Journal of cancer survivorship : research and practice

Long-term cognitive function after treatment with immune checkpoint inhibition for melanoma.

05-05-2026

European journal of cancer (Oxford, England : 1990)

The development of the European Toolkit for the self-assessment of quality of life across the cancer care continuum (EUonQoL-Kit).

02-05-2026

Journal of medical Internet research

Time-Dynamic AI Models to Predict Quality of Life in Patients With Breast Cancer: Development and Validation Study Using the EORTC BALANCE Cohort.

30-04-2026

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Barriers and facilitators for implementing patient-reported outcome measures in oncology practices: an umbrella review.

10-04-2026

Psycho-oncology

Understanding Physical Activity in Patients With Metastatic Breast Cancer: An Analysis Rooted in the Theory of Planned Behaviour.

01-04-2026

Psycho-oncology

Managing Cancer and Living Meaningfully (CALM) for Patients With Metastatic Cancer and Treatment Response.

01-04-2026

Journal of cancer survivorship : research and practice

Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.

01-04-2026

Journal of cancer survivorship : research and practice

"Numbers call for action, personalized narratives provide support and recognition": a qualitative assessment of cancer patients' perspectives on patient-reported outcome measures (PROMs) feedback with narratives.

01-04-2026

Journal of cancer survivorship : research and practice

Health care utilization up to 11 years after diagnosis among patients with a hematologic malignancy and its association with socioeconomic position.

01-04-2026

Palliative medicine

Sexual health at the end of life in patients with advanced cancer and their partners. Results of a Dutch prospective longitudinal study (eQuiPe).

01-04-2026

The Lancet. Oncology

MRI-based personalisation of neoadjuvant chemotherapy duration in HER2-positive early breast cancer (TRAIN-3): primary results from a multicentre, single-arm, phase 2 study.

01-03-2026

Psycho-oncology

Death Anxiety During the Last Year of Life in Patients With Advanced Cancer: Longitudinal Results From the eQuiPe Study.

01-03-2026

Health psychology review

Maintenance of lifestyle changes following lifestyle interventions in breast cancer survivors: a systematic literature review.

01-03-2026

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Prevalence of concurrent severe self-reported late symptoms and functional limitations in cancer survivors: a cross-sectional study of sociodemographic, clinical, and lifestyle associations.

28-02-2026

PloS one

Patients' and relatives' perspectives on the quality of end-of-Life care in advanced cancer: From the final months to bereavement.

09-02-2026

Breast cancer research : BCR

One size does not fit all: data-driven insights of patient-reported outcomes to tailor supportive care in breast cancer.

30-01-2026

Nature medicine

Neoadjuvant ipilimumab and nivolumab in resectable cutaneous squamous cell carcinoma: a randomized phase 2 trial.

01-12-2025

Key Publication

PloS one

Determinants and timing of lifestyle changes in postmenopausal breast cancer survivors: A longitudinal qualitative study.

24-11-2025

Hematological oncology

Fatigue, Neuropathy and Psychological Distress and Their Association With Health-Related Quality of Life in Survivors of Diffuse Large B-Cell Lymphoma: A Prospective Cohort Study and Comparison With a Normative Population.

01-11-2025

European journal of cancer (Oxford, England : 1990)

Cross-sectional study of long-term Health-Related Quality of Life in stage III melanoma patients receiving neo-adjuvant versus adjuvant immune checkpoint inhibitors.

16-10-2025

Journal of cancer survivorship : research and practice

Socioeconomic position and access to supportive cancer care in Europe: a scoping review of literature from 2000 to 2024.

07-10-2025

Key Publication

Annals of oncology : official journal of the European Society for Medical Oncology

Health-related quality of life of patients with metastatic melanoma treated with tumor-infiltrating lymphocytes compared with ipilimumab in a randomized phase III trial.

01-10-2025

Key Publication

PloS one

Association of ageing-related biomarkers with peripheral neuropathy in colorectal cancer patients up to 2 years after diagnosis.

26-09-2025

European journal of cancer (Oxford, England : 1990)

The association between pretreatment emotional distress and response to tumor-infiltrating lymphocyte therapy in advanced melanoma.

09-09-2025

ESMO real world data and digital oncology

Opportunities and challenges in pooling health-related quality-of-life data for prediction modeling in breast cancer across Europe: lessons from the EORTC BALANCE project.

01-09-2025

Cancer

Empowerment and quality of life in gynecological cancer survivors: Outcomes from a multicenter quasi-experimental cohort study from Norway (the LETSGO trial).

15-08-2025

Cancer medicine

Influence of Survivorship Care on Health-Related Quality of Life, Knowledge of Late Effects, and Distress Levels Among Long-Term Hodgkin Lymphoma Survivors.

01-08-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Differences in travel burden between patients with self-reported curable and incurable cancer: results from a Dutch flash mob study.

23-06-2025

Journal of patient-reported outcomes

Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains.

19-06-2025

Journal of cancer survivorship : research and practice

Prevalence of and factors associated with clinically important levels of fatigue, pain, and insomnia in survivors of cancer: a population-based cross-sectional study.

14-06-2025

JCO oncology practice

General Practitioners' Experiences With Implementing Colon or Prostate Cancer Survivorship Care in Primary Care: A Cross-Sectional Survey Nested Within Two Randomized-Controlled Trials.

01-06-2025

European radiology

Muscle atrophy and organ enlargement associated with quality of life during systemic therapy for melanoma: findings from an AI-based body composition analysis.

01-06-2025

Journal of cancer survivorship : research and practice

Return to work after neoadjuvant versus adjuvant immunotherapy in stage III melanoma patients.

26-05-2025

European journal of cancer (Oxford, England : 1990)

Flexibility in patient-reported outcome and health-related quality of life measurement: The EORTC Quality of Life Group measurement strategy.

02-05-2025

Nature reviews. Disease primers

Cutaneous melanoma.

03-04-2025

Journal of cancer survivorship : research and practice

Socioeconomic differences in health-related quality of life among cancer survivors and comparison with a cancer-free population: a PROFILES study.

01-04-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Screening for cognitive impairment in routine clinical oncology practice: a pilot study using patient-reported outcome measures and online cognitive testing in melanoma and breast cancer patients.

12-03-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Socioeconomic disparities in health-related quality of life and healthcare use in the last year of life of patients with advanced cancer: longitudinal results from the eQuiPe study.

11-03-2025

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Exploring the role of health-related quality of life measures in predictive modelling for oncology: a systematic review.

01-02-2025

Palliative medicine

Changes in perception of prognosis in the last year of life of patients with advanced cancer and its associated factors: Longitudinal results of the eQuiPe study.

01-02-2025

Journal of cancer survivorship : research and practice

"One more chance to survive": the experiences of patients with advanced melanoma and their partners with tumor-infiltrating lymphocyte therapy-a qualitative study and recommendations for future care.

01-02-2025

Journal of cancer survivorship : research and practice

The course of self-perceived cognitive functioning among patients with lymphoma and the co-occurrence with fatigue and psychological distress.

01-02-2025

JMIR cancer

Exploring the Impact of the Multimodal CAPABLE eHealth Intervention on Health-Related Quality of Life in Patients With Melanoma Undergoing Immune-Checkpoint Inhibition: Prospective Pilot Study.

30-01-2025

Nederlands tijdschrift voor geneeskunde

[Trajectories of health-related quality of life and symptom burden in patients with advanced cancer towards the end of life: longitudinal results from the eQuiPe study].

16-01-2025

Gynecologic oncology

Less is more: The benefits of reduced follow-up in gynecologic cancers.

01-01-2025

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.

01-01-2025

Chemotherapy duration and patient-reported outcomes in HER2-positive early breast cancer: Results from the TRAIN-3 study.

Assessing Cardiorespiratory Fitness in Clinical Rehabilitation: Validity of Field Exercise Tests and Patient-Reported Questionnaires.

Patient-reported outcomes in cancer survivorship: insights from two decades of population-based PROFILES registry research.

Recruitment Strategies, Response Rates, and Non-Response Patterns in a Nationwide Registry-Based PRO Survey of Cancer Survivors and the General Population: The SURV-ICE Cohort.

Long-term cognitive function after treatment with immune checkpoint inhibition for melanoma.

The development of the European Toolkit for the self-assessment of quality of life across the cancer care continuum (EUonQoL-Kit).

Time-Dynamic AI Models to Predict Quality of Life in Patients With Breast Cancer: Development and Validation Study Using the EORTC BALANCE Cohort.

Barriers and facilitators for implementing patient-reported outcome measures in oncology practices: an umbrella review.

Understanding Physical Activity in Patients With Metastatic Breast Cancer: An Analysis Rooted in the Theory of Planned Behaviour.

Managing Cancer and Living Meaningfully (CALM) for Patients With Metastatic Cancer and Treatment Response.

Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.

"Numbers call for action, personalized narratives provide support and recognition": a qualitative assessment of cancer patients' perspectives on patient-reported outcome measures (PROMs) feedback with narratives.

Health care utilization up to 11 years after diagnosis among patients with a hematologic malignancy and its association with socioeconomic position.

Sexual health at the end of life in patients with advanced cancer and their partners. Results of a Dutch prospective longitudinal study (eQuiPe).

MRI-based personalisation of neoadjuvant chemotherapy duration in HER2-positive early breast cancer (TRAIN-3): primary results from a multicentre, single-arm, phase 2 study.

Death Anxiety During the Last Year of Life in Patients With Advanced Cancer: Longitudinal Results From the eQuiPe Study.

Maintenance of lifestyle changes following lifestyle interventions in breast cancer survivors: a systematic literature review.

Prevalence of concurrent severe self-reported late symptoms and functional limitations in cancer survivors: a cross-sectional study of sociodemographic, clinical, and lifestyle associations.

Patients' and relatives' perspectives on the quality of end-of-Life care in advanced cancer: From the final months to bereavement.

One size does not fit all: data-driven insights of patient-reported outcomes to tailor supportive care in breast cancer.

Neoadjuvant ipilimumab and nivolumab in resectable cutaneous squamous cell carcinoma: a randomized phase 2 trial.

Determinants and timing of lifestyle changes in postmenopausal breast cancer survivors: A longitudinal qualitative study.

Fatigue, Neuropathy and Psychological Distress and Their Association With Health-Related Quality of Life in Survivors of Diffuse Large B-Cell Lymphoma: A Prospective Cohort Study and Comparison With a Normative Population.

Cross-sectional study of long-term Health-Related Quality of Life in stage III melanoma patients receiving neo-adjuvant versus adjuvant immune checkpoint inhibitors.

Socioeconomic position and access to supportive cancer care in Europe: a scoping review of literature from 2000 to 2024.

Health-related quality of life of patients with metastatic melanoma treated with tumor-infiltrating lymphocytes compared with ipilimumab in a randomized phase III trial.

Association of ageing-related biomarkers with peripheral neuropathy in colorectal cancer patients up to 2 years after diagnosis.

The association between pretreatment emotional distress and response to tumor-infiltrating lymphocyte therapy in advanced melanoma.

Opportunities and challenges in pooling health-related quality-of-life data for prediction modeling in breast cancer across Europe: lessons from the EORTC BALANCE project.

Empowerment and quality of life in gynecological cancer survivors: Outcomes from a multicenter quasi-experimental cohort study from Norway (the LETSGO trial).

Influence of Survivorship Care on Health-Related Quality of Life, Knowledge of Late Effects, and Distress Levels Among Long-Term Hodgkin Lymphoma Survivors.

Differences in travel burden between patients with self-reported curable and incurable cancer: results from a Dutch flash mob study.

Development of a unified system for assessing health related quality of life across the cancer care continuum: the EUonQoL Delphi study to identify priorities for quality of life domains.

Prevalence of and factors associated with clinically important levels of fatigue, pain, and insomnia in survivors of cancer: a population-based cross-sectional study.

General Practitioners' Experiences With Implementing Colon or Prostate Cancer Survivorship Care in Primary Care: A Cross-Sectional Survey Nested Within Two Randomized-Controlled Trials.

Muscle atrophy and organ enlargement associated with quality of life during systemic therapy for melanoma: findings from an AI-based body composition analysis.

Return to work after neoadjuvant versus adjuvant immunotherapy in stage III melanoma patients.

Flexibility in patient-reported outcome and health-related quality of life measurement: The EORTC Quality of Life Group measurement strategy.

Cutaneous melanoma.

Socioeconomic differences in health-related quality of life among cancer survivors and comparison with a cancer-free population: a PROFILES study.

Screening for cognitive impairment in routine clinical oncology practice: a pilot study using patient-reported outcome measures and online cognitive testing in melanoma and breast cancer patients.

Socioeconomic disparities in health-related quality of life and healthcare use in the last year of life of patients with advanced cancer: longitudinal results from the eQuiPe study.

Exploring the role of health-related quality of life measures in predictive modelling for oncology: a systematic review.

Changes in perception of prognosis in the last year of life of patients with advanced cancer and its associated factors: Longitudinal results of the eQuiPe study.

"One more chance to survive": the experiences of patients with advanced melanoma and their partners with tumor-infiltrating lymphocyte therapy-a qualitative study and recommendations for future care.

The course of self-perceived cognitive functioning among patients with lymphoma and the co-occurrence with fatigue and psychological distress.

Exploring the Impact of the Multimodal CAPABLE eHealth Intervention on Health-Related Quality of Life in Patients With Melanoma Undergoing Immune-Checkpoint Inhibition: Prospective Pilot Study.

[Trajectories of health-related quality of life and symptom burden in patients with advanced cancer towards the end of life: longitudinal results from the eQuiPe study].

Less is more: The benefits of reduced follow-up in gynecologic cancers.

Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.

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