Publications

Cancer medicine

Preoperative Inflammatory Status and Postoperative Morbidity in Patients With Primary Retroperitoneal Sarcoma.

01-03-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Double burden: financial toxicity in patients with advanced soft tissue sarcoma at the start of first-line palliative chemotherapy: baseline data from the HOLISTIC study.

27-02-2025

European journal of cancer (Oxford, England : 1990)

Incidence and survival of European adolescents and young adults diagnosed with sarcomas: EUROCARE-6 results.

25-02-2025

Neuro-oncology practice

"Aiming at a moving target"-The daily life experiences of adolescents and young adults with a low-grade glioma.

01-02-2025

The Lancet. Oncology

Common Sense Oncology principles for the design, analysis, and reporting of phase 3 randomised clinical trials.

01-02-2025

Cancers

Core Patient-Centered Outcomes for Adolescents and Young Adults with Cancer: A Comprehensive Review of the Literature from the STRONG-AYA Project.

28-01-2025

Cancers

Health-Related Quality of Life (HRQoL) Assessments in Research on Patients with Adult Rare Solid Cancers: A State-of-the-Art Review.

24-01-2025

Current oncology (Toronto, Ont.)

Patient-Centered Care for Adolescents and Young Adults with an Uncertain or Poor Cancer Prognosis: A Secondary Analysis of What Is Needed According to Patients, Caregivers, and Healthcare Providers.

21-01-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Adverse health outcomes and health-related quality of life (HRQoL) among long-term adolescent and young adult (AYA) brain tumour survivors: results from the population-based SURVAYA study.

14-01-2025

JCO clinical cancer informatics

Actionability of Synthetic Data in a Heterogeneous and Rare Health Care Demographic: Adolescents and Young Adults With Cancer.

01-12-2024

European journal of nuclear medicine and molecular imaging

Personalised PET imaging in oncology: an umbrella review of meta-analyses to guide the appropriate radiopharmaceutical choice and indication.

01-12-2024

Breast (Edinburgh, Scotland)

Neoadjuvant chemotherapy for radiation associated angiosarcoma (RAAS) of the breast: A retrospective single center study.

01-12-2024

The Lancet. Oncology

The current and future global burden of cancer among adolescents and young adults: a population-based study.

01-12-2024

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Diagnostic trajectories of patients with rare cancer in the Netherlands: results from a nationwide cross-sectional survey.

19-11-2024

Health policy and technology

Perspectives on access to imaging digital health records in oncology: A mixed methods systematic review.

01-11-2024

European journal of cancer (Oxford, England : 1990)

Improving completion rates of patient-reported outcome measures in cancer clinical trials: Scoping review investigating the implications for trial designs.

01-11-2024

European journal of cancer (Oxford, England : 1990)

The survival disparity between children and adolescents and young adults (AYAs) with Ewing sarcoma in the Netherlands did not change since the 1990s despite improved survival: A population-based study.

01-09-2024

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

Interleukin-6 in relation to early recurrence in primary, localized soft tissue sarcoma: An addition for existing risk classification systems?

01-09-2024

BMC cancer

Setting the international research agenda for sarcomas with patients and carers: results of phase II of the Sarcoma Patient Advocacy Global Network (SPAGN) priority setting partnership.

06-08-2024

Journal of surgical oncology

The prediagnostic general practitioner care of sarcoma patients: A real-world data study.

01-08-2024

JAMA oncology

Current Management of Desmoid Tumors: A Review.

01-08-2024

Clinical pharmacokinetics

Evaluating the Clinical Impact and Feasibility of Therapeutic Drug Monitoring of Pazopanib in a Real-World Soft-Tissue Sarcoma Cohort.

01-07-2024

Cancer

Employment outcomes of adolescent and young adult cancer survivors and their partners: A Dutch population-based study.

01-07-2024

American Society of Clinical Oncology educational book. American Society of Clinical Oncology. Annual Meeting

Common Sense Oncology: Equity, Value, and Outcomes That Matter.

01-06-2024

JCO clinical cancer informatics

Improving Diagnosis and Care for Patients With Sarcoma: Do Real-World General Practitioners Data and Prospective Data Collections Have a Place Next to Clinical Trials?

01-06-2024

ESMO open

Sunitinib for the treatment of metastatic gastrointestinal stromal tumors: the effect of TDM-guided dose optimization on clinical outcomes.

01-06-2024

ESMO real world data and digital oncology

Health-related quality of life in patients with gastrointestinal stromal tumor: data from a real-world cohort compared with a normative population.

01-06-2024

European journal of cancer (Oxford, England : 1990)

Propranolol monotherapy in angiosarcoma - A window-of-opportunity study (PropAngio).

01-05-2024

Critical reviews in oncology/hematology

Patient-reported outcomes in randomized clinical trials of systemic therapy for advanced soft tissue sarcomas in adults: A systematic review.

01-05-2024

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Financial difficulties experienced by patients with gastrointestinal stromal tumours (GIST) in the Netherlands: data from a cross-sectional multicentre study.

10-04-2024

The oncologist

Patient-Reported Outcomes of Accelerated Aging: A Novel Approach to Investigate Second Cancer Risk in Adolescent and Young Adult (18-39 Years) Cancer Survivors.

04-04-2024

Cancer chemotherapy and pharmacology

Real-world data on the management of pazopanib-induced liver toxicity in routine care of renal cell cancer and soft tissue sarcoma patients.

01-04-2024

ESMO open

Elements of successful patient involvement in clinical cancer trials: a review of the literature.

01-04-2024

Journal of cancer policy

The views of cancer patients of Turkish, Moroccan, Surinamese, and Dutch-Caribbean descent on diagnosis, treatment and prognosis: A systematic literature review.

01-03-2024

Acta oncologica (Stockholm, Sweden)

Referral patterns of GIST patients: data from a nationwide study.

14-02-2024

ESMO open

Sexual quality of life of adolescents and young adult breast cancer survivors.

01-02-2024

ESMO open

The increasing burden of testicular seminomas and non-seminomas in adolescents and young adults (AYAs): incidence, treatment, disease-specific survival and mortality trends in the Netherlands between 1989 and 2019.

01-02-2024

BMC cancer

Protocol for the development of a Core Outcome Set (COS) for Adolescents and Young Adults (AYAs) with cancer.

24-01-2024

International journal of clinical and health psychology : IJCHP

Fear, anxiety and depression in gastrointestinal stromal tumor (GIST) patients in the Netherlands: Data from a cross-sectional multicenter study.

16-01-2024

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Exploring the interconnectedness between health-related quality of life factors among long-term adolescent and young adult cancer survivors (AYAs): a network analysis.

13-01-2024

NPJ breast cancer

Molecular imaging predicts lack of T-DM1 response in advanced HER2-positive breast cancer (final results of ZEPHIR trial).

06-01-2024

ESMO open

Long-term second primary cancer risk in adolescent and young adult (15-39 years) cancer survivors: a population-based study in the Netherlands between 1989 and 2018.

01-01-2024

Journal of clinical medicine

Same Journey, Different Paths: Caregiver Burden among Informal Caregivers of Adolescent and Young Adult Patients with an Uncertain or Poor Cancer Prognosis (UPCP).

27-12-2023

Annals of surgical oncology

Neoadjuvant Imatinib in Locally Advanced Gastrointestinal Stromal Tumors (GISTs) is Effective and Safe: Results from a Prospective Single-Center Study with 108 Patients.

01-12-2023

Acta oncologica (Stockholm, Sweden)

The association of having a monitoring or blunting coping style with psychological distress, health-related quality of life and satisfaction with healthcare in gastrointestinal stromal tumour (GIST) patients.

01-12-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

A qualitative study on the healthcare experiences of adolescents and young adults (AYA) with an uncertain or poor cancer prognosis.

27-11-2023

Journal of the National Cancer Institute

Financial outcomes of adolescent and young adult cancer survivors: a longitudinal population-based registry study.

08-11-2023

Cancer medicine

Therapeutic drug monitoring to personalize dosing of imatinib, sunitinib, and pazopanib: A mixed methods study on barriers and facilitators.

01-11-2023

Patient education and counseling

What makes patient involvement work? Lessons learned from a qualitative study in adolescents and young adults with cancer.

01-10-2023

Journal of patient-reported outcomes

Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue.

13-09-2023