Publications

Neuro-oncology practice

Symptom burden in young adult brain tumor survivors: Key intervention targets based on patient-reported outcome network analyses.

Annals of surgical oncology

ASO Visual Abstract: Patient and Tumor Factors Influencing Diagnostic Trajectories in Gastrointestinal Stromal Tumor Patients and Their Impact on Health-Related Quality of Life: A Dutch Multicenter Study.

Annals of surgical oncology

Patient and Tumor Factors Influencing Diagnostic Trajectories in Gastrointestinal Stromal Tumor Patients and Their Impact on Health-Related Quality of Life: A Dutch Multicenter Study.

Nature communications

Molecular profiling and access to treatment for rare cancers in Europe.

23-07-2026

Journal of clinical oncology : official journal of the American Society of Clinical Oncology

Reply to: In DeFi-ance of "More Is Better": Questioning Long-Term Nirogacestat Use in Desmoid Tumors.

20-07-2026

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Self-reported peripheral neuropathic symptoms in long-term adolescent and young adult (AYA) cancer survivors: results of the SURVAYA study.

02-07-2026

Radiography (London, England : 1995)

Independent patient access to imaging digital health records: Oncology patients' and healthcare professionals' views and preferences.

01-07-2026

Annals of surgical oncology

Understanding Physical Functioning in Patients with Sarcoma After Amputation: Using an International Classification of Functioning, Disability and Health (ICF) Approach.

01-07-2026

Journal of medical genetics

Perspectives of adolescents and young adults with advanced cancer on complete genomic analysis in standard oncology care.

25-06-2026

Current oncology (Toronto, Ont.)

Coping with an Uncertain or Poor Cancer Prognosis as an Adolescent or Young Adult: A Cross-Sectional Cluster Analysis.

23-06-2026

European journal of cancer (Oxford, England : 1990)

Prognostic value for overall survival of the EORTC QLQ-C30 Summary Score: An analysis of 5 closed EORTC trials.

18-06-2026

Clinical cancer research : an official journal of the American Association for Cancer Research

Brigimadlin Versus Doxorubicin in Advanced Dedifferentiated Liposarcoma: Efficacy, Safety and Translational Data from Brightline-1, a Randomized Phase 2/3 Trial.

10-06-2026

Journal of cancer survivorship : research and practice

Perspectives of patients, partners, primary and hospital-based health care professionals on living with advanced cancer and systemic treatment.

01-06-2026

Cancer research

Targeting the Non-Homologous End Joining Pathway Sensitizes MDM2-Amplified Liposarcoma to Doxorubicin by Enhancing p53-Mediated Senescence.

01-06-2026

Current oncology (Toronto, Ont.)

Quality of Life and Healthcare Experiences of Patients with Anal Cancer: A Mixed-Methods Study.

05-05-2026

BMJ open

Pre-diagnostic route reported by patients with sarcoma from the Netherlands, the UK, Australia and New Zealand: early detection challenges for general practitioners - an international observational cohort study.

04-05-2026

Cancer imaging : the official publication of the International Cancer Imaging Society

Improving patient understanding of oncology imaging: radiologist and patient evaluation of summarised versus full-length AI-simplified reports from a tertiary cancer centre.

13-04-2026

Journal of cancer survivorship : research and practice

Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.

01-04-2026

Annals of oncology : official journal of the European Society for Medical Oncology

Doubting T(h)OMAS: has the era of precision oncology arrived in uterine leiomyosarcoma?

01-04-2026

Journal of gastrointestinal cancer

Quality of Life and Experiences of Patients with Gastrointestinal Stromal Tumors (GIST) on Imatinib Treatment.

10-03-2026

Journal of cancer survivorship : research and practice

Hospitalization for medical conditions in adolescent and young adult cancer survivors: a nationwide cohort study using the Netherlands Cancer Registry.

07-03-2026

Clinical breast cancer

Long-Term Health Issues of Adolescent and Young Adult Breast Cancer Survivors.

01-03-2026

Health and quality of life outcomes

Incorporating patients' input in the development and validation of patient-reported outcome measures in oncology: a comprehensive scoping review.

18-02-2026

JCO clinical cancer informatics

Knowledge Representation of a Multicenter Adolescent and Young Adult Cancer Infrastructure: Development of the STRONG AYA Knowledge Graph.

01-01-2026

The Lancet. Oncology

Development of a core outcome set for adolescents and young adults with cancer.

01-01-2026

Journal of cancer survivorship : research and practice

Health-related conditions among long-term cancer survivors diagnosed in adolescence and young adulthood (AYA): results of the SURVAYA study.

01-12-2025

Journal of clinical oncology : official journal of the American Society of Clinical Oncology

Efficacy and Safety of Long-Term Continuous Nirogacestat Treatment in Adults With Desmoid Tumors: Results From the DeFi Trial.

01-12-2025

JAMA oncology

Guidelines for Next-Generation Sequencing in Sarcoma Diagnosis and Treatment: A Consensus Review.

01-12-2025

Cancer treatment reviews

How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers.

EClinicalMedicine

Health-related quality of life in patients with advanced soft tissue sarcoma receiving first-line palliative chemotherapy (HOLISTIC): longitudinal results from a prospective, observational cohort study.

Head & neck

Health-Related Quality of Life in Patients With a Head and Neck Sarcoma: A Mixed-Methods Study.

Cancer treatment reviews

Genomic distinctions in adolescent and young adult cancer: A comprehensive review.

Cancer treatment reviews

Overcoming the barriers to treatment of rare cancer patients in the era of precision oncology: A call to action.

Psycho-oncology

Health-Related Quality of Life in Adolescents and Young Adults With an Uncertain or Poor Cancer Prognosis: Quantitative Baseline Results of the CORD-AYA Study.

ESMO open

Minimum standards of specialist adolescent and young adult (AYA) cancer care units: recommendations and implementation roadmap.

01-10-2025

International journal of cancer

Socioeconomic impact among and socioeconomic support services for adolescents and young adults with cancer: A European perspective.

01-10-2025

The Lancet regional health. Europe

5-Year conditional relative survival of adolescents and young adults with solid malignancies in the Netherlands: a population-based cohort study.

01-10-2025

Journal of cancer survivorship : research and practice

Associations of adherence to the World Cancer Research Fund lifestyle recommendations with health-related quality of life and fatigue in Adolescent and Young Adult (AYA) cancer survivors: results from the SURVAYA study.

08-09-2025

The Lancet. Oncology

Importance of responder criteria for reporting health-related quality-of-life data in clinical trials for advanced cancer: recommendations of Common Sense Oncology and the European Organisation for Research and Treatment of Cancer.

01-09-2025

Psycho-oncology

Navigating Romantic Relationships and Sexual Intimacy: Challenges and Opportunities for Adolescents and Young Adults With Cancer - A Literature Review of Qualitative Studies.

01-09-2025

Journal of cancer survivorship : research and practice

Pre-treatment fertility preservation and post-treatment reproduction in long-term survivors of adolescent and young adult (AYA) cancer.

01-08-2025

Journal of cancer survivorship : research and practice

Health-related quality of life of long-term adolescent and young adult (AYA) cancer survivors compared to a matched normative population: results of the SURVAYA study.

17-06-2025

Journal of the National Cancer Center

Five-year conditional relative survival up to 10 years post-diagnosis among adolescent and young adult breast cancer patients by age, stage, and receptor subtype.

The Lancet. Oncology

Using patient-reported outcomes and health-related quality of life data in regulatory decisions on cancer treatment: highlights from an EMA-EORTC workshop.

ESMO open

The role of whole-genome sequencing for guiding systemic therapy in patients with soft tissue sarcoma.

Journal of cancer survivorship : research and practice

Adherence to the World Cancer Research Fund/American Institute for Cancer Research recommendations for cancer prevention in adolescent and young adult (AYA) cancer survivors: results from the SURVAYA study.