Publications

Clinical oncology (Royal College of Radiologists (Great Britain))

Beyond Teenage and Young Adult Cancer Care: Care Experiences of Patients Aged 25-39 Years Old in the UK National Health Service.

01-08-2021

Current opinion in oncology

Desmoid-type fibromatosis: toward a holistic management.

01-07-2021

Cancers

The Evaluation of Health-Related Quality of Life Issues Experienced by Patients with Desmoid-Type Fibromatosis (The QUALIFIED Study)-A Protocol for an International Cohort Study.

22-06-2021

ESMO open

Epithelioid hemangioendothelioma, an ultra-rare cancer: a consensus paper from the community of experts.

01-06-2021

Cancers

Comprehensive Assessment of Incidence, Risk Factors, and Mechanisms of Impaired Medical and Psychosocial Health Outcomes among Adolescents and Young Adults with Cancer: Protocol of the Prospective Observational COMPRAYA Cohort Study.

13-05-2021

Radiotherapy and oncology : journal of the European Society for Therapeutic Radiology and Oncology

Local control and postponement of systemic therapy after modest dose radiotherapy in oligometastatic myxoid liposarcomas.

01-05-2021

Cancer medicine

The patient perspective in the era of personalized medicine: What about scanxiety?

01-05-2021

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Informal caregiver well-being during and after patients' treatment with adjuvant chemotherapy for colon cancer: a prospective, exploratory study.

01-05-2021

Journal of clinical medicine

Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals.

22-04-2021

ESMO open

Adolescents and young adults (AYA) with cancer: a position paper from the AYA Working Group of the European Society for Medical Oncology (ESMO) and the European Society for Paediatric Oncology (SIOPE).

01-04-2021

Critical reviews in oncology/hematology

Imaging response evaluation after neoadjuvant treatment in soft tissue sarcomas: Where do we stand?

01-04-2021

Journal of the National Comprehensive Cancer Network : JNCCN

Adolescents and Young Adults Living With an Uncertain or Poor Cancer Prognosis: The "New" Lost Tribe.

02-03-2021

Journal of clinical oncology : official journal of the American Society of Clinical Oncology

Clinical Trials for Real-World Elderly Patients With Metastatic Soft-Tissue Sarcomas: The Importance of Study Design and Patient-Reported Outcomes.

01-03-2021

Cancers

Diagnosed with a Rare Cancer: Experiences of Adult Sarcoma Survivors with the Healthcare System-Results from the SURVSARC Study.

08-02-2021

British journal of clinical pharmacology

The relationship between sunitinib exposure and both efficacy and toxicity in real-world patients with renal cell carcinoma and gastrointestinal stromal tumour.

01-02-2021

ESMO open

The age-related impact of surviving sarcoma on health-related quality of life: data from the SURVSARC study.

01-02-2021

BMJ open

Psychological aspects in patients with advanced cancer receiving lifelong systemic treatment: protocol for a scoping review.

31-01-2021

JAMA oncology

Dose Reduction of Preoperative Radiotherapy in Myxoid Liposarcoma: A Nonrandomized Controlled Trial.

01-01-2021

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Diagnosed with a common cancer at an unusual age: causal attributions of survivors of adolescent and young adult colorectal cancer.

01-01-2021

Cancers

Incorporating the Patient Voice in Sarcoma Research: How Can We Assess Health-Related Quality of Life in This Heterogeneous Group of Patients? A Study Protocol.

22-12-2020

Cancer

Patient and diagnostic intervals of survivors of sarcoma: Results from the SURVSARC study.

15-12-2020

The oncologist

A Timely Oral Option: Single-Agent Vinorelbine in Desmoid Tumors.

01-12-2020

Frontiers in psychology

Not as Stable as We Think: A Descriptive Study of 12 Monthly Assessments of Fear of Cancer Recurrence Among Curatively-Treated Breast Cancer Survivors 0-5 Years After Surgery.

24-11-2020

Cancers

Incidence, Survival, and Mortality Trends of Cancers Diagnosed in Adolescents and Young Adults (15-39 Years): A Population-Based Study in The Netherlands 1990-2016.

18-11-2020

Annals of oncology : official journal of the European Society for Medical Oncology

Diagnosis and management of tropomyosin receptor kinase (TRK) fusion sarcomas: expert recommendations from the World Sarcoma Network.

01-11-2020

BMJ open

Quality of life and experiences of sarcoma trajectories (the QUEST study): protocol for an international observational cohort study on diagnostic pathways of sarcoma patients.

26-10-2020

Cancers

Unraveling the Heterogeneity of Sarcoma Survivors' Health-Related Quality of Life Regarding Primary Sarcoma Location: Results from the SURVSARC Study.

22-10-2020

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

The complexity of assessing health-related quality of life among sarcoma patients.

01-10-2020

ESMO open

Unravelling the heterogeneity of soft tissue and bone sarcoma patients' health-related quality of life: a systematic literature review with focus on tumour location.

01-10-2020

BMJ open

PropAngio study protocol: a neoadjuvant trial on the efficacy of propranolol monotherapy in cutaneous angiosarcoma-a proof of principle study.

10-09-2020

European journal of cancer (Oxford, England : 1990)

Therapeutic drug monitoring of imatinib in patients with gastrointestinal stromal tumours - Results from daily clinical practice.

01-09-2020

International journal of cancer

EORTC SPECTA-AYA: A unique molecular profiling platform for adolescents and young adults with cancer in Europe.

15-08-2020

Cancers

Neoadjuvant Systemic Treatment of Primary Angiosarcoma.

12-08-2020

Sarcoma

Assessing the Desmoid-Type Fibromatosis Patients' Voice: Comparison of Health-Related Quality of Life Experiences from Patients of Two Countries.

11-08-2020

Acta oncologica (Stockholm, Sweden)

Health-related quality of life and symptom burden of epithelioid hemangioendothelioma patients: a global patient-driven Facebook study in a very rare malignancy.

01-08-2020

Cancers

The Perceived Impact of Length of the Diagnostic Pathway Is Associated with Health-Related Quality of Life of Sarcoma Survivors: Results from the Dutch Nationwide SURVSARC Study.

28-07-2020

Journal of cancer research and clinical oncology

Olaparib and temozolomide in desmoplastic small round cell tumors: a promising combination in vitro and in vivo.

01-07-2020

BMJ open

Health-related quality Of Life In patients with advanced Soft TIssue sarcomas treated with Chemotherapy (The HOLISTIC study): protocol for an international observational cohort study.

01-06-2020

Head & neck

Methotrexate plus or minus cetuximab as first-line treatment in a recurrent or metastatic (R/M) squamous cell carcinoma population of the head and neck (SCCHN), unfit for cisplatin combination treatment, a phase Ib-randomized phase II study Commence.

01-05-2020

The oncologist

The EORTC QLQ-C30 Summary Score as Prognostic Factor for Survival of Patients with Cancer in the "Real-World": Results from the Population-Based PROFILES Registry.

01-04-2020

Cancers

Gastrointestinal Stromal Tumours (GIST) in Young Adult (18-40 Years) Patients: A Report from the Dutch GIST Registry.

20-03-2020

ESMO open

The sarcoma diagnostic interval: a systematic review on length, contributing factors and patient outcomes.

01-02-2020

British journal of clinical pharmacology

Imatinib, sunitinib and pazopanib: From flat-fixed dosing towards a pharmacokinetically guided personalized dose.

01-02-2020

Trials

Evaluating a digital tool for supporting breast cancer patients: a randomized controlled trial protocol (ADAPT).

15-01-2020

Clinical oncology (Royal College of Radiologists (Great Britain))

Embryonal and Alveolar Rhabdomyosarcoma in Adults: Real-Life Data From a Tertiary Sarcoma Centre.

01-01-2020

Annals of oncology : official journal of the European Society for Medical Oncology

Cognitive behavioral therapy or graded exercise therapy compared with usual care for severe fatigue in patients with advanced cancer during treatment: a randomized controlled trial.

01-01-2020

Clinical cancer research : an official journal of the American Association for Cancer Research

DNA Methylation Profiling Identifies Distinct Clusters in Angiosarcomas.

01-01-2020

European journal of cancer (Oxford, England : 1990)

A nationwide cohort study on treatment and survival in patients with malignant peripheral nerve sheath tumours.

01-01-2020

Annals of surgical oncology

Outcome of Primary Desmoid Tumors at All Anatomic Locations Initially Managed with Active Surveillance.

01-12-2019

Cancers

Prognostic Factors in a Large Nationwide Cohort of Histologically Confirmed Primary and Secondary Angiosarcomas.

12-11-2019