Publications

ESMO open

Long-term second primary cancer risk in adolescent and young adult (15-39 years) cancer survivors: a population-based study in the Netherlands between 1989 and 2018.

01-01-2024

Journal of clinical medicine

Same Journey, Different Paths: Caregiver Burden among Informal Caregivers of Adolescent and Young Adult Patients with an Uncertain or Poor Cancer Prognosis (UPCP).

27-12-2023

Annals of surgical oncology

Neoadjuvant Imatinib in Locally Advanced Gastrointestinal Stromal Tumors (GISTs) is Effective and Safe: Results from a Prospective Single-Center Study with 108 Patients.

01-12-2023

Acta oncologica (Stockholm, Sweden)

The association of having a monitoring or blunting coping style with psychological distress, health-related quality of life and satisfaction with healthcare in gastrointestinal stromal tumour (GIST) patients.

01-12-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

A qualitative study on the healthcare experiences of adolescents and young adults (AYA) with an uncertain or poor cancer prognosis.

27-11-2023

Journal of the National Cancer Institute

Financial outcomes of adolescent and young adult cancer survivors: a longitudinal population-based registry study.

08-11-2023

Cancer medicine

Therapeutic drug monitoring to personalize dosing of imatinib, sunitinib, and pazopanib: A mixed methods study on barriers and facilitators.

01-11-2023

Patient education and counseling

What makes patient involvement work? Lessons learned from a qualitative study in adolescents and young adults with cancer.

01-10-2023

Journal of patient-reported outcomes

Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue.

13-09-2023

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

Elevated preoperative serum interleukin-6 level is predictive for worse postoperative outcome after soft tissue sarcoma surgery.

01-09-2023

The Lancet. Oncology

Common Sense Oncology: outcomes that matter.

01-08-2023

Acta oncologica (Stockholm, Sweden)

Involving adolescents and young adults (AYA) with an uncertain or poor cancer prognosis as research partners.

01-08-2023

Cancers

Caring for Adolescents and Young Adults (AYA) with Cancer: A Scoping Review into Caregiver Burdens and Needs.

20-06-2023

Cancer medicine

Physical symptom burden in patients with desmoid-type fibromatosis and its impact on health-related quality of life and healthcare use.

01-06-2023

Cancer medicine

Learning from long-term adolescent and young adult (AYA) cancer survivors regarding their age-specific care needs to improve current AYA care programs.

01-06-2023

European journal of cancer (Oxford, England : 1990)

Defining the role of real-world data in cancer clinical research: The position of the European Organisation for Research and Treatment of Cancer.

01-06-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Psychological and social challenges of patients with locally advanced and metastatic gastrointestinal stromal tumours (GIST) on long-term treatment with tyrosine kinase inhibitors: a qualitative study with patients and medical oncologists.

26-05-2023

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

Pregnancy-associated desmoid fibromatosis: A Dutch multi-centre retrospective study.

01-05-2023

Cancer

Impaired social functioning in adolescent and young adult sarcoma survivors: Prevalence and risk factors.

01-05-2023

Frontiers in oncology

Recent advances on anti-angiogenic multi-receptor tyrosine kinase inhibitors in osteosarcoma and Ewing sarcoma.

31-03-2023

The New England journal of medicine

Nirogacestat, a γ-Secretase Inhibitor for Desmoid Tumors.

09-03-2023

Future oncology (London, England)

A patient's perspective on the side effects of tyrosine kinase inhibitors in the treatment of advanced and metastatic gastrointestinal stromal tumors.

01-02-2023

Clinical cancer research : an official journal of the American Association for Cancer Research

[89Zr]Zr-DFO-girentuximab and [18F]FDG PET/CT to Predict Watchful Waiting Duration in Patients with Metastatic Clear-cell Renal Cell Carcinoma.

01-02-2023

EClinicalMedicine

Desmoid is not a sarcoma; reply to Sachdev et al.

01-02-2023

European journal of cancer (Oxford, England : 1990)

Controversies in the management of patients with soft tissue sarcoma: Recommendations of the Conference on State of Science in Sarcoma 2022.

01-02-2023

Frontiers in pharmacology

Genome-wide analyses of platinum-induced ototoxicity in childhood cancer patients: Results of GO-CAT and United Kingdom MAGIC consortia.

27-01-2023

Frontiers in psychology

"Double awareness"-adolescents and young adults coping with an uncertain or poor cancer prognosis: A qualitative study.

03-01-2023

European journal of cancer (Oxford, England : 1990)

Comprehensive molecular profiling of sarcomas in adolescent and young adult patients: Results of the EORTC SPECTA-AYA international proof-of-concept study.

01-01-2023

European journal of cancer (Oxford, England : 1990)

EORTC is 60 - and far from contemplating retirement.

01-01-2023

Acta oncologica (Stockholm, Sweden)

Correlation of radiological and histopathological response after neoadjuvant radiotherapy in soft tissue sarcoma.

01-01-2023

Annals of surgical oncology

Prognosis of Patients with Cutaneous Angiosarcoma After Surgical Resection with Curative Intent: Is There a Difference Between the Subtypes?

01-01-2023

Cancer medicine

AYAs' online information and eHealth needs: A comparison with healthcare professionals' perceptions.

01-01-2023

JMIR formative research

Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study.

15-12-2022

Cancers

Fear of Cancer Recurrence in Sarcoma Survivors: Results from the SURVSARC Study.

11-12-2022

Cancers

Shedding a Light on the Challenges of Adolescents and Young Adults with Rhabdomyosarcoma.

09-12-2022

Frontiers in oncology

"Finding my way in a maze while the clock is ticking": The daily life challenges of adolescents and young adults with an uncertain or poor cancer prognosis.

03-12-2022

ESMO open

Sex differences in patients with gastrointestinal stromal tumours: do they exist and does it affect survival?

01-12-2022

Frontiers in pharmacology

SLC7A8 coding for LAT2 is associated with early disease progression in osteosarcoma and transports doxorubicin.

29-11-2022

Cancer treatment reviews

Retrospective observational studies in ultra-rare sarcomas: A consensus paper from the Connective Tissue Oncology Society (CTOS) community of experts on the minimum requirements for the evaluation of activity of systemic treatments.

01-11-2022

Annals of oncology : official journal of the European Society for Medical Oncology

ESMO Expert Consensus Statements on Cancer Survivorship: promoting high-quality survivorship care and research in Europe.

01-11-2022

Cancers

A Negative Body Image among Adolescent and Young Adult (AYA) Cancer Survivors: Results from the Population-Based SURVAYA Study.

26-10-2022

European journal of cancer (Oxford, England : 1990)

New benchmarks to design clinical trials with advanced or metastatic liposarcoma or synovial sarcoma patients: An EORTC - Soft Tissue and Bone Sarcoma Group (STBSG) meta-analysis based on a literature review for soft-tissue sarcomas.

01-10-2022

Seminars in cancer biology

Biology-guided precision medicine in rare cancers: Lessons from sarcomas and neuroendocrine tumours.

01-09-2022

Pediatric blood & cancer

Clinical trials in desmoid-type fibromatosis in children and adults: A systematic review.

01-09-2022

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Identifying health-related quality of life cut-off scores that indicate the need for supportive care in young adults with cancer.

01-09-2022

Cancers

Psychosocial Aspects of Living Long Term with Advanced Cancer and Ongoing Systemic Treatment: A Scoping Review.

11-08-2022

Cancer

First-line chemotherapy in advanced intra-abdominal well-differentiated/dedifferentiated liposarcoma: An EORTC Soft Tissue and Bone Sarcoma Group retrospective analysis.

01-08-2022

ESMO open

Short- and long-term impact of cancer on employment and financial outcomes of adolescents and young adults (AYAs): a large population-based case-control registry study in the Netherlands.

01-08-2022

Current oncology (Toronto, Ont.)

Recruiting Adolescent and Young Adult Cancer Survivors for Patient-Reported Outcome Research: Experiences and Sample Characteristics of the SURVAYA Study.

29-07-2022

Cancer

Psychosocial consequences of surviving cancer diagnosed and treated in childhood versus in adolescence/young adulthood: A call for clearer delineation between groups.

15-07-2022

Long-term second primary cancer risk in adolescent and young adult (15-39 years) cancer survivors: a population-based study in the Netherlands between 1989 and 2018.

Same Journey, Different Paths: Caregiver Burden among Informal Caregivers of Adolescent and Young Adult Patients with an Uncertain or Poor Cancer Prognosis (UPCP).

Neoadjuvant Imatinib in Locally Advanced Gastrointestinal Stromal Tumors (GISTs) is Effective and Safe: Results from a Prospective Single-Center Study with 108 Patients.

The association of having a monitoring or blunting coping style with psychological distress, health-related quality of life and satisfaction with healthcare in gastrointestinal stromal tumour (GIST) patients.

A qualitative study on the healthcare experiences of adolescents and young adults (AYA) with an uncertain or poor cancer prognosis.

Financial outcomes of adolescent and young adult cancer survivors: a longitudinal population-based registry study.

Therapeutic drug monitoring to personalize dosing of imatinib, sunitinib, and pazopanib: A mixed methods study on barriers and facilitators.

What makes patient involvement work? Lessons learned from a qualitative study in adolescents and young adults with cancer.

Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue.

Elevated preoperative serum interleukin-6 level is predictive for worse postoperative outcome after soft tissue sarcoma surgery.

Common Sense Oncology: outcomes that matter.

Involving adolescents and young adults (AYA) with an uncertain or poor cancer prognosis as research partners.

Caring for Adolescents and Young Adults (AYA) with Cancer: A Scoping Review into Caregiver Burdens and Needs.

Physical symptom burden in patients with desmoid-type fibromatosis and its impact on health-related quality of life and healthcare use.

Learning from long-term adolescent and young adult (AYA) cancer survivors regarding their age-specific care needs to improve current AYA care programs.

Defining the role of real-world data in cancer clinical research: The position of the European Organisation for Research and Treatment of Cancer.

Psychological and social challenges of patients with locally advanced and metastatic gastrointestinal stromal tumours (GIST) on long-term treatment with tyrosine kinase inhibitors: a qualitative study with patients and medical oncologists.

Pregnancy-associated desmoid fibromatosis: A Dutch multi-centre retrospective study.

Impaired social functioning in adolescent and young adult sarcoma survivors: Prevalence and risk factors.

Recent advances on anti-angiogenic multi-receptor tyrosine kinase inhibitors in osteosarcoma and Ewing sarcoma.

Nirogacestat, a γ-Secretase Inhibitor for Desmoid Tumors.

A patient's perspective on the side effects of tyrosine kinase inhibitors in the treatment of advanced and metastatic gastrointestinal stromal tumors.

[89Zr]Zr-DFO-girentuximab and [18F]FDG PET/CT to Predict Watchful Waiting Duration in Patients with Metastatic Clear-cell Renal Cell Carcinoma.

Desmoid is not a sarcoma; reply to Sachdev et al.

Controversies in the management of patients with soft tissue sarcoma: Recommendations of the Conference on State of Science in Sarcoma 2022.

Genome-wide analyses of platinum-induced ototoxicity in childhood cancer patients: Results of GO-CAT and United Kingdom MAGIC consortia.

"Double awareness"-adolescents and young adults coping with an uncertain or poor cancer prognosis: A qualitative study.

Comprehensive molecular profiling of sarcomas in adolescent and young adult patients: Results of the EORTC SPECTA-AYA international proof-of-concept study.

EORTC is 60 - and far from contemplating retirement.

Correlation of radiological and histopathological response after neoadjuvant radiotherapy in soft tissue sarcoma.

Prognosis of Patients with Cutaneous Angiosarcoma After Surgical Resection with Curative Intent: Is There a Difference Between the Subtypes?

AYAs' online information and eHealth needs: A comparison with healthcare professionals' perceptions.

Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study.

Fear of Cancer Recurrence in Sarcoma Survivors: Results from the SURVSARC Study.

Shedding a Light on the Challenges of Adolescents and Young Adults with Rhabdomyosarcoma.

"Finding my way in a maze while the clock is ticking": The daily life challenges of adolescents and young adults with an uncertain or poor cancer prognosis.

Sex differences in patients with gastrointestinal stromal tumours: do they exist and does it affect survival?

SLC7A8 coding for LAT2 is associated with early disease progression in osteosarcoma and transports doxorubicin.

Retrospective observational studies in ultra-rare sarcomas: A consensus paper from the Connective Tissue Oncology Society (CTOS) community of experts on the minimum requirements for the evaluation of activity of systemic treatments.

ESMO Expert Consensus Statements on Cancer Survivorship: promoting high-quality survivorship care and research in Europe.

A Negative Body Image among Adolescent and Young Adult (AYA) Cancer Survivors: Results from the Population-Based SURVAYA Study.

New benchmarks to design clinical trials with advanced or metastatic liposarcoma or synovial sarcoma patients: An EORTC - Soft Tissue and Bone Sarcoma Group (STBSG) meta-analysis based on a literature review for soft-tissue sarcomas.

Biology-guided precision medicine in rare cancers: Lessons from sarcomas and neuroendocrine tumours.

Clinical trials in desmoid-type fibromatosis in children and adults: A systematic review.

Identifying health-related quality of life cut-off scores that indicate the need for supportive care in young adults with cancer.

Psychosocial Aspects of Living Long Term with Advanced Cancer and Ongoing Systemic Treatment: A Scoping Review.

First-line chemotherapy in advanced intra-abdominal well-differentiated/dedifferentiated liposarcoma: An EORTC Soft Tissue and Bone Sarcoma Group retrospective analysis.

Short- and long-term impact of cancer on employment and financial outcomes of adolescents and young adults (AYAs): a large population-based case-control registry study in the Netherlands.

Recruiting Adolescent and Young Adult Cancer Survivors for Patient-Reported Outcome Research: Experiences and Sample Characteristics of the SURVAYA Study.

Psychosocial consequences of surviving cancer diagnosed and treated in childhood versus in adolescence/young adulthood: A call for clearer delineation between groups.

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