Publications

Cancer medicine

The patient perspective in the era of personalized medicine: What about scanxiety?

01-05-2021

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Informal caregiver well-being during and after patients' treatment with adjuvant chemotherapy for colon cancer: a prospective, exploratory study.

01-05-2021

Journal of clinical medicine

Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals.

22-04-2021

ESMO open

Adolescents and young adults (AYA) with cancer: a position paper from the AYA Working Group of the European Society for Medical Oncology (ESMO) and the European Society for Paediatric Oncology (SIOPE).

01-04-2021

Critical reviews in oncology/hematology

Imaging response evaluation after neoadjuvant treatment in soft tissue sarcomas: Where do we stand?

01-04-2021

Journal of the National Comprehensive Cancer Network : JNCCN

Adolescents and Young Adults Living With an Uncertain or Poor Cancer Prognosis: The "New" Lost Tribe.

02-03-2021

Journal of clinical oncology : official journal of the American Society of Clinical Oncology

Clinical Trials for Real-World Elderly Patients With Metastatic Soft-Tissue Sarcomas: The Importance of Study Design and Patient-Reported Outcomes.

01-03-2021

Cancers

Diagnosed with a Rare Cancer: Experiences of Adult Sarcoma Survivors with the Healthcare System-Results from the SURVSARC Study.

08-02-2021

British journal of clinical pharmacology

The relationship between sunitinib exposure and both efficacy and toxicity in real-world patients with renal cell carcinoma and gastrointestinal stromal tumour.

01-02-2021

ESMO open

The age-related impact of surviving sarcoma on health-related quality of life: data from the SURVSARC study.

01-02-2021

BMJ open

Psychological aspects in patients with advanced cancer receiving lifelong systemic treatment: protocol for a scoping review.

31-01-2021

JAMA oncology

Dose Reduction of Preoperative Radiotherapy in Myxoid Liposarcoma: A Nonrandomized Controlled Trial.

01-01-2021

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Diagnosed with a common cancer at an unusual age: causal attributions of survivors of adolescent and young adult colorectal cancer.

01-01-2021

Cancers

Incorporating the Patient Voice in Sarcoma Research: How Can We Assess Health-Related Quality of Life in This Heterogeneous Group of Patients? A Study Protocol.

22-12-2020

Cancer

Patient and diagnostic intervals of survivors of sarcoma: Results from the SURVSARC study.

15-12-2020

The oncologist

A Timely Oral Option: Single-Agent Vinorelbine in Desmoid Tumors.

01-12-2020

Frontiers in psychology

Not as Stable as We Think: A Descriptive Study of 12 Monthly Assessments of Fear of Cancer Recurrence Among Curatively-Treated Breast Cancer Survivors 0-5 Years After Surgery.

24-11-2020

Cancers

Incidence, Survival, and Mortality Trends of Cancers Diagnosed in Adolescents and Young Adults (15-39 Years): A Population-Based Study in The Netherlands 1990-2016.

18-11-2020

Annals of oncology : official journal of the European Society for Medical Oncology

Diagnosis and management of tropomyosin receptor kinase (TRK) fusion sarcomas: expert recommendations from the World Sarcoma Network.

01-11-2020

BMJ open

Quality of life and experiences of sarcoma trajectories (the QUEST study): protocol for an international observational cohort study on diagnostic pathways of sarcoma patients.

26-10-2020

Cancers

Unraveling the Heterogeneity of Sarcoma Survivors' Health-Related Quality of Life Regarding Primary Sarcoma Location: Results from the SURVSARC Study.

22-10-2020

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

The complexity of assessing health-related quality of life among sarcoma patients.

01-10-2020

ESMO open

Unravelling the heterogeneity of soft tissue and bone sarcoma patients' health-related quality of life: a systematic literature review with focus on tumour location.

01-10-2020

BMJ open

PropAngio study protocol: a neoadjuvant trial on the efficacy of propranolol monotherapy in cutaneous angiosarcoma-a proof of principle study.

10-09-2020

European journal of cancer (Oxford, England : 1990)

Therapeutic drug monitoring of imatinib in patients with gastrointestinal stromal tumours - Results from daily clinical practice.

01-09-2020

International journal of cancer

EORTC SPECTA-AYA: A unique molecular profiling platform for adolescents and young adults with cancer in Europe.

15-08-2020

Cancers

Neoadjuvant Systemic Treatment of Primary Angiosarcoma.

12-08-2020

Sarcoma

Assessing the Desmoid-Type Fibromatosis Patients' Voice: Comparison of Health-Related Quality of Life Experiences from Patients of Two Countries.

11-08-2020

Acta oncologica (Stockholm, Sweden)

Health-related quality of life and symptom burden of epithelioid hemangioendothelioma patients: a global patient-driven Facebook study in a very rare malignancy.

01-08-2020

Cancers

The Perceived Impact of Length of the Diagnostic Pathway Is Associated with Health-Related Quality of Life of Sarcoma Survivors: Results from the Dutch Nationwide SURVSARC Study.

28-07-2020

Journal of cancer research and clinical oncology

Olaparib and temozolomide in desmoplastic small round cell tumors: a promising combination in vitro and in vivo.

01-07-2020

BMJ open

Health-related quality Of Life In patients with advanced Soft TIssue sarcomas treated with Chemotherapy (The HOLISTIC study): protocol for an international observational cohort study.

01-06-2020

Head & neck

Methotrexate plus or minus cetuximab as first-line treatment in a recurrent or metastatic (R/M) squamous cell carcinoma population of the head and neck (SCCHN), unfit for cisplatin combination treatment, a phase Ib-randomized phase II study Commence.

01-05-2020

The oncologist

The EORTC QLQ-C30 Summary Score as Prognostic Factor for Survival of Patients with Cancer in the "Real-World": Results from the Population-Based PROFILES Registry.

01-04-2020

Cancers

Gastrointestinal Stromal Tumours (GIST) in Young Adult (18-40 Years) Patients: A Report from the Dutch GIST Registry.

20-03-2020

ESMO open

The sarcoma diagnostic interval: a systematic review on length, contributing factors and patient outcomes.

01-02-2020

British journal of clinical pharmacology

Imatinib, sunitinib and pazopanib: From flat-fixed dosing towards a pharmacokinetically guided personalized dose.

01-02-2020

Trials

Evaluating a digital tool for supporting breast cancer patients: a randomized controlled trial protocol (ADAPT).

15-01-2020

Clinical oncology (Royal College of Radiologists (Great Britain))

Embryonal and Alveolar Rhabdomyosarcoma in Adults: Real-Life Data From a Tertiary Sarcoma Centre.

01-01-2020

Annals of oncology : official journal of the European Society for Medical Oncology

Cognitive behavioral therapy or graded exercise therapy compared with usual care for severe fatigue in patients with advanced cancer during treatment: a randomized controlled trial.

01-01-2020

Clinical cancer research : an official journal of the American Association for Cancer Research

DNA Methylation Profiling Identifies Distinct Clusters in Angiosarcomas.

01-01-2020

European journal of cancer (Oxford, England : 1990)

A nationwide cohort study on treatment and survival in patients with malignant peripheral nerve sheath tumours.

01-01-2020

Annals of surgical oncology

Outcome of Primary Desmoid Tumors at All Anatomic Locations Initially Managed with Active Surveillance.

01-12-2019

Cancers

Prognostic Factors in a Large Nationwide Cohort of Histologically Confirmed Primary and Secondary Angiosarcomas.

12-11-2019

Acta oncologica (Stockholm, Sweden)

Predictive factors for toxicity and survival of second-line sunitinib in advanced gastrointestinal stromal tumours (GIST).

01-11-2019

Oral oncology

Health-related quality of life of patients treated with chemoradiotherapy plus or minus prophylactic antibiotics to reduce the number of pneumonias for locally advanced head and neck cancer, the PANTAP study.

01-09-2019

European journal of nuclear medicine and molecular imaging

Lesion detection by [⁸⁹Zr]Zr-DFO-girentuximab and [¹⁸F]FDG-PET/CT in patients with newly diagnosed metastatic renal cell carcinoma.

01-08-2019

Nederlands tijdschrift voor geneeskunde

[Care for adolescents and young adults with cancer; the role of a national platform].

23-07-2019

Sarcoma

Survival and Cost-Effectiveness of Trabectedin Compared to Ifosfamide Monotherapy in Advanced Soft Tissue Sarcoma Patients.

10-07-2019

Acta oncologica (Stockholm, Sweden)

Association of pazopanib-induced toxicities with outcome of patients with advanced soft tissue sarcoma; a retrospective analysis based on the European Organisation for Research and Treatment of Cancer (EORTC) 62043 and 62072 clinical trials.

01-06-2019