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'This is not part of my life plan': A qualitative study on the psychosocial experiences and practical challenges in young adults with cancer age 25 to 39 years at diagnosis.

Emma Lidington ,
Carla Vlooswijk ,
Kate Stallard ,
Emily Travis ,
Eugenie Younger ,
Penelope Edwards ,
Meera Nandhabalan ,
Nikki Hunter ,
Neelam Sarpal ,
Denise Flett ,
Amy Din ,
Naureen Starling ,
James Larkin ,
Susannah Stanway ,
Marielle Nobbenhuis ,
Susana Banerjee ,
Zoltan Szucs ,
Anne-Sophie Darlington ,
Michael Gonzalez ,
Bhawna Sirohi ,
Winette T A van der Graaf ,
Olga Husson

Abstract

METHODS

We invited YAs diagnosed with cancer in the 5 years prior to enrolment at participating sites to take part in semi-structured interviews or focus groups. Transcripts were analysed using inductive thematic analysis. Two YA patients reviewed the results to ensure robustness.

CONCLUSION

The disruption of family and work life can lead to age-specific issues in YAs diagnosed with cancer. Age-tailored psychological and practical services must be considered.

RESULTS

Sixty-five YAs with varied diagnoses participated. Participants struggled to balance work, childcare and financial solvency with treatment. The halt in family and work life as well as changes in image and ability threatened participants' identity and perceived 'normality' as a YA, however, these also stimulated positive changes. YAs experienced social isolation from friends and family, including children. Many struggled to cope with uncertainty around treatment outcomes and disease recurrence.

OBJECTIVE

Adolescents and young adults with cancer face unique psychosocial and practical issues. However, patients across this group encounter different life experiences, cancer diagnoses and treatment settings given the tailored services for patients ages 15 to 24. Here, we qualitatively explore the psychosocial experiences and practical challenges of young adults (YAs) with cancer diagnosed between ages 25 and 39 in the United Kingdom.

More about this publication

European journal of cancer care

Volume 30
Issue nr. 5
Pages e13458
Publication date 01-09-2021

Full text links

Publisher website (DOI) 10.1111/ecc.13458
Europe PubMed Central 33942418
Pubmed 33942418

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