Publications

Patient education and counseling

What makes patient involvement work? Lessons learned from a qualitative study in adolescents and young adults with cancer.

01-10-2023

Journal of patient-reported outcomes

Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue.

13-09-2023

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

Elevated preoperative serum interleukin-6 level is predictive for worse postoperative outcome after soft tissue sarcoma surgery.

01-09-2023

The Lancet. Oncology

Common Sense Oncology: outcomes that matter.

01-08-2023

Acta oncologica (Stockholm, Sweden)

Involving adolescents and young adults (AYA) with an uncertain or poor cancer prognosis as research partners.

28-07-2023

Cancers

Caring for Adolescents and Young Adults (AYA) with Cancer: A Scoping Review into Caregiver Burdens and Needs.

20-06-2023

Journal of the National Cancer Institute

Financial outcomes of Adolescent and Young Adult cancer survivors: a longitudinal population-based registry study.

06-06-2023

Cancer medicine

Physical symptom burden in patients with desmoid-type fibromatosis and its impact on health-related quality of life and healthcare use.

01-06-2023

Cancer medicine

Learning from long-term adolescent and young adult (AYA) cancer survivors regarding their age-specific care needs to improve current AYA care programs.

01-06-2023

European journal of cancer (Oxford, England : 1990)

Defining the role of real-world data in cancer clinical research: The position of the European Organisation for Research and Treatment of Cancer.

01-06-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Psychological and social challenges of patients with locally advanced and metastatic gastrointestinal stromal tumours (GIST) on long-term treatment with tyrosine kinase inhibitors: a qualitative study with patients and medical oncologists.

26-05-2023

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

Pregnancy-associated desmoid fibromatosis: A Dutch multi-centre retrospective study.

01-05-2023

Cancer

Impaired social functioning in adolescent and young adult sarcoma survivors: Prevalence and risk factors.

01-05-2023

Frontiers in oncology

Recent advances on anti-angiogenic multi-receptor tyrosine kinase inhibitors in osteosarcoma and Ewing sarcoma.

31-03-2023

The New England journal of medicine

Nirogacestat, a γ-Secretase Inhibitor for Desmoid Tumors.

09-03-2023

Future oncology (London, England)

A patient's perspective on the side effects of tyrosine kinase inhibitors in the treatment of advanced and metastatic gastrointestinal stromal tumors.

01-02-2023

Clinical cancer research : an official journal of the American Association for Cancer Research

[89Zr]Zr-DFO-girentuximab and [18F]FDG PET/CT to Predict Watchful Waiting Duration in Patients with Metastatic Clear-cell Renal Cell Carcinoma.

01-02-2023

EClinicalMedicine

Desmoid is not a sarcoma; reply to Sachdev et al.

01-02-2023

European journal of cancer (Oxford, England : 1990)

Controversies in the management of patients with soft tissue sarcoma: Recommendations of the Conference on State of Science in Sarcoma 2022.

01-02-2023

Frontiers in pharmacology

Genome-wide analyses of platinum-induced ototoxicity in childhood cancer patients: Results of GO-CAT and United Kingdom MAGIC consortia.

27-01-2023

Frontiers in psychology

"Double awareness"-adolescents and young adults coping with an uncertain or poor cancer prognosis: A qualitative study.

03-01-2023

European journal of cancer (Oxford, England : 1990)

Comprehensive molecular profiling of sarcomas in adolescent and young adult patients: Results of the EORTC SPECTA-AYA international proof-of-concept study.

01-01-2023

European journal of cancer (Oxford, England : 1990)

EORTC is 60 - and far from contemplating retirement.

01-01-2023

Acta oncologica (Stockholm, Sweden)

Correlation of radiological and histopathological response after neoadjuvant radiotherapy in soft tissue sarcoma.

01-01-2023

Annals of surgical oncology

Prognosis of Patients with Cutaneous Angiosarcoma After Surgical Resection with Curative Intent: Is There a Difference Between the Subtypes?

01-01-2023

Cancer medicine

AYAs' online information and eHealth needs: A comparison with healthcare professionals' perceptions.

01-01-2023

Annals of surgical oncology

ASO Visual Abstract: Prognosis of Patients with Cutaneous Angiosarcoma After Surgical Resection with Curative Intent-Is There a Difference Between the Subtypes?

01-01-2023

JMIR formative research

Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study.

15-12-2022

Cancers

Fear of Cancer Recurrence in Sarcoma Survivors: Results from the SURVSARC Study.

11-12-2022

Cancers

Shedding a Light on the Challenges of Adolescents and Young Adults with Rhabdomyosarcoma.

09-12-2022

Frontiers in oncology

"Finding my way in a maze while the clock is ticking": The daily life challenges of adolescents and young adults with an uncertain or poor cancer prognosis.

03-12-2022

ESMO open

Sex differences in patients with gastrointestinal stromal tumours: do they exist and does it affect survival?

01-12-2022

Frontiers in pharmacology

SLC7A8 coding for LAT2 is associated with early disease progression in osteosarcoma and transports doxorubicin.

29-11-2022

Cancer treatment reviews

Retrospective observational studies in ultra-rare sarcomas: A consensus paper from the Connective Tissue Oncology Society (CTOS) community of experts on the minimum requirements for the evaluation of activity of systemic treatments.

01-11-2022

Annals of oncology : official journal of the European Society for Medical Oncology

ESMO Expert Consensus Statements on Cancer Survivorship: promoting high-quality survivorship care and research in Europe.

01-11-2022

Cancers

A Negative Body Image among Adolescent and Young Adult (AYA) Cancer Survivors: Results from the Population-Based SURVAYA Study.

26-10-2022

European journal of cancer (Oxford, England : 1990)

New benchmarks to design clinical trials with advanced or metastatic liposarcoma or synovial sarcoma patients: An EORTC - Soft Tissue and Bone Sarcoma Group (STBSG) meta-analysis based on a literature review for soft-tissue sarcomas.

01-10-2022

Seminars in cancer biology

Biology-guided precision medicine in rare cancers: Lessons from sarcomas and neuroendocrine tumours.

01-09-2022

Pediatric blood & cancer

Clinical trials in desmoid-type fibromatosis in children and adults: A systematic review.

01-09-2022

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Identifying health-related quality of life cut-off scores that indicate the need for supportive care in young adults with cancer.

01-09-2022

Cancers

Psychosocial Aspects of Living Long Term with Advanced Cancer and Ongoing Systemic Treatment: A Scoping Review.

11-08-2022

Cancer

First-line chemotherapy in advanced intra-abdominal well-differentiated/dedifferentiated liposarcoma: An EORTC Soft Tissue and Bone Sarcoma Group retrospective analysis.

01-08-2022

ESMO open

Short- and long-term impact of cancer on employment and financial outcomes of adolescents and young adults (AYAs): a large population-based case-control registry study in the Netherlands.

01-08-2022

Current oncology (Toronto, Ont.)

Recruiting Adolescent and Young Adult Cancer Survivors for Patient-Reported Outcome Research: Experiences and Sample Characteristics of the SURVAYA Study.

29-07-2022

Cancer

Psychosocial consequences of surviving cancer diagnosed and treated in childhood versus in adolescence/young adulthood: A call for clearer delineation between groups.

15-07-2022

European journal of cancer (Oxford, England : 1990)

Clustering of EORTC QLQ-C30 health-related quality of life scales across several cancer types: Validation study.

01-07-2022

Cancers

Unraveling Desmoid-Type Fibromatosis-Specific Health-Related Quality of Life: Who Is at Risk for Poor Outcomes.

16-06-2022

Sarcoma

Targeting the FAK-Src Complex in Desmoplastic Small Round Cell Tumors, Ewing Sarcoma, and Rhabdomyosarcoma.

04-06-2022

ESMO open

Systemic treatment of advanced clear cell sarcoma: results from a retrospective international series from the World Sarcoma Network.

01-06-2022

ESMO open

Setting the international research agenda for sarcoma together with patients and carers: first results of the Sarcoma Patient EuroNet (SPAEN) priority setting partnership.

01-06-2022