Publications

EClinicalMedicine

Health-related quality of life in patients with advanced soft tissue sarcoma receiving first-line palliative chemotherapy (HOLISTIC): longitudinal results from a prospective, observational cohort study.

Head & neck

Health-Related Quality of Life in Patients With a Head and Neck Sarcoma: A Mixed-Methods Study.

Cancer treatment reviews

Genomic distinctions in adolescent and young adult cancer: A comprehensive review.

Cancer treatment reviews

Overcoming the barriers to treatment of rare cancer patients in the era of precision oncology: A call to action.

Psycho-oncology

Health-Related Quality of Life in Adolescents and Young Adults With an Uncertain or Poor Cancer Prognosis: Quantitative Baseline Results of the CORD-AYA Study.

ESMO open

Minimum standards of specialist adolescent and young adult (AYA) cancer care units: recommendations and implementation roadmap.

01-10-2025

International journal of cancer

Socioeconomic impact among and socioeconomic support services for adolescents and young adults with cancer: A European perspective.

01-10-2025

The Lancet regional health. Europe

5-Year conditional relative survival of adolescents and young adults with solid malignancies in the Netherlands: a population-based cohort study.

01-10-2025

Journal of cancer survivorship : research and practice

Associations of adherence to the World Cancer Research Fund lifestyle recommendations with health-related quality of life and fatigue in Adolescent and Young Adult (AYA) cancer survivors: results from the SURVAYA study.

08-09-2025

The Lancet. Oncology

Importance of responder criteria for reporting health-related quality-of-life data in clinical trials for advanced cancer: recommendations of Common Sense Oncology and the European Organisation for Research and Treatment of Cancer.

01-09-2025

Psycho-oncology

Navigating Romantic Relationships and Sexual Intimacy: Challenges and Opportunities for Adolescents and Young Adults With Cancer - A Literature Review of Qualitative Studies.

01-09-2025

Journal of cancer survivorship : research and practice

Pre-treatment fertility preservation and post-treatment reproduction in long-term survivors of adolescent and young adult (AYA) cancer.

01-08-2025

Journal of cancer survivorship : research and practice

Health-related quality of life of long-term adolescent and young adult (AYA) cancer survivors compared to a matched normative population: results of the SURVAYA study.

17-06-2025

Journal of the National Cancer Center

Five-year conditional relative survival up to 10 years post-diagnosis among adolescent and young adult breast cancer patients by age, stage, and receptor subtype.

The Lancet. Oncology

Using patient-reported outcomes and health-related quality of life data in regulatory decisions on cancer treatment: highlights from an EMA-EORTC workshop.

ESMO open

The role of whole-genome sequencing for guiding systemic therapy in patients with soft tissue sarcoma.

Journal of cancer survivorship : research and practice

Adherence to the World Cancer Research Fund/American Institute for Cancer Research recommendations for cancer prevention in adolescent and young adult (AYA) cancer survivors: results from the SURVAYA study.

Studies in health technology and informatics

From Federated Learning to Publicly Facing Platform; Proof-of-Concept of the STRONG AYA Information Portal.

15-05-2025

European journal of cancer (Oxford, England : 1990)

Guidance for discussants of randomized cancer trials at major meetings.

02-05-2025

Patient education and counseling

Through the lens of oncologists when communicating with non-Western migrants about cancer diagnosis, treatment, and prognosis: Results from a Dutch online survey.

The Lancet. Oncology

Defining the role of pragmatic clinical trials in cancer clinical research: outcomes of a collaborative workshop hosted by the European Organisation for Research and Treatment of Cancer.

EClinicalMedicine

Genetic predisposition in sarcomas: clinical implications and management.

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Long-term health-related quality of life among adolescent and young adult breast cancer survivors.