Publications

Journal of cancer survivorship : research and practice

Patient-reported outcomes in cancer survivorship: insights from two decades of population-based PROFILES registry research.

01-06-2026

Journal of cancer survivorship : research and practice

Long-term cognitive function after treatment with immune checkpoint inhibition for melanoma.

05-05-2026

European journal of cancer (Oxford, England : 1990)

The development of the European Toolkit for the self-assessment of quality of life across the cancer care continuum (EUonQoL-Kit).

02-05-2026

Journal of medical Internet research

Time-Dynamic AI Models to Predict Quality of Life in Patients With Breast Cancer: Development and Validation Study Using the EORTC BALANCE Cohort.

30-04-2026

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Barriers and facilitators for implementing patient-reported outcome measures in oncology practices: an umbrella review.

10-04-2026

Psycho-oncology

Understanding Physical Activity in Patients With Metastatic Breast Cancer: An Analysis Rooted in the Theory of Planned Behaviour.

01-04-2026

Psycho-oncology

Managing Cancer and Living Meaningfully (CALM) for Patients With Metastatic Cancer and Treatment Response.

01-04-2026

Journal of cancer survivorship : research and practice

Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.

01-04-2026

Journal of cancer survivorship : research and practice

"Numbers call for action, personalized narratives provide support and recognition": a qualitative assessment of cancer patients' perspectives on patient-reported outcome measures (PROMs) feedback with narratives.

01-04-2026

The Lancet. Oncology

MRI-based personalisation of neoadjuvant chemotherapy duration in HER2-positive early breast cancer (TRAIN-3): primary results from a multicentre, single-arm, phase 2 study.

01-03-2026

Psycho-oncology

Death Anxiety During the Last Year of Life in Patients With Advanced Cancer: Longitudinal Results From the eQuiPe Study.

01-03-2026

Health psychology review

Maintenance of lifestyle changes following lifestyle interventions in breast cancer survivors: a systematic literature review.

01-03-2026

Breast cancer research : BCR

One size does not fit all: data-driven insights of patient-reported outcomes to tailor supportive care in breast cancer.

30-01-2026

Nature medicine

Neoadjuvant ipilimumab and nivolumab in resectable cutaneous squamous cell carcinoma: a randomized phase 2 trial.

01-12-2025

PloS one

Determinants and timing of lifestyle changes in postmenopausal breast cancer survivors: A longitudinal qualitative study.

24-11-2025

Hematological oncology

Fatigue, Neuropathy and Psychological Distress and Their Association With Health-Related Quality of Life in Survivors of Diffuse Large B-Cell Lymphoma: A Prospective Cohort Study and Comparison With a Normative Population.

01-11-2025

Annals of oncology : official journal of the European Society for Medical Oncology

Health-related quality of life of patients with metastatic melanoma treated with tumor-infiltrating lymphocytes compared with ipilimumab in a randomized phase III trial.

01-10-2025

PloS one

Association of ageing-related biomarkers with peripheral neuropathy in colorectal cancer patients up to 2 years after diagnosis.

26-09-2025

European journal of cancer (Oxford, England : 1990)

The association between pretreatment emotional distress and response to tumor-infiltrating lymphocyte therapy in advanced melanoma.

09-09-2025

ESMO real world data and digital oncology

Opportunities and challenges in pooling health-related quality-of-life data for prediction modeling in breast cancer across Europe: lessons from the EORTC BALANCE project.

01-09-2025

Cancer

Empowerment and quality of life in gynecological cancer survivors: Outcomes from a multicenter quasi-experimental cohort study from Norway (the LETSGO trial).

15-08-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Differences in travel burden between patients with self-reported curable and incurable cancer: results from a Dutch flash mob study.

23-06-2025

Journal of cancer survivorship : research and practice

Prevalence of and factors associated with clinically important levels of fatigue, pain, and insomnia in survivors of cancer: a population-based cross-sectional study.

14-06-2025

Journal of cancer survivorship : research and practice

Return to work after neoadjuvant versus adjuvant immunotherapy in stage III melanoma patients.

26-05-2025

European journal of cancer (Oxford, England : 1990)

Flexibility in patient-reported outcome and health-related quality of life measurement: The EORTC Quality of Life Group measurement strategy.

02-05-2025

Nature reviews. Disease primers

Cutaneous melanoma.

03-04-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Screening for cognitive impairment in routine clinical oncology practice: a pilot study using patient-reported outcome measures and online cognitive testing in melanoma and breast cancer patients.

12-03-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Socioeconomic disparities in health-related quality of life and healthcare use in the last year of life of patients with advanced cancer: longitudinal results from the eQuiPe study.

11-03-2025

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Exploring the role of health-related quality of life measures in predictive modelling for oncology: a systematic review.

01-02-2025

Palliative medicine

Changes in perception of prognosis in the last year of life of patients with advanced cancer and its associated factors: Longitudinal results of the eQuiPe study.

01-02-2025

Journal of cancer survivorship : research and practice

"One more chance to survive": the experiences of patients with advanced melanoma and their partners with tumor-infiltrating lymphocyte therapy-a qualitative study and recommendations for future care.

01-02-2025

Nederlands tijdschrift voor geneeskunde

[Trajectories of health-related quality of life and symptom burden in patients with advanced cancer towards the end of life: longitudinal results from the eQuiPe study].

16-01-2025

Gynecologic oncology

Less is more: The benefits of reduced follow-up in gynecologic cancers.

01-01-2025

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.

01-01-2025

The Lancet. Oncology

Capturing the true effect of anti-PD-1 therapy on patients' health-related quality of life.

01-12-2024

Annals of hematology

Impact of comorbidity on health-related quality of life in newly diagnosed patients with lymphoma or multiple myeloma: results from the PROFILES-registry.

01-12-2024

European journal of oncology nursing : the official journal of European Oncology Nursing Society

Self-perceived cognitive impairment in the first year after breast cancer and the identification of at-risk patients.

01-10-2024

Gynecologic oncology

Effect of reduced follow-up care on patient satisfaction with care among patients with endometrial cancer: The ENSURE randomized controlled trial.

01-09-2024

European journal of cancer (Oxford, England : 1990)

Understanding quality of life issues in patients with advanced melanoma: Phase 1 and 2 in the development of the EORTC advanced melanoma module.

01-08-2024

JAMA network open

Patient- vs Physician-Initiated Response to Symptom Monitoring and Health-Related Quality of Life: The SYMPRO-Lung Cluster Randomized Trial.

01-08-2024

Breast (Edinburgh, Scotland)

Seizing the moment: The time for harnessing electronic patient-reported outcome measures for enhanced and sustainable metastatic breast cancer care is now.

01-04-2024

Journal of cancer survivorship : research and practice

Cancer worry is associated with increased use of supportive health care-results from the multinational InCHARGE study.

01-02-2024

Breast disease

Course of objectively measured physical activity and sleep in postmenopausal breast cancer survivors during the COVID-19 pandemic: A 1-year follow-up.

25-12-2023

Journal of the National Cancer Institute

Quality of life after patient-initiated vs physician-initiated response to symptom monitoring: the SYMPRO-Lung trial.

06-12-2023

Seminars in oncology nursing

Patient-Reported Outcome Measures to Improve the Care Continuum for Patients With Metastatic Breast Cancer: Opportunities and Implications for Nursing Practice.

01-12-2023

Psycho-oncology

Trajectories of emotional functioning and experienced care of relatives in the last year of life of patients with advanced cancer: A longitudinal analysis of the eQuiPe study.

01-12-2023

Nature medicine

Association between pretreatment emotional distress and neoadjuvant immune checkpoint blockade response in melanoma.

01-12-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Potentially inappropriate end-of-life care and its association with relatives' well-being: a systematic review.

30-11-2023

Blood advances

International validation of a health-related quality-of-life questionnaire for Hodgkin lymphoma: the EORTC QLQ-HL27.

28-11-2023

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Health-related quality of life after stereotactic radiosurgery in patients with brain metastases.

27-11-2023