Publications

Oral oncology

Health-related quality of life of patients treated with chemoradiotherapy plus or minus prophylactic antibiotics to reduce the number of pneumonias for locally advanced head and neck cancer, the PANTAP study.

01-09-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Presence of gastro-intestinal symptoms in ovarian cancer patients during survivorship: a cross-sectional study from the PROFILES registry.

01-06-2019

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Cancer survivors not participating in observational patient-reported outcome studies have a lower survival compared to participants: the population-based PROFILES registry.

01-12-2018

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Identification and assessment of health-related quality of life issues in patients with sporadic desmoid-type fibromatosis: a literature review and focus group study.

01-12-2018

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Health-related quality of life among cancer patients in their last year of life: results from the PROFILES registry.

01-10-2018

Acta oncologica (Stockholm, Sweden)

Reference data of the EORTC QLQ-C30 questionnaire: five consecutive annual assessments of approximately 2000 representative Dutch men and women.

01-10-2018

Psycho-oncology

Association between information provision and supportive care needs among ovarian cancer survivors: A cross-sectional study from the PROFILES registry.

01-08-2018

Health and quality of life outcomes

Understanding the quality of life (QOL) issues in survivors of cancer: towards the development of an EORTC QOL cancer survivorship questionnaire.

04-06-2018

Journal of cancer survivorship : research and practice

Identifying the subtypes of cancer-related fatigue: results from the population-based PROFILES registry.

01-02-2018

Trials

Lymphoma InterVEntion (LIVE) - patient-reported outcome feedback and a web-based self-management intervention for patients with lymphoma: study protocol for a randomised controlled trial.

28-04-2017

Acta oncologica (Stockholm, Sweden)

Adolescent and young adult (AYA) lymphoma survivors report lower health-related quality of life compared to a normative population: results from the PROFILES registry.

01-02-2017

European journal of cancer (Oxford, England : 1990)

Reference data of the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-CIPN20 Questionnaire in the general Dutch population.

01-12-2016