Publications

Neuro-oncology practice

Symptom burden in young adult brain tumor survivors: Key intervention targets based on patient-reported outcome network analyses.

Annals of surgical oncology

ASO Visual Abstract: Patient and Tumor Factors Influencing Diagnostic Trajectories in Gastrointestinal Stromal Tumor Patients and Their Impact on Health-Related Quality of Life: A Dutch Multicenter Study.

Annals of surgical oncology

Patient and Tumor Factors Influencing Diagnostic Trajectories in Gastrointestinal Stromal Tumor Patients and Their Impact on Health-Related Quality of Life: A Dutch Multicenter Study.

Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland

Quality of life assessment for colorectal cancer follow-up: A latent profile analysis of EORTC measures.

European journal of cancer (Oxford, England : 1990)

The European Organisation for Research and Treatment of Cancer Quality of Life Group: Past achievements and future priorities in patient-reported outcomes in oncology.

22-07-2026

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Self-reported peripheral neuropathic symptoms in long-term adolescent and young adult (AYA) cancer survivors: results of the SURVAYA study.

02-07-2026

Radiography (London, England : 1995)

Independent patient access to imaging digital health records: Oncology patients' and healthcare professionals' views and preferences.

Annals of surgical oncology

Understanding Physical Functioning in Patients with Sarcoma After Amputation: Using an International Classification of Functioning, Disability and Health (ICF) Approach.

Thyroid : official journal of the American Thyroid Association

Prospective Predictors of Poor Emotional Functioning in Patients with Differentiated Thyroid Carcinoma.

Annals of surgical oncology

ASO Author Reflections: Physical Functioning in Patients with Sarcoma After Amputation: Are Current Questionnaires Fit for Purpose?

Journal of medical genetics

Perspectives of adolescents and young adults with advanced cancer on complete genomic analysis in standard oncology care.

25-06-2026

Current oncology (Toronto, Ont.)

Coping with an Uncertain or Poor Cancer Prognosis as an Adolescent or Young Adult: A Cross-Sectional Cluster Analysis.

23-06-2026

European journal of cancer (Oxford, England : 1990)

Prognostic value for overall survival of the EORTC QLQ-C30 Summary Score: An analysis of 5 closed EORTC trials.

18-06-2026

Current oncology (Toronto, Ont.)

Quality of Life and Healthcare Experiences of Patients with Anal Cancer: A Mixed-Methods Study.

05-05-2026

BMJ open

Pre-diagnostic route reported by patients with sarcoma from the Netherlands, the UK, Australia and New Zealand: early detection challenges for general practitioners - an international observational cohort study.

04-05-2026

Cancer imaging : the official publication of the International Cancer Imaging Society

Improving patient understanding of oncology imaging: radiologist and patient evaluation of summarised versus full-length AI-simplified reports from a tertiary cancer centre.

13-04-2026

Journal of cancer survivorship : research and practice

Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.

01-04-2026

Journal of cancer survivorship : research and practice

Hospitalization for medical conditions in adolescent and young adult cancer survivors: a nationwide cohort study using the Netherlands Cancer Registry.

07-03-2026

Clinical breast cancer

Long-Term Health Issues of Adolescent and Young Adult Breast Cancer Survivors.

01-03-2026

Health and quality of life outcomes

Incorporating patients' input in the development and validation of patient-reported outcome measures in oncology: a comprehensive scoping review.

18-02-2026

JAMA otolaryngology-- head & neck surgery

Patient-Reported Outcomes Across Treatment Strategies in Papillary Thyroid Microcarcinoma: A Meta-Analysis.

01-02-2026

Journal of cancer survivorship : research and practice

Prevalence and determinants of sleep problems in cancer survivors compared to a normative population: a PROFILES registry study.

01-02-2026

Cancers

Understanding the Experiences of Adolescents and Young Adults Diagnosed with Cancer During Higher Education-An Exploratory Interview Study.

20-01-2026

JCO clinical cancer informatics

Knowledge Representation of a Multicenter Adolescent and Young Adult Cancer Infrastructure: Development of the STRONG AYA Knowledge Graph.

01-01-2026

The Lancet. Oncology

Development of a core outcome set for adolescents and young adults with cancer.

01-01-2026

The British journal of surgery

Health-related quality of life of patients undergoing active surveillance versus standard surgery for oesophageal cancer (SANO trial).

24-12-2025

Journal of cancer survivorship : research and practice

Health-related conditions among long-term cancer survivors diagnosed in adolescence and young adulthood (AYA): results of the SURVAYA study.

01-12-2025

JAMA network open

Development of a Health-Related Quality of Life Tool for Adolescents and Young Adults With Cancer.

01-12-2025

Journal of cancer education : the official journal of the American Association for Cancer Education

The Role of Health Literacy in Perceived Information Provision, Satisfaction, and Health-related Quality of Life Among Rare and Common Cancer Patients: A Population-based Registry Study.

05-11-2025

EClinicalMedicine

Health-related quality of life in patients with advanced soft tissue sarcoma receiving first-line palliative chemotherapy (HOLISTIC): longitudinal results from a prospective, observational cohort study.

01-11-2025

Head & neck

Health-Related Quality of Life in Patients With a Head and Neck Sarcoma: A Mixed-Methods Study.

01-11-2025

Psycho-oncology

Health-Related Quality of Life in Adolescents and Young Adults With an Uncertain or Poor Cancer Prognosis: Quantitative Baseline Results of the CORD-AYA Study.

01-11-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Effect of a digital tool on breast cancer specific health-related quality of life and psychological distress: secondary results from the ADAPT study.

08-10-2025

Journal of cancer survivorship : research and practice

'There is still a part of me that would love to be the old me again', how do adolescents and young adults (AYA) experience cancer-related bodily changes: a phenomenological interview study.

01-10-2025

International journal of cancer

Socioeconomic impact among and socioeconomic support services for adolescents and young adults with cancer: A European perspective.

01-10-2025

The Lancet regional health. Europe

5-Year conditional relative survival of adolescents and young adults with solid malignancies in the Netherlands: a population-based cohort study.

01-10-2025

Current oncology (Toronto, Ont.)

'What Really Goes on in My Cancer Bubble, They Cannot Understand': Social Functioning Among Adolescent and Young Adult (AYA) Cancer Patients.

09-09-2025

Journal of cancer survivorship : research and practice

Associations of adherence to the World Cancer Research Fund lifestyle recommendations with health-related quality of life and fatigue in Adolescent and Young Adult (AYA) cancer survivors: results from the SURVAYA study.

08-09-2025

Psycho-oncology

Navigating Romantic Relationships and Sexual Intimacy: Challenges and Opportunities for Adolescents and Young Adults With Cancer - A Literature Review of Qualitative Studies.

Hormones (Athens, Greece)

Quality of life in thyroid cancer survivors with and without permanent hypoparathyroidism.

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

Impact of minimal invasive surgery techniques on long-term health-related quality of life in rectal cancer: a Dutch cohort study.

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

Reply to: Comment on "Impact of minimally invasive surgery techniques on long-term health-related quality of life in rectal cancer: A Dutch cohort study.