Publications

Familial cancer

Patient-reported burden of intensified surveillance and surgery in high-risk individuals under pancreatic cancer surveillance.

01-07-2020

Psycho-oncology

Unmet information needs of men with breast cancer and health professionals.

01-05-2020

European journal of cancer care

The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.

01-01-2020

Pancreatology : official journal of the International Association of Pancreatology (IAP) ... [et al.]

Pancreatic cyst surveillance imposes low psychological burden.

01-12-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Evaluating a professional patient navigation intervention in a supportive care setting.

01-09-2019

BMC medical informatics and decision making

The impact of an online patient decision aid for women with breast cancer considering immediate breast reconstruction: study protocol of a multicenter randomized controlled trial.

19-08-2019

Familial cancer

Genetic counselling of young women with breast cancer for Li-Fraumeni syndrome: a nationwide survey on the experiences and attitudes of genetics professionals.

01-04-2019

Familial cancer

The uptake of presymptomatic genetic testing in hereditary breast-ovarian cancer and Lynch syndrome: a systematic review of the literature and implications for clinical practice.

01-01-2019

BMC cancer

Light therapy as a treatment of cancer-related fatigue in (non-)Hodgkin lymphoma survivors (SPARKLE trial): study protocol of a multicenter randomized controlled trial.

10-09-2018

The Journal of clinical endocrinology and metabolism

High Fear of Disease Occurrence Is Associated With Low Quality of Life in Patients With Multiple Endocrine Neoplasia Type 1: Results From the Dutch MEN1 Study Group.

01-06-2018

European journal of cancer care

Phase III study of the European Organisation for Research and Treatment of Cancer satisfaction with cancer care core questionnaire (EORTC PATSAT-C33) and specific complementary outpatient module (EORTC OUT-PATSAT7).

01-01-2018

JAMA oncology

Baseline Surveillance in Li-Fraumeni Syndrome Using Whole-Body Magnetic Resonance Imaging: A Meta-analysis.

01-12-2017

JAMA oncology

Surveillance of Dutch Patients With Li-Fraumeni Syndrome: The LiFe-Guard Study.

01-12-2017

Journal of surgical oncology

Rapid genetic counseling and testing in newly diagnosed breast cancer: Patients' and health professionals' attitudes, experiences, and evaluation of effects on treatment decision making.

01-12-2017

European journal of cancer (Oxford, England : 1990)

Hormone replacement therapy after risk-reducing salpingo-oophorectomy minimises endocrine and sexual problems: A prospective study.

01-10-2017

Disability and rehabilitation

Cancer survivors' perspectives and experiences regarding behavioral determinants of return to work and continuation of work.

01-10-2017

European journal of cancer care

A behavioural approach in the development of work-related interventions for cancer survivors: an exploratory review.

01-09-2017

BMC public health

Cancer and heart attack survivors' expectations of employment status: results from the English Longitudinal Study of Ageing.

07-08-2017

BMC cancer

Colorectal cancer surveillance in Hodgkin lymphoma survivors at increased risk of therapy-related colorectal cancer: study design.

07-02-2017

Familial cancer

Factors associated with cancer worries in individuals participating in annual pancreatic cancer surveillance.

01-01-2017

Psycho-oncology

Repeated participation in pancreatic cancer surveillance by high-risk individuals imposes low psychological burden.

01-08-2016

Journal of genetic counseling

Communication Between Breast Cancer Patients Who Received Inconclusive Genetic Test Results and Their Daughters and Sisters Years After Testing.

01-06-2016

Genetics in medicine : official journal of the American College of Medical Genetics

Does rapid genetic counseling and testing in newly diagnosed breast cancer patients cause additional psychosocial distress? results from a randomized clinical trial.

01-02-2016

Familial cancer

Prevalence and detection of psychosocial problems in cancer genetic counseling.

01-12-2015

Journal of medical genetics

Hereditary diffuse gastric cancer: updated clinical guidelines with an emphasis on germline CDH1 mutation carriers.

01-06-2015

Human reproduction (Oxford, England)

Do children make you happier? Sustained child-wish and mental health in women 11-17 years after fertility treatment.

10-10-2014

Psycho-oncology

Psychosocial aspects of hereditary cancer (PAHC) questionnaire: development and testing of a screening questionnaire for use in clinical cancer genetics.

01-08-2014

Clinical genetics

Active approach for breast cancer genetic counseling during radiotherapy: long-term psychosocial and medical impact.

01-06-2014

Journal of genetic counseling

Specific psychosocial issues of individuals undergoing genetic counseling for cancer - a literature review.

01-04-2014

British journal of cancer

Impact of rapid genetic counselling and testing on the decision to undergo immediate or delayed prophylactic mastectomy in newly diagnosed breast cancer patients: findings from a randomised controlled trial.

18-02-2014

BMC cancer

The efficacy of a standardized questionnaire in facilitating personalized communication about problems encountered in cancer genetic counseling: design of a randomized controlled trial.

15-01-2014

Breast (Edinburgh, Scotland)

Breast cancer in women at high risk: the role of rapid genetic testing for BRCA1 and -2 mutations and the consequences for treatment strategies.

01-10-2013

Familial cancer

100 years Lynch syndrome: what have we learned about psychosocial issues?

01-06-2013

Cancer nursing

The Cancer Worry Scale: detecting fear of recurrence in breast cancer survivors.

02-03-2013

Patient education and counseling

Breast cancer genetic counseling after diagnosis but before treatment: a pilot study on treatment consequences and psychological impact.

01-10-2012

Familial cancer

Familial gastric cancer: guidelines for diagnosis, treatment and periodic surveillance.

01-09-2012

Genetics in medicine : official journal of the American College of Medical Genetics

Compliance with periodic surveillance for Von-Hippel-Lindau disease.

01-06-2011

Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland

Quality of life and consequences for daily life of familial adenomatous polyposis (FAP) family members.

01-06-2011

Psycho-oncology

Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes.

01-06-2011

Plastic and reconstructive surgery

Temporary banking of the nipple-areola complex in 97 skin-sparing mastectomies.

01-02-2011

Psycho-oncology

Psychological distress and quality of life of partners of individuals with familial adenomatous polyposis.

01-02-2011

BMC cancer

Behavioral and psychosocial effects of rapid genetic counseling and testing in newly diagnosed breast cancer patients: design of a multicenter randomized clinical trial.

10-01-2011

Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland

Long-term compliance with endoscopic surveillance for familial adenomatous polyposis.

01-12-2010

Familial cancer

Regular surveillance for Li-Fraumeni Syndrome: advice, adherence and perceived benefits.

01-12-2010

Journal of clinical oncology : official journal of the American Society of Clinical Oncology

Genetic testing in Li-Fraumeni syndrome: uptake and psychosocial consequences.

20-06-2010

Clinical genetics

Psychosocial impact of Von Hippel-Lindau disease: levels and sources of distress.

01-05-2010

Psycho-oncology

Psychological distress and use of psychosocial support in familial adenomatous polyposis.

01-03-2010

European journal of human genetics : EJHG

Attitudes toward genetic testing in childhood and reproductive decision-making for familial adenomatous polyposis.

01-02-2010

Familial cancer

Attitude towards pre-implantation genetic diagnosis for hereditary cancer.

31-07-2009

Psycho-oncology

Psychosocial issues in genetic testing for familial adenomatous polyposis: a review of the literature.

01-08-2008

Patient-reported burden of intensified surveillance and surgery in high-risk individuals under pancreatic cancer surveillance.

Unmet information needs of men with breast cancer and health professionals.

The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.

Pancreatic cyst surveillance imposes low psychological burden.

Evaluating a professional patient navigation intervention in a supportive care setting.

The impact of an online patient decision aid for women with breast cancer considering immediate breast reconstruction: study protocol of a multicenter randomized controlled trial.

Genetic counselling of young women with breast cancer for Li-Fraumeni syndrome: a nationwide survey on the experiences and attitudes of genetics professionals.

The uptake of presymptomatic genetic testing in hereditary breast-ovarian cancer and Lynch syndrome: a systematic review of the literature and implications for clinical practice.

Light therapy as a treatment of cancer-related fatigue in (non-)Hodgkin lymphoma survivors (SPARKLE trial): study protocol of a multicenter randomized controlled trial.

High Fear of Disease Occurrence Is Associated With Low Quality of Life in Patients With Multiple Endocrine Neoplasia Type 1: Results From the Dutch MEN1 Study Group.

Phase III study of the European Organisation for Research and Treatment of Cancer satisfaction with cancer care core questionnaire (EORTC PATSAT-C33) and specific complementary outpatient module (EORTC OUT-PATSAT7).

Baseline Surveillance in Li-Fraumeni Syndrome Using Whole-Body Magnetic Resonance Imaging: A Meta-analysis.

Surveillance of Dutch Patients With Li-Fraumeni Syndrome: The LiFe-Guard Study.

Rapid genetic counseling and testing in newly diagnosed breast cancer: Patients' and health professionals' attitudes, experiences, and evaluation of effects on treatment decision making.

Hormone replacement therapy after risk-reducing salpingo-oophorectomy minimises endocrine and sexual problems: A prospective study.

Cancer survivors' perspectives and experiences regarding behavioral determinants of return to work and continuation of work.

A behavioural approach in the development of work-related interventions for cancer survivors: an exploratory review.

Cancer and heart attack survivors' expectations of employment status: results from the English Longitudinal Study of Ageing.

Colorectal cancer surveillance in Hodgkin lymphoma survivors at increased risk of therapy-related colorectal cancer: study design.

Factors associated with cancer worries in individuals participating in annual pancreatic cancer surveillance.

Repeated participation in pancreatic cancer surveillance by high-risk individuals imposes low psychological burden.

Communication Between Breast Cancer Patients Who Received Inconclusive Genetic Test Results and Their Daughters and Sisters Years After Testing.

Does rapid genetic counseling and testing in newly diagnosed breast cancer patients cause additional psychosocial distress? results from a randomized clinical trial.

Prevalence and detection of psychosocial problems in cancer genetic counseling.

Hereditary diffuse gastric cancer: updated clinical guidelines with an emphasis on germline CDH1 mutation carriers.

Do children make you happier? Sustained child-wish and mental health in women 11-17 years after fertility treatment.

Psychosocial aspects of hereditary cancer (PAHC) questionnaire: development and testing of a screening questionnaire for use in clinical cancer genetics.

Active approach for breast cancer genetic counseling during radiotherapy: long-term psychosocial and medical impact.

Specific psychosocial issues of individuals undergoing genetic counseling for cancer - a literature review.

Impact of rapid genetic counselling and testing on the decision to undergo immediate or delayed prophylactic mastectomy in newly diagnosed breast cancer patients: findings from a randomised controlled trial.

The efficacy of a standardized questionnaire in facilitating personalized communication about problems encountered in cancer genetic counseling: design of a randomized controlled trial.

Breast cancer in women at high risk: the role of rapid genetic testing for BRCA1 and -2 mutations and the consequences for treatment strategies.

100 years Lynch syndrome: what have we learned about psychosocial issues?

The Cancer Worry Scale: detecting fear of recurrence in breast cancer survivors.

Breast cancer genetic counseling after diagnosis but before treatment: a pilot study on treatment consequences and psychological impact.

Familial gastric cancer: guidelines for diagnosis, treatment and periodic surveillance.

Compliance with periodic surveillance for Von-Hippel-Lindau disease.

Quality of life and consequences for daily life of familial adenomatous polyposis (FAP) family members.

Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes.

Temporary banking of the nipple-areola complex in 97 skin-sparing mastectomies.

Psychological distress and quality of life of partners of individuals with familial adenomatous polyposis.

Behavioral and psychosocial effects of rapid genetic counseling and testing in newly diagnosed breast cancer patients: design of a multicenter randomized clinical trial.

Long-term compliance with endoscopic surveillance for familial adenomatous polyposis.

Regular surveillance for Li-Fraumeni Syndrome: advice, adherence and perceived benefits.

Genetic testing in Li-Fraumeni syndrome: uptake and psychosocial consequences.

Psychosocial impact of Von Hippel-Lindau disease: levels and sources of distress.

Psychological distress and use of psychosocial support in familial adenomatous polyposis.

Attitudes toward genetic testing in childhood and reproductive decision-making for familial adenomatous polyposis.

Attitude towards pre-implantation genetic diagnosis for hereditary cancer.

Psychosocial issues in genetic testing for familial adenomatous polyposis: a review of the literature.

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