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The socioeconomic impact of cancer on patients and their relatives: Organisation of European Cancer Institutes task force consensus recommendations on conceptual framework, taxonomy, and research directions.

Michael Schlander ,
Wim van Harten ,
Valesca P Retèl ,
Phu Duy Pham ,
Julie M Vancoppenolle ,
Jasper Ubels ,
Olaya Seoane López ,
Camila Quirland ,
Felipe Maza ,
Eline Aas ,
Bernd Crusius ,
Agustín Escobedo ,
Nora Franzen ,
Jeanette Fuentes-Cid ,
Diego Hernandez ,
Karla Hernandez-Villafuerte ,
Iva Kirac ,
Artus Paty ,
Thierry Philip ,
Sigbjørn Smeland ,
Richard Sullivan ,
Elena Vanni ,
Sinisa Varga ,
Thomas Vermeulin ,
Rachel D Eckford

Abstract

Loss of income and out-of-pocket expenditures are important causes of financial hardship in many patients with cancer, even in high-income countries. The far-reaching consequences extend beyond the patients themselves to their relatives, including caregivers and dependents. European research to date has been limited and is hampered by the absence of a coherent theoretical framework and by heterogeneous methods and terminology. To address these shortages, a task force initiated by the Organisation of European Cancer Institutes (OECI) produced 25 recommendations, including a comprehensive definition of socioeconomic impact from the perspective of patients and their relatives, a conceptual framework, and a consistent taxonomy linked to the framework. The OECI task force consensus statement highlights directions for future research with a view towards policy relevance. Beyond descriptive studies into the dimension of the problem, individual severity and predictors of vulnerability should be explored. It is anticipated that the consensus recommendations will facilitate and enhance future research efforts into the socioeconomic impact of cancer and cancer care, providing a crucial reference point for the development and validation of patient-reported outcome instruments aimed at measuring its broader effects.

More about this publication

The Lancet. Oncology

Volume 25
Issue nr. 4
Pages e152-e163
Publication date 01-04-2024

Full text links

Publisher website (DOI) 10.1016/S1470-2045(23)00636-8
Europe PubMed Central 38547899
Pubmed 38547899

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