Publications

BMJ open

Pre-diagnostic route reported by patients with sarcoma from the Netherlands, the UK, Australia and New Zealand: early detection challenges for general practitioners - an international observational cohort study.

04-05-2026

European journal of cancer (Oxford, England : 1990)

Prognostic value for overall survival of the EORTC QLQ-C30 Summary Score: An analysis of 5 closed EORTC trials.

30-04-2026

Thyroid : official journal of the American Thyroid Association

Prospective Predictors of Poor Emotional Functioning in Patients with Differentiated Thyroid Carcinoma.

13-04-2026

Cancer imaging : the official publication of the International Cancer Imaging Society

Improving patient understanding of oncology imaging: radiologist and patient evaluation of summarised versus full-length AI-simplified reports from a tertiary cancer centre.

13-04-2026

Annals of surgical oncology

Understanding Physical Functioning in Patients with Sarcoma After Amputation: Using an International Classification of Functioning, Disability and Health (ICF) Approach.

05-04-2026

Journal of cancer survivorship : research and practice

Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.

01-04-2026

Journal of medical genetics

Perspectives of adolescents and young adults with advanced cancer on complete genomic analysis in standard oncology care.

27-03-2026

Annals of surgical oncology

ASO Author Reflections: Physical Functioning in Patients with Sarcoma After Amputation: Are Current Questionnaires Fit for Purpose?

13-03-2026

Journal of cancer survivorship : research and practice

Hospitalization for medical conditions in adolescent and young adult cancer survivors: a nationwide cohort study using the Netherlands Cancer Registry.

07-03-2026

Clinical breast cancer

Long-Term Health Issues of Adolescent and Young Adult Breast Cancer Survivors.

01-03-2026

Health and quality of life outcomes

Incorporating patients' input in the development and validation of patient-reported outcome measures in oncology: a comprehensive scoping review.

18-02-2026

JAMA otolaryngology-- head & neck surgery

Patient-Reported Outcomes Across Treatment Strategies in Papillary Thyroid Microcarcinoma: A Meta-Analysis.

01-02-2026

Journal of cancer survivorship : research and practice

Prevalence and determinants of sleep problems in cancer survivors compared to a normative population: a PROFILES registry study.

01-02-2026

Cancers

Understanding the Experiences of Adolescents and Young Adults Diagnosed with Cancer During Higher Education-An Exploratory Interview Study.

20-01-2026

JCO clinical cancer informatics

Knowledge Representation of a Multicenter Adolescent and Young Adult Cancer Infrastructure: Development of the STRONG AYA Knowledge Graph.

01-01-2026

The Lancet. Oncology

Development of a core outcome set for adolescents and young adults with cancer.

01-01-2026

The British journal of surgery

Health-related quality of life of patients undergoing active surveillance versus standard surgery for oesophageal cancer (SANO trial).

24-12-2025

Journal of cancer survivorship : research and practice

Health-related conditions among long-term cancer survivors diagnosed in adolescence and young adulthood (AYA): results of the SURVAYA study.

01-12-2025

JAMA network open

Development of a Health-Related Quality of Life Tool for Adolescents and Young Adults With Cancer.

01-12-2025

Journal of cancer education : the official journal of the American Association for Cancer Education

The Role of Health Literacy in Perceived Information Provision, Satisfaction, and Health-related Quality of Life Among Rare and Common Cancer Patients: A Population-based Registry Study.

05-11-2025

EClinicalMedicine

Health-related quality of life in patients with advanced soft tissue sarcoma receiving first-line palliative chemotherapy (HOLISTIC): longitudinal results from a prospective, observational cohort study.

01-11-2025

Head & neck

Health-Related Quality of Life in Patients With a Head and Neck Sarcoma: A Mixed-Methods Study.

01-11-2025

Psycho-oncology

Health-Related Quality of Life in Adolescents and Young Adults With an Uncertain or Poor Cancer Prognosis: Quantitative Baseline Results of the CORD-AYA Study.

01-11-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Effect of a digital tool on breast cancer specific health-related quality of life and psychological distress: secondary results from the ADAPT study.

08-10-2025

Journal of cancer survivorship : research and practice

'There is still a part of me that would love to be the old me again', how do adolescents and young adults (AYA) experience cancer-related bodily changes: a phenomenological interview study.

01-10-2025

International journal of cancer

Socioeconomic impact among and socioeconomic support services for adolescents and young adults with cancer: A European perspective.

01-10-2025

The Lancet regional health. Europe

5-Year conditional relative survival of adolescents and young adults with solid malignancies in the Netherlands: a population-based cohort study.

01-10-2025

Current oncology (Toronto, Ont.)

'What Really Goes on in My Cancer Bubble, They Cannot Understand': Social Functioning Among Adolescent and Young Adult (AYA) Cancer Patients.

09-09-2025

Journal of cancer survivorship : research and practice

Associations of adherence to the World Cancer Research Fund lifestyle recommendations with health-related quality of life and fatigue in Adolescent and Young Adult (AYA) cancer survivors: results from the SURVAYA study.

08-09-2025

Psycho-oncology

Navigating Romantic Relationships and Sexual Intimacy: Challenges and Opportunities for Adolescents and Young Adults With Cancer - A Literature Review of Qualitative Studies.

01-09-2025

Hormones (Athens, Greece)

Quality of life in thyroid cancer survivors with and without permanent hypoparathyroidism.

01-09-2025

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

Impact of minimal invasive surgery techniques on long-term health-related quality of life in rectal cancer: a Dutch cohort study.

01-09-2025

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

Reply to: Comment on "Impact of minimally invasive surgery techniques on long-term health-related quality of life in rectal cancer: A Dutch cohort study.

01-09-2025

European journal of cancer (Oxford, England : 1990)

Patient-led follow-up after curative colorectal cancer surgery: The primary outcome analysis of the prospective, multicentre FUTURE-primary implementation study.

26-08-2025

Journal of cancer survivorship : research and practice

Pre-treatment fertility preservation and post-treatment reproduction in long-term survivors of adolescent and young adult (AYA) cancer.

01-08-2025

JMIR formative research

Developing and Integrating Digital Sources in an Accessible and Sustainable Online Platform for Adolescents and Young Adult Cancer Survivors: Collaborative Design Approach.

11-07-2025

Sleep medicine

Sleep quality and overall survival among cancer survivors in the Netherlands: A PROFILES registry study.

01-07-2025

Journal of cancer survivorship : research and practice

Health-related quality of life of long-term adolescent and young adult (AYA) cancer survivors compared to a matched normative population: results of the SURVAYA study.

17-06-2025

Journal of the National Cancer Center

Five-year conditional relative survival up to 10 years post-diagnosis among adolescent and young adult breast cancer patients by age, stage, and receptor subtype.

01-06-2025

Journal of cancer survivorship : research and practice

Adherence to the World Cancer Research Fund/American Institute for Cancer Research recommendations for cancer prevention in adolescent and young adult (AYA) cancer survivors: results from the SURVAYA study.

01-06-2025

Studies in health technology and informatics

From Federated Learning to Publicly Facing Platform; Proof-of-Concept of the STRONG AYA Information Portal.

15-05-2025

Patient education and counseling

Through the lens of oncologists when communicating with non-Western migrants about cancer diagnosis, treatment, and prognosis: Results from a Dutch online survey.

01-05-2025

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Long-term health-related quality of life among adolescent and young adult breast cancer survivors.

01-05-2025

Acta oncologica (Stockholm, Sweden)

Development and the need for implementation of a health-related quality of life measurement strategy for patients with soft tissue sarcoma undergoing preoperative radiotherapy.

30-04-2025

Cancers

The Prediagnostic General Practitioners' Pathway of Gastrointestinal Stromal Tumor Patients: A Real-World Data Study.

22-04-2025

The oncologist

Barriers to publishing early phase clinical trials: the oncologists' perspective.

04-04-2025

ESMO open

Adolescent and young adult (AYA) patient involvement and engagement in European health care and research projects: expanding the scope of patient advocacy.

01-03-2025

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Double burden: financial toxicity in patients with advanced soft tissue sarcoma at the start of first-line palliative chemotherapy: baseline data from the HOLISTIC study.

27-02-2025

Neuro-oncology practice

"Aiming at a moving target"-The daily life experiences of adolescents and young adults with a low-grade glioma.

01-02-2025

Journal of cancer survivorship : research and practice

Patient-physician agreement on function and pain is associated with long-term outcomes in sarcoma: findings from a longitudinal study.

01-02-2025