Publications

JCO clinical cancer informatics

Knowledge Representation of a Multicenter Adolescent and Young Adult Cancer Infrastructure: Development of the STRONG AYA Knowledge Graph.

01-01-2026

The Lancet. Oncology

Development of a core outcome set for adolescents and young adults with cancer.

01-01-2026

Journal of clinical oncology : official journal of the American Society of Clinical Oncology

Efficacy and Safety of Long-Term Continuous Nirogacestat Treatment in Adults With Desmoid Tumors: Results From the DeFi Trial.

01-12-2025

JAMA oncology

Guidelines for Next-Generation Sequencing in Sarcoma Diagnosis and Treatment: A Consensus Review.

01-12-2025

Cancer treatment reviews

How to foster new treatment development in ultra-rare tumours? Joint EMA-EORTC multi-stakeholder workshops on ultra-rare sarcomas as a model for rare cancers.

01-11-2025

EClinicalMedicine

Health-related quality of life in patients with advanced soft tissue sarcoma receiving first-line palliative chemotherapy (HOLISTIC): longitudinal results from a prospective, observational cohort study.

01-11-2025

Head & neck

Health-Related Quality of Life in Patients With a Head and Neck Sarcoma: A Mixed-Methods Study.

01-11-2025

Cancer treatment reviews

Genomic distinctions in adolescent and young adult cancer: A comprehensive review.

01-11-2025

Cancer treatment reviews

Overcoming the barriers to treatment of rare cancer patients in the era of precision oncology: A call to action.

01-11-2025

Psycho-oncology

Health-Related Quality of Life in Adolescents and Young Adults With an Uncertain or Poor Cancer Prognosis: Quantitative Baseline Results of the CORD-AYA Study.

01-11-2025

Clinical breast cancer

Long-Term Health Issues of Adolescent and Young Adult Breast Cancer Survivors.

22-10-2025

ESMO open

Minimum standards of specialist adolescent and young adult (AYA) cancer care units: recommendations and implementation roadmap.

01-10-2025

International journal of cancer

Socioeconomic impact among and socioeconomic support services for adolescents and young adults with cancer: A European perspective.

01-10-2025

The Lancet regional health. Europe

5-Year conditional relative survival of adolescents and young adults with solid malignancies in the Netherlands: a population-based cohort study.

01-10-2025

Journal of cancer survivorship : research and practice

Associations of adherence to the World Cancer Research Fund lifestyle recommendations with health-related quality of life and fatigue in Adolescent and Young Adult (AYA) cancer survivors: results from the SURVAYA study.

08-09-2025

The Lancet. Oncology

Importance of responder criteria for reporting health-related quality-of-life data in clinical trials for advanced cancer: recommendations of Common Sense Oncology and the European Organisation for Research and Treatment of Cancer.

01-09-2025

Psycho-oncology

Navigating Romantic Relationships and Sexual Intimacy: Challenges and Opportunities for Adolescents and Young Adults With Cancer - A Literature Review of Qualitative Studies.

01-09-2025

Journal of cancer survivorship : research and practice

Health-related quality of life of long-term adolescent and young adult (AYA) cancer survivors compared to a matched normative population: results of the SURVAYA study.

17-06-2025

Journal of the National Cancer Center

Five-year conditional relative survival up to 10 years post-diagnosis among adolescent and young adult breast cancer patients by age, stage, and receptor subtype.

01-06-2025

ESMO open

The role of whole-genome sequencing for guiding systemic therapy in patients with soft tissue sarcoma.

01-06-2025

Studies in health technology and informatics

From Federated Learning to Publicly Facing Platform; Proof-of-Concept of the STRONG AYA Information Portal.

15-05-2025

The Lancet. Oncology

Defining the role of pragmatic clinical trials in cancer clinical research: outcomes of a collaborative workshop hosted by the European Organisation for Research and Treatment of Cancer.

01-05-2025

EClinicalMedicine

Genetic predisposition in sarcomas: clinical implications and management.

01-05-2025

Acta oncologica (Stockholm, Sweden)

Development and the need for implementation of a health-related quality of life measurement strategy for patients with soft tissue sarcoma undergoing preoperative radiotherapy.

30-04-2025

Current oncology (Toronto, Ont.)

The Role of [¹⁸F]FDG PET/CT Prior to and During Neoadjuvant Chemotherapy for Soft Tissue Sarcomas.

28-04-2025

Cancers

The Prediagnostic General Practitioners' Pathway of Gastrointestinal Stromal Tumor Patients: A Real-World Data Study.

22-04-2025